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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To want to tell this mum how devastated our 6 year old is

291 replies

BuntCadger · 04/04/2014 11:54

My ds2 has high functioning autism. he's very affectionate and kind but often plays on his own but is very attached to a couple of kids. These children came to his party (whole class invited) and it was clear that they all got on well. One little boy, I'll call him harry, told ds2 he was invited to his party. no invite was ever received and we invited harry over to play which was declined by text saying "thanks but can we just leave it for now".

School have called to say ds2 inconsolable repeating it's too late it's too late. It appears harry had his party and he and other children have told ds2. This might seem minor but for ds2 it's a big big deal. He doesn't have play dates etc like other kids. He can only manage school part time and is being statemented. He Isn't naughty, he isn't a bad influence, he isn't violent, he simply cannot cope with the anxiety he feels and sensory processing issues.

I feel like I want to tell this parent and anyone else this as it simply isn't fair that they exclude him for being different Sad Sad

OP posts:
Aeroflotgirl · 04/04/2014 14:21

I mean I love my dd school it is fantastic, dd us coming on so well there

PeachyTheSanctiMoanyArse · 04/04/2014 14:21

Bunt that's how we started ds3 in school, part time, and built up to full time before heading for the Base. It was exactly the right solution for him.

BuntCadger · 04/04/2014 14:21

captain - I absolutely could explain that (and did) to ds1. However ds2 isn't ds1 and his perceptions are very different from what is considered normal. so no, telling him how it is at age 6 isn't realistic. actually it's fairly hard to judge when is but we are taking it a day at a time

OP posts:
frumpypigskin · 04/04/2014 14:22

I do think you're being unreasonable I'm afraid. It is horrible when your child is upset but unless your child was the only one in the class not invited then I'm afraid that's life.

My twins are the same age and they are beginning to be more independent and have stronger ideas about who they want to be friends with and who they would like to have at a party. My twins come home every week telling me they have been invited to someone's house or party because that's what they have been told at school. They are 6! I don't hold them to it or expect the other children to be more sensitive as it's age-appropriate behaviour.

I understand that your son finds these social issues harder to deal with but I'm not sure that that is the responsibility of the other children or parents.

It did sound to me from the tone of the 'can we leave it a while' text that the mother was trying to gently tell you that her child didn't really want a play date.

I am genuinely sorry that your child was upset but you sound really cross with the mother of the other child, and I don't think that's fair.

TaliZorahVasNormandy · 04/04/2014 14:22

I'll let my sister know *Peachy", they are trying anything to get him the help he needs, right now hes been majorly let down.

BuntCadger · 04/04/2014 14:25

frumpy. I'm sad tbh but understand that not everyone would understand and I know when ds1 was small I didn't always get it either.

OP posts:
PeachyTheSanctiMoanyArse · 04/04/2014 14:25

Tali feel free to PM me (or your sister ) if I can help with ideas, and I will see if I can (3 kids with ASD, most of an MA in ASD ) x

Aeroflotgirl · 04/04/2014 14:26

He is tali, your nephew needs a statement and to get into a specialist school or a least one with an Autistic department. Your sister has to apply fir a statement and IPSEA to help you. My dd mainstream were fantastic, the HT had a dd with Autism and fought to,get dd tge statement and school she needed.

TwoAndTwoEqualsChaos · 04/04/2014 14:32

I am only on p2, but want to post before the children kick off and I will go back and read it all asap!

Similar situation in DS1's R class, a little boy who came in only half days. No idea what his specific extra needs were but, of course, it meant he didn't know the other children as well and we didn't know the mother as well. However, when we did a whole class party, we still invited him and I went out of my way to make it clear he was wanted. His mother declined, because she felt he wouldn't cope with it all, but she seemed pleased he had been included. Tbh, it never occurred to me to do otherwise and I would have hated to have been the cause of the sort of devatation you describe.

diddl · 04/04/2014 14:39

It just sounds like unfortunate circs tbh.

Harry verbally inviting all & sundry, mother refusing a playdate & OPs son reacting badly to discovering he hads missed the party.

None of them are anyone's fault.

TaliZorahVasNormandy · 04/04/2014 14:40

IIRC, They applied for a statement, I think they said he didnt need one, the school hes in are trying their best for him, they just cant give him everything he needs. Dsis and BIL have applied, right now my Nephew seems to have been condemned to fall into the cracks of a underfunded systems

PeachyTheSanctiMoanyArse · 04/04/2014 14:45

Your sister should apply for the statement. Heck, our school told us we'd been refused and it was a complete lie! Wasn't even on the SEN register. But parents have more power, again IPSEA website. or SOS!SEN.

BuntCadger · 04/04/2014 14:47

Sounds tough tali Sad our school, ed psych and senco are instigating the application for statement and leading us through the process. I think we are lucky few tbh

OP posts:
Aeroflotgirl · 04/04/2014 14:51

Bunt I was lucky, in the right school dd stress and anxiety levels are greatly reduced, she does full days as staff there are Autistic retrained, they know and understand Autism and how to get tge best out of tge Autistic child. It really seems as though op that school might not be right fir your ds as he cannot cope in there for long.

sexypantsformum · 04/04/2014 14:51

I really don't swe what the other parents have done wrong.

CheerfulYank · 04/04/2014 15:10

You know, if I were "aware" of someone's HFA I would make sure to include them.

It does sound like the mum is nice enough though and didn't only exclude your DS, so just a misunderstanding. But I'm so :( for your little guy.

Zipadeedoodaa · 04/04/2014 15:11

I am not going to focus my response on whether or not your DS should have been invited to the party. I want to focus on something else.

Simply because I have been where you are right now. I have walked away from school with my child who came out crying without the "golden ticket" to someones party or birthday activity. I actually walked home crying silent tears on his behalf and hugged my DS1 to bits when we arrived home.

I then gave myself an enormous kick up the arse. No parent "owed" my child a party invite, they had simply grown out of whole class parties. I realised that I had to work on my childs social skills and how he interacted with people. Why? Because the majority of HFA children realise at some point that they are different but do not understand why. It also makes them extremely vulnerable and they become even more isolated when their peer group start to do things independently of their parents. Like going to the park and out with their friends etc.,

So, the best advice I can give you is to work on his social skills, broaden his social life and increase his social circle as soon as possible. I learnt the very hard way that if you allow him just to have one or two friends you are never broadening his horizons. My son never had the social skills so that if, for example, his only friend was off school sick or on holiday. He would just sit down with a book at playtime or sit on a bench on his own. It was heartbreaking.

The reality is that at primary school they are often setted for subjects even at primary school age so in just one day he could be sitting next to three or four different children. He won't or may not understand that just sitting next to someone makes them a friend, or a best friend. So, he needs to be taught that you "make" friends and how to do it. He also needs to be taught that sometimes you have to sit next to people you don't particularly like or even know, but that is OK. That sounds harsh but it is true and is good preparation for secondary school where in Year 7 a lot of schools will sit them in alphabetical order. This can cause ASD sufferers enormous problems if they are not expecting it.

I found that Beavers, Cubs or Boys Brigade are brilliant as they all promote manners, good behaviour and always follow the same routine but with varied activities. Also, your son would love doing all the work to earn the badges and he can work his way up to Venture Scouts as a teenager which is when he is really, really going to need a social outlet outside school. They will have experience of Autism and will be patient and understanding but never mollycoddling. That was my biggest mistake, I would mollycoddle him and want to wrap him up in cotton wool. No! Your child will get there socially, but needs instruction and patience because he needs to be taught those things rather than instinctively having the skills.

Also, swimming was very good as the instructions are given in a very clear and concise manner.

I sound really patronising but with ASD and HFA you, the parent, have to teach the tools and skills needed and start them as soon as possible.

Best of luck, Zip x

Zipadeedoodaa · 04/04/2014 15:12

Phew that was long, sorry about that.

YourMaNoBraBackOfMyCar · 04/04/2014 15:23

My dd turned 5 a few weeks ago. For a few days I had parents coming up to me to ask about her party. Since Christmas she has been inviting all and sundry to her birthday party. We weren't even having a party. She just took it upon herself to tell everyone that she was. I let her invite one friend to a tea of her choosing and that was it.

I despise parties. The last one we had was a nightmare with one child having a meltdown because I asked her not to dip her spitty fingers in the food. I also bought each child a little gift rather than do party bags. I bought the same for the girls and same for the boys. Of course she wanted the toy the boys had. Rather than tell her dd that you have what you're given or get nothing her mum tried to get me to take it off one of the boys for her. Hmm her dd decided I was nasty and didn't like me so naturally her mum threatened her with me when she was taking her time getting her stuff together. I was rushing around organising games, food etc but her mum kept trying to monopolise my time. Probably because she didn't want to interact with anyone else. "Oh leave that. Come do me a brew." "Ooh need to tell you this! Come to the kitchen!" Grrrrr! FUCK OFF! Why don't you make me a brew or at least help me sort these pizzas out. When one of the mums came to pick up her ds he ran to her excitedly. "Look what I got! I have two now! One of each colour." The mum of meltdown child said "you don't need two! Let XXXX have it." The other mum had to stop her taking it from him. The little boy got upset and said "it's ok Xxxx can have it". We had to stop her taking it then too.

That was the last time I organised a party. I got a cracking headache that lasted days because of it.

BuntCadger · 04/04/2014 15:31

um so the party was for 4 year old and presumably some were still 3? and you were telling the off for spitty fingers and preferring a boys to rather than a genderised 'girl' toy. and perhaps the mother thought you seemed frazzled and was trying to relax you by jollying you with a chat. surely there were lots of parents there presumably mucking in with their own kids and those around them.

OP posts:
BuntCadger · 04/04/2014 15:37

zip Grin long Indeed. We are and do encourage the socialising. hoping rugby goes well on Sunday. The cub group here really isn't suited. my eldest (in air cadets now) really struggled with cubs and scouts as groups here not run particularly well and we have tried to be involved as helpers but the leaders of each are fairly limited in outlook.

swimming was fab but hos teacher left so hoping to get new one.

We are lucky that we have friends who have children which we socialise with when we can. We also have other children so ds2 learns dynamics there. socially he misses cues at times but he's well liked by other kids (they run up to see him) and he's kind and shies away from overly rough play. but I do take on board your post and I do appreciate you sharing with me. x

OP posts:
Northernlurker · 04/04/2014 15:57

Oh op this is awful. Poor little chap Sad I think your text was fine actually and the response is ok too. If it helps please tell your ds that I am a great big 37 years old and I can still remember how I felt at nursery when a mum came to pick up somebody who was supposed to be my friend and took about 6 girls home with her for a party, leaving me behind. It is one of my earliest memories and it sucked then and it still sucks now. There are things like that which we're supposed to be all resilient about but bottom line is it's a rejection and that HURTS. You get past it of course but it's no good trying to pretend you're not bothered. Please tell him too though that I've been to lots of parties since then Smile

Earlybird · 04/04/2014 15:58

Completely heartbreaking for your son, and I am so sorry he is having to cope with the disappointment.

I'm glad you sent a text to the other Mum, and her reply seemed pleasant and superficially plausible. But, autism or not, common etiquette would say that your ds should have been invited to 'Harrys' Party. If they truly were limited by numbers for Harry's party, and would not be in a position to reciprocate, they should not have accepted your son's party invitation.

Sad to say, but it sounds to me that the other Mum is gently discouraging a friendship between the two boys. I think I'd look to do a bit of 'social engineering' and encourage your ds toward friendships with other children (and parents) who can accept your son.

Good luck.

YourMaNoBraBackOfMyCar · 04/04/2014 16:05

Ok, not sure why you responded that way op? I was recounting my experience and certainly not getting at you.Confused
Anyhoo... It was a joint party for 7&9 year olds. They chose 5 friends each. Both a mix of boys and girls. This was a girl of 8. I don't buy gender specific toys (where does it say that?!). Actually even if I had how does that give her licence to behave like that? I bought them a gift. You still say thanks in this day and age surely?! You don't bitch about it in front of the person who bought it do you?! Well shit...
Oh oh yeah. I didn't tell her off. I asked her not to dip her fingers in some dips repeatedly.
I specified no parents. I had dh to help. She displayed the reasons I asked them not to stay in the first place. No other parents stayed except her (she just hung around). I wasn't frazzled. Believe me she wouldn't notice if I was. Does an 8 year old girl need telling not to do that to the dips? They weren't usable after she opened them.
So yeah. Birthday parties? Fuck. That. :o

diddl · 04/04/2014 16:07

"But, autism or not, common etiquette would say that your ds should have been invited to 'Harrys' Party. If they truly were limited by numbers for Harry's party, and would not be in a position to reciprocate, they should not have accepted your son's party invitation."

OMG!!!

But OPs son wanted Harry at his party and would probably have been disappointed if he hadn't been there.

I'm sure OP didn't do a class party on the assumption that everyone else would & her son would get back as many invitations as she issued.

I'm sure she did it because that's what she & her son wanted to do.