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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

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To be fed up of feeling like I'm a second-class member of society

763 replies

Mummyme1987 · 29/05/2016 02:11

I had a serious car accident a few years ago, and have various medical complications too. I use a wheelchair. I'm fed up with this feeling that because I have mobility and medical problems, I'm not a full member of society. I overheard a now non friend imply that I was a drain on society because I don't work. Lately I've had issues with people talking over me, at a checkout I'm ignored and even though my hand is out for the change it's given to my husband. Little things like people moving my wheelchair so I'm facing the wall. Even moving me so I bash my toes. And then there is the parking issues, comments about being too young to have mobility problems, like being young stops car accidents. I've put on weight since the accident, so i get a lot of too fat to walk comments. Why do people do this? My family are fab, we have other disabilities in the family, and at home I don't feel this way. Im now finding I don't enjoy leave the house unless I have too. Im fed up with other people's attitudes. When I have talked to these people about the attitude, they always try to lay it at my feet with the dont be so sensitive, maybe you are depressed (I'm not), I'm actually really happy, I just am fed up with your attitude! Im not even sure why i am writing this but it has boiled ever today.

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Mummyme1987 · 29/05/2016 21:46

Holidays I'm loving the have you let me come out with my top on again one!

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Mummyme1987 · 29/05/2016 21:49

I'm cultivating that expression. Haven't quite got it right yet, I'm still on the constipated face side still.

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flowersinthepots · 29/05/2016 22:21

Sometimes it's just ignorance. When I was at high school I'd never personally had any encounter with anybody with a physical disability. If I saw someone in a wheelchair I found it difficult to know quite how to act around them simply because for me as a teenager someone in a wheelchair was different to what I knew and understood (I don't limit this feeling to disability either it's just that for me it was a case of not understanding anything at all about people with physical disabilities)
Anyway, I then did four years volunteering with a children's disabled club and by the end of that I couldn't even imagine being awkward around anyone in a wheelchair. This experience helped me learn so much about social interaction and inclusion of everyone regardless of whoever they are.
I wish they had more schemes in schools to integrate disabled children into social activities regardless of what school they all actually go to, being exposed more to people with disabilities saved me from my own ignorance.
My dad is now disabled and he sometimes feels embarrassed if he is able to walk painfully and slowly into places for fear people are judging him to be not disabled just because he can get ten metres by foot. It's a genuine fear and it's very sad people like my dad endure it on a daily basis.

cozietoesie · 29/05/2016 22:30

Thank you for this thread, OP.

LurkingHusband · 29/05/2016 22:35

It's shit that in 2016 you can't be treated the same

Having spent 20 years living with someone with MS, I think it's getting worse, not better Sad

Loads of blue bubbles to the OP Smile

Lambzig · 29/05/2016 22:45

God this thread is sickening. I am really shocked. Thanks to those sharing experiences, I am so sorry you are treated this way. It needs changing.

Mummyme1987 · 29/05/2016 22:46

Thank you everyone for replying to this thread. I was just blowing off steam during another long sleepless pain filled night. I wasn't even sure that anyone would believe it happens. I had thought I was going to get accused of being a troll making up far fetched stuff. Sadly I'm not the only one treated like shit.

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Mummyme1987 · 29/05/2016 22:49

I also thought nobody would care. I'm reduced to tears that people have reacted this way.Smile

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Baconyum · 29/05/2016 22:53

Flowersinthepots my aunt has a blue badge but is not obviously disabled (heart and lung condition mean she can't walk far). She's quite strident though and goes into GREAT DETAIL about her condition, the ops she's had, how she manages day to day if anyone gives her grief! I'm sorry your dad feels at all worried or embarrassed he's no need.

The sex thing - my friend with CP. Addresses this one by saying 'I can get into more interesting positions than you can! I bet my sex life's better than yours!'

I also have mh as my main condition, mobility issues are also partially due to a car accident. The mh prejudice is abominable! I get some who understand but far too many who think I'm a 'scrounger', I've worked since I was 14 full time since 16 and was in my late 30's when I stopped working (having risked my health AGAINST advice from medics by feeling guilted into working so as not to be a 'scrounger', which has probably meant I've spent MORE time out of work than I would have if I'd simply taken enough time to recover). I recently had a neighbour give me this Hmm face when I was getting a taxi 'again'. Because even though he knows about my health I suspect he thinks I'm 'putting it on' and I suspect he thinks taxis are a luxury those of us on benefits aren't entitled to. There's several reasons I may be getting a taxi

I'm in pain and a jolty bus doesn't help!

My legs are weak that day and I don't trust them to get me on/off a bus even with crutches.

My anxiety is bad and as I have OCD other people touching me can be an issue.

I'm attending an appointment at either therapy or Physio and they're nowhere near bus route. Re Physio this could also be an appointment for dd who has hms

But yea a taxis a luxury not allowed if on benefits! Angry

Dd has already experienced discrimination as she's had kids outright saying (backed up by ignorant arse parents) that she's making it up or 'milking it' - she's actually had that quoted to her several times! I'd love to send them video of her barely being able to stand due to swollen/painful knees/ankles/hips.

The school are no help! The pe teacher she had first 3 years of high school doesn't believe hms even exists! When dd was saying she needed to stop, teacher was saying 'just push a wee bit harder' totally contrary to advice from professionals including msk consultant! Angry this only stopped after I took pics and video to show pe teacher! Thankfully dd no longer has to take pe (she swims and walks for exercise).

As for how to stop it? Standing up for ourselves is SOMETIMES an option (but toomany NOT ALWAYS as sometimes these twats run off, sometimes you sense you'd be inviting harassment, even assault, 'cripple bashing' is a thing in some places).

Personally I love that we are SLOWLY seeing more disabled people in mainstream media. Eg the last leg, the lady without a hand on cbeebies (but then look at the shit she got online), the blind actress in emmerdale, occasional actors with Down syndrome...

But it's not enough and in most cases it's tokenism/part of a plot. I'd like to see

Newsreaders, presenters, weather announcers with disabilities

More roles in TV fiction given to disabled actors but where their disability ISN'T part of the character/plot, even in action shows the police chief or whatever could be disabled.

But then all this ALSO applies to

Race (the shocking lack of non white faces in eastenders and corrie for starters!)

Sex (roles that could equally go to women repeatedly given to men - mainly police officers/drs. And when they do cast women it's part of the plot. Also lack of lgbt roles where again 'it's just who they are' - eg the very camp Sean in corrie. )

Mental health depiction (I was stupidly pleased to see monk and Whitehall depict characters with OCD as useful contributing members of society). It's always a big plot thing, not 'just another health issue' and worse when the plot has been 'going on too long' the mh diagnosis is 'forgotten' but this also happens with addiction and mc/stillbirth.

Sorry bit of an essay on prejudice generally.

We've a long way to go!

AndNowItsSeven · 29/05/2016 22:55

I understand op. The thing I hate the most is when people barge in front of my dh and I assuming I can't possibly be the mother of the DC in the quad pram as I am disabled.
Last time I was admitted to hospital the nurse thought my dh was my social worker and looked bemused that I could have a partner Hmm

Baconyum · 29/05/2016 23:06

As an ex hcp myself the behaviours of other hcps noted on this thread are I think worse than when it's a general public person they

1 should know better from experience

2 are trained to behave better clearly some need more training!

Foofoobum · 29/05/2016 23:19

I often get comments for parking in a blue badge space without an obviously visible disability so much so that my dc begs me not to park in a blue badge space because it embarrasses her.

My go to response when I'm told I don't look disabled is "you don't look ignorant either, guess we're both wrong" - I've never had anyone come back after that.

Mummyme1987 · 29/05/2016 23:21

If nothing else hopefully this thread has helped in a very small way towards awareness. It certainly has made me feel better and less alone. Maybe I need a robot wars upgrade to my wheels so I smoke the bastards who mess with me. I wonder if I can get that upgrade on the nhs?Grin

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Mummyme1987 · 29/05/2016 23:22

Love that one foofoo!

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EverySongbirdSays · 29/05/2016 23:34

Just adding in that another wheelchair user here - had all of the above and more.

I see the Euthanasia brigade haven't been mentioned ie

"I'd top myself if it was me"

Mummyme1987 · 29/05/2016 23:38

I got very upset with "me before you" book. Dignitas and all that. Made so cross. Re-enforcing the idea that we should all kill ourselves.Angry

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EverySongbirdSays · 29/05/2016 23:42

Yep. And now there's a film. Lovely.

It is also to be noted they haven't given a disabled actor the opportunity. As usual.

Mummyme1987 · 29/05/2016 23:49

I saw that about the film.😡

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EnidButton · 29/05/2016 23:50

Bloody hell I'm so sorry anyone has had to experience such ignorant comments and out right nastiness. It takes a special kind of stupidity it really does. Have their lives been so charmed that they're devoid of empathy. Anyone can become ill or have an accident at any moment and have to use a wheelchair or other aids to get around. Let's hope if it happens to them, they don't encounter the kind of stupidity that they've shown. Fuckwits.

I care. Flowers

EnidButton · 29/05/2016 23:50

And that book is shallow shit.

Mummyme1987 · 30/05/2016 00:51

Thank you Enid for caring. You have hit the nail on the head, lack of empathy. And yes shallow shit!

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TyneTeas · 30/05/2016 01:30

My go to response when I'm told I don't look disabled is "you don't look ignorant either, guess we're both wrong" - I've never had anyone come back after that.

I alos quite like "Everyone can see that I xyz, however no-one realised that you were such a judgemental arse until you opened your mouth

DecaffCoffeeAndRollupsPlease · 30/05/2016 11:32

The 24hrs notice to use the pool is a problem I am familiar with. My ex with cf was told that if he wanted to use one of the nurse or just a private room to use nebuliser in, he'd need to give 24hours notice. As if he could predict unexpected breathing problems?

Mummyme1987 · 30/05/2016 12:27

That's so stupid, how could you know 24hrs in advance if you are going to have problems breathing? Angry

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Mummyme1987 · 30/05/2016 17:17

It would help if places could be reported for breaking the equality act but instead you have to take them to court yourself 😔😡

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