Aibu to have handed my dd over to my dh and refused to deal with things for a while

[Sothisishowitfeels]

I have posted God knows how many posts on here about my youngest Dd (5 months) I just can't deal with it anymore, she is such incredibly hard work she screams for hours on end she comes out in random rashes, she has excema she, is terrible to feed, she wakes regularly at night. She has been in hospital twice already with chest infections, she is constantly snotty and dribbling to the extreme and has been since birth. She scratches herself constanly if you allow her access to her body - she has a bleeding cut on her leg which she did with her own finger despite me cutting her nails down as far as I physically can.

She cuts herself and bleeds so easily - today she had a bleeding cut on her chin which she got from a rusk ffs.

She has non blanching spots which I'm told are petichae but no one is told me why she gets these on her legs.

I have asked our go about these issues but because I have pnd (which frankly isn't surprising) he just asks me how I am sleeping etc.

This is not my first rodeo - she is my 6th child but I just can't take it anymore she screamed for hours on end today. today I have told him that I need him to do something . He works long hours, I know that I am probably asking the impossible but I am too tired to care.

I blurted it all out to him, showed him photos of our day which were various rashes, screaming and cuts and he has said he is calling the gp tomorrow to find out wtf is going on and tell them it's pretty much not in my head which is what I'm sure they believe it is.

He has sat her with me while she screamed for hours solid he knows that she is to say the least difficult.

Was I being unreasonable . I have literally left him holding the baby, he is going to have to take time off work to go to he gp for something that is potentially on my head.

I would put money on that being an allergy, perhaps dairy and/or egg. Be aware that some gps knowledge of eczema and allergies is incredibly limited (personal experience) and if you do have the option to go privately I would consider doing so.

thanks everyone.this afternoon has been a bit calmer . she had some of the cream on not sure if it will help but she enjoyed the extra attention anyway.

yes the apppointment tomorrow is for me to see if the change of medication is helping .not sure it is!

I am just going to try and get through today then after that tomorrow i think that little victories are the way to go!

Sorry I know the thread has moved on, and someone else may have asked, but the second picture you posted.,.. is that a bruise on the left side of the photo? On her leg?
Are you thinking some sort of ASD for your 5 year old?

cmpa
i could bet you money

and i want to say with the right formula things will be better !!!

its not a bruise its a larger onenof the spots she gets - they come and go much more quickly tham bruises!

yes the hv was suggesting that my 5 year old may need to be assessed for that.

Sorry, I know I've already said this on your previous post where others agreed but I really would go back and ask about ITP - if you google you will see it is about low platelets and causes bruising, a meningitis type rash and bleeding, and can be very serious and urgent.

My dh asked about the non blanching rash today and he was told it was nothing to worry about because it was fading and small?

Good! I haven't read through the whole thread, sorry. I hope you get to the bottom of it, good luck. It just seemed to be something you can only diagnose with a blood test, but as I said in the other thread I am only going on my experience.

Good luck at the Dr today. I'd try and raise the problems with teh bay too and ask where you can go to get other help.

Are things any better, OP? I hope they are.

things are not good. dd isnt actually too bad - she has anither cold/runny nose but thats it. i am a mess though!

i managed to say i was fine at the doctors yesterday - no idea why.

i am just trying to sit quietly, mumsnet and trying to stay calm today.thanks for asking after us

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CMPA10
27/03/2016 22:51 rubyrooster

So we are trying for another baby.

My baby boy has CMPA and suffered quite badly from birth.

It also came apparent that I also am intolerant to milk. But never really knew because didn't have it much.

Have people been in this position and fed their new baby 'normal' milk or started with special milk. This is a big worry of mine as I don't want the baby to suffer like my Lb did.

Thanks for your time. X

27/03/2016 22:54 confusedlilly

My dd is cmpa, I am planning to feed dc2 normal formula in the hope that if they are cmpa aswell it will get picked up a lot quicker than it did with dd. Took me 4 months of battling with gps etc to get referrals and prescription formula. X

27/03/2016 22:57 rubyrooster

Is that what you have been advised or just what you are happy with ? Are you intolerant/ allergic to milk or just your lo?

Thank you for your reply xx

27/03/2016 23:01 confusedlilly

It's what I have decided to do, my older brother was cmpa as a child and me & my sister aren't so I'm hoping that maybe dc2 wont be. But we shall see.

Its only my dd that is cmpa, I am fine as his her dad.

28/03/2016 15:47 pamplem0usse

My ds is cmpa (as well as a lot of things he's seem at great Ormond street) pretty sure dd was too with hindsight but grown out of it (but coeliac) now preg with dd2 and will get the shock of my life if she has no allergies. I think you just have to be heartened by the fact you now know what you're looking for. I plan to bf and will feed dd for a week then switch to dairy free myself and compare and contrast. I'll be asking for an immediate referral to a tertiary hospital if I have any suspicions but thats because my local unit was bloody useless!

28/03/2016 18:20 TheCrumpettyTree

My ds has a cmpa but my second doesn't. I fed him normally. I was told by the allergy consultant that the risk of the second child having it was really low.

Are these the weirdest pregnancy cravings EVER?
28/03/2016 21:26 rubyrooster

Thank you all for your replies.

It has given me some reassurance that the next one may not have it. Thank you xx

28/03/2016 21:33 Ifiwasabadger

Mine was cmpa and we fed her the aptamil hypoallergenic. I would try and go for a speiclaised formula if you can.

28/03/2016 21:59 StrawberryLeaf

DD1 has cmpi, she was breastfed and I was dairy free during that time.

While pregnant I spoke to the doctor about going dairy free in preparation for feeding dd2. The doc said not to assume dd2 would be the same, to feed normally but the difference is I would know a lot quicker if there was a problem.

Dd2 has no allergies or intolerances (phew!)

Today 05:20 Carrie1990

Hiya
When my little girl was a baby she would constantly throw up after feeds and would constantly be screaming doctors said reflux but I always thought if was more than that has excma and asthma too. She's now nearly three and keeps breaking out in severe excma and rashes and says she has a tummy out so the Drs now think she has cmpa and we have been advised to cut out her main dairy intake (this been milk and yoghurts) however should we cut all dairy out such as butter etc we kind of feel like we've just been sent away for 2-3 months to deal with this until we see dietician in 2-3 months. Also do this found like cmpa to you?
Sorry about the long post! And for jumping on someone else's post I can't seem to find how to post myself lol
Thank you
Carrie x

Sorry about the previous message my phones seems to have copied other peoples posts from a previous thread?! Sorry about that mine is the end of the message x

Sothisishow oh dear - any idea why you went all "I'm okay" at the Doctor? It's not helped. Can you go back again with it all written down so you don't back out of it?
How has your gorgeous little girl been this week?

Hi just thought i'd add that I recently seen a few articles mention the sma milk, apparently they have recently changed the formula and so some babies were having some really bad reactions to it...although I know you have said this has been since she was tiny but just thought I would let you know still. :) .. Sorry you are feeling this way X ..as all the others have said, you are doing great, just keep on at the docs til they do actually help you! x and don't feel bad leaving little one with daddy for a bit either, he sounds supportive so let him support you xx

Go to gp and insist on a paediatric referral - they are supposed to allow a paediatric consultant referral if a parent feels something is wrong and wants a specialists opinion, even if they as a gp don't think the child needs it.

I have literally refused to leave gp without a paediatric referral with both DS and DD (I was right both times - peadiatrician got DS referred on urgently to alder hey and they helped him. With DD, whilst she was waiting for her routine appointment, she actually had to be seen urgently due to serious deterioration). Both times GP's were dicks. Both times all staff in paediatrics were fantastic.

I also think it sounds like allergies too.

I am ok . I have started giving her some fruit purées the last two days after having it she gets spots (plc) a few hours later which are gone by morning.

I have been trying to keep a record of everything including pics to try and keep track of what's going on.

She has a few more of the non fading spots on her legs and one or two on her arm.

The HV is due here 9:30 this morning so I will show her and see what she thinks.

Forgot pic!

This was yesterday

YANBU! Give yourself a break! You've been doing this for 5 months!! Get all the help too possibly can and hound those bloody doctors until they listen. It's not fair to have to carry on as you are because you'll end up not being able to cope at all.

sothisithowitfeels I'm a paediatrician, and I 100% agree with everyone saying your child is likely to have CMPA. If your GP is not playing ball, I'd go and buy some extensively hydrolysed formula such as pureamino and try her on that for a minimum of two weeks. Cut out all the yoghurts/ dairy. Use your moisturiser at every nappy change (we aim for 8 times daily) and add oilatum to the bath. It might cost a bit of money, but it's cheaper than a private pediatrician and should give you an answer (and hopefully a happy baby!)

Hiya I know this is someone else's post but just thought I'd see what people think, my little girl is almost three and like I said previously she used to constantly projectile vomit after every fees and scream for ages etc she also has excma and asthma but Drs never said anything about an allergy until now as is done my research a bit more and have pushed for them to do something as she keeps breaking out in severe rashes (pics) does anyone else this think could be CMPA Drs have told me to cut dairy out for 2-3 months to see if it helps etc and then see a dietician however think were going to go private as we feel we've just been sent away to deal with it ourselves.

Down - thanks. My HV came today and she has faxed the gp about the non blanching spots my dd gets but about the rest she said see how she goes with weaning.

I will take your advice and go and try the new formula etc - nothing to lose! I assume this won't help the spots on her arms and legs? (The non blanching ones)

Carrie - I'm not sure but hopefully cutting out dairy will help!

Only read the first page or so then skimmed down for your updates OP...
But I think it sounds like cmpa which my dd has. Could also be silent reflux?
Anyway, everyone already given you great advice but I can't see any mention of this: you mentioned her cutting her chin on a rusk several times. Has she been weaned at 5 months? I'm sure you're aware after so many children that the current guidelines are 6 months but the only reason I highlight it is that introducing typical allergen foods before 6 months can actually make allergies worse.... So I'm just thinking that if she is having food then she needs to avoid dairy, eggs, fish, wheat/gluten before 6 months. This might be making her reactions/rashes etc worse??? Just an idea.

Just hang on in there things will get better with time

Just saw the bit about fruit purees.... Acidic citrus fruits can cause rashes too, my DD used to get them on her face and sometimes her hands. Often just red 'lumps' and sometimes a nettle rash.
Can you stop weaning and wait a few more weeks until 6 months to wait for her digestive system to mature a little more?? It might help??? Along with the change in formula milk obviously
Good luck