I hate my baby

[Somebodyhelpmeplease]

He is safe with me I would never harm him. I don’t know what to do. He cries all day and all night he sleeps a total of around 4/24 hours all day the rest of it he is crying. He cries when I’m feeding him. He cries when I’m holding him. I’ve tried all the potions under the sun the doctors have given him for reflux etc but nothing helps. Health visitors don’t help, my family don’t help, nobody can help. I’ve tried keeping him close and I’ve tried getting him used to being put down. I’ve tried white noise. I’ve tried a jumperoo. I’ve tried swaddling. I’m always consistent with what I’m trying but nothing helps. I have two other children who he wakes all night long. One has to go to school exhausted every day. It’s been 5 months of torture, I honestly feel like climbing out of my window and jumping, if it wasn’t for my other children I probably would. Help me. I know other people have been through this. What Can I do?

Just read your updates- I am so shocked your GP is just not listening or understanding you. I think you have done the right thing. If it makes a difference then you can insist on a prescription from the drs. Be warned though it tastes pretty grim.
Sadly Nutramigen didn't work for my DD's and they ended up on Neocate but I have to say getting them on the right formula transformed our lives. It was like someone had waved a magic wand. Within 3 days almost all their symptoms vanished.
Really praying it works for you OP and that you can go and present your evidence to the drs soon.

I wondered if you told family and friends how bad you are feeling they would step up?
I have a pretty unsupportive family but they would help if I was feeling as bad as you are.
It's so awful to be coping with this alone. Makes me really sad for you.

Thank you for all the helpful replies. He has now been on the nutrimagen 1 that I purchased for 4 days and he has absolutely transformed into a new baby. His eczema is gone, wheezing has stopped, he’s napping in the day and sleeping for a couple 2-3 hours stretches at night. The amount of painful crying has rapidly decreased to a regular grumble here and there. I went back the the gp yesterday armed with our nhs trusts local local diagnosis and prescribing guidelines for all his symptoms and were shocked to see they were in my pocket as they tried to lie that they weren’t able to prescribe it! We left with a prescription for the milk and a paediatric referral for complete allergy testing! I will be making a formal complain regarding our treatment for both us and all the other mothers and their babies that are being neglected and made to feel as hysterical as I was. Thank you to all that have posted on here, without you I would not have had the knowledge and strength to fight for him and finally solve the problem!

That's wonderful news! Well done, hope he continues to improve

What fantastic news, really pleased for you OP.
Good luck with your complaint, hope you get a satisfactory outcome.

That's great OP! I hope he continues to be happy & settled

Thats great news! Im so angry though that they would have left a mother in distress and a baby in pain purely down to either cost cutting or willful ignorance - insisting the guidelines are different from how they are on an appointment that isnt even your first appointment for it (so there was time to actually check the guidelines) is not acceptable.

Nutrimigan was the formula my DD was out on too (she was prescribed a different one before that but it didn’t have any effect). I remember Nutrimigan was a bit more expensive and we often had to ask our local Boots to order it as it wasn’t always in stock so remember to buy it a few days before you are due to finish it in case you have any problems getting it. So glad things are improving!

Another thing I remember doing is half sitting her up (supported) during the day for pretty much all of the day whether it was a high chair, bouncer, sling, cushions on the floor. I am still hoping I didn’t do any damage to her back but she was happier propped up as she seemed felt pain more lying down.

That is brilliant news, I am so pleased for you and your wee boy. Best of luck to you both for the future and hoping that this has been the turning point for better times ahead. Well done for standing your ground

I'm so happy for you and your little one OP and so glad you got the help you deserved. Well done for sticking to your guns

OP I'm so glad you managed to buy the nutramigen and it worked!

My ds was similar to yours , changed baby. After 8 weeks though his symptoms all flared up again. Eventually I was told from a sleep expert that they can build an intolerance if they are very sensitive and it takes 6-8 weeks for this to happen. So we went back to GP and got neocate. Because he was effectively reacting for a second time it took 6 weeks for the old milk to come out of his system completely. If the GP mentioned this could happen I would've been all over it but I just thought that once he settled on the nutramigen then that would be it. So keep a look out xxx

Great news but appalling how you have been treated.

Good news - thank you for updating

I think you are right to take this to a formal complaint - I went formal with my GP a few years ago and it led to them significantly changing one of their processes.

@Somebodyhelpmeplease thinking of you.

Bless your heart. I posted DDs symptoms as they were so similar & she has a milk allergy.

I wish I had known sooner. Im so so pleased for you, that things are looking up

Enjoy your baby Op. Really glad you've found help for him now

Wonderful. If he regresses demand neocate and also omeprazole. Neocate is slightly more allergy free than nutramigen sonit depends how sensitive she is

@Somebodyhelpmeplease what a great outcome! So glad that you've been able to finally get it recognised that there was a problem as well as finding a solution.

That GP who told you it was normal needs to be told how very wrong they were. I hope your complaint will be taken very seriously.

So pleased they've finally listened, OP. And glad your DS is now more comfortable - poor mite must have felt absolutely miserable.

When you make your complaint, if you don't get a satisfactory response from the senior partner/practice manager, you can escalate it to your CCG. A key phrase to include would be "failed/failure in your duty of care" ie. They failed in their duty of care to investigate your DS' symptoms fully. Try to keep all emotion out of it if you can, although of course you can express your disappointment that they dismissed you as hysterical. I've worked in NHS complaints and the more objective a letter is, the better response they tend to get. Sadly, even when it's a given that someone would be very distressed by a situation, if they write a letter full of emotive words/swear words, hyperbole and with a focus on feelings rather than failings, it is more easily written off as someone who is "Mr(s) Angry" and staff can deflect it. If its calm, rational and objective they can't claim you're just emotional.

Great news, well done! So happy and relieved for you.

I’m glad you plan to make a complaint. It’s appalling that they fobbed you off for so long.

So pleased for you! Onwards and upwards. Well done mummy for keeping it together through such a horrific and drawn out ordeal. Hopefully you ca start to enjoy him now xxx

Fantastic!! Well done op

Well done OP. You are totally right to make a complaint. So glad for you that you are finally being listened to. Enjoy your lovely baby.

Well done OP, what fantastic results. I am so pleased your baby is responding so well this early on.
I think you should complain. The practice clearly has learning needs with regards to CMPI. Best wishes

Oh, OP, that's brilliant news that you're finally getting somewhere! I really hope that they do the absolute best for him from this point onwards.
I agree with others - Neocate is the one to ask for if you need a different milk.