feeling hard done by....:(

[DidISayThatOutLoud]

Sooo, I am new to this (as in 30seconds old)...after regularly reading the threads and seeing it's ok to have a moan, I was wondering if it would be ok for me to do the same?

I am 25 and have an amazing husband (he is my best friend) and 2 beautiful girls aged 5 and 3, I have fab friends and a family that love me... and because I am the "bounce back Queen" I fnd it hard to ever have a moan...

BUT....

My hubby is registered disabled, he has ME/CFS, (this was diagnosed by an endocrinologist after rigorous amounts of tests and eliminating everything else) Fibromyalgia, Diverticulitis (recurrent), a hyatus hernia, GORD, A new hip problem (which may result in a replacement), low testosterone.. Asthma...the list goes on.

It's been on and off for a few years, but the past 2 yrs have really been down hill... He has even spoken to a GPSI (GP with a special interest) who has told the hubby that he is too young to have half of these problems... which of course doesn't make it any less so.

My 3 year old has a paediatricians appt on Thurs for a pooing problem which has been ongoing (movicol and lactulose do NOT work)

I have an appt on Fri for a pre op assessment for Endometrial Ablation (my periods last approx 3 weeks and stupidly heavy)...other than that my health is great...could do with losing a stone since having children... but one day at a time. :D

Now my whole thing is...for just a second (Even though it sounds SOOOO unbelievably selfish) I would like someone to just give me a hug, a bar of chocolate and beat up the world with me...just for 5 minutes.

I found out recently that a few of my close friends don't want to confide in me because they think I have too much on my plate... I never really get down about my life, like I say, my hubby is my best friend and my children are amazing... but now I feel unable to say anything even if I am having a crappy day because I would never ever tell my friends they are worse off or anything like that, one of them point blank said "I don't know how you manage to smile at all without me adding to it".... this offends me a little because as far as I can see I am a bloody good friend, I don't want to be shielded (they know this)

So basically I am taking 5 minutes to feel hard done by, please feel free to do the same... rant over. And I don't even know what the title of this should be...random rants? sorry folks....

(((((((((()))))))))))))))))))))))))

:' 0) Aww how sweet, tyvm :D

I'd share my choccy with you. you're nice, we can fling shit at the world together if you like?

By the sounds of it you're definitely allowed to feel hard done by for 5 minutes! Is there anyway you can take a break and have even a couple of hours rest or relaxation time?

I can understand that you just want to be treated normally and be able to let off steam and have a moan with your mates. You and your family have my sympathies and respect for dealing with all that lot. My SIL has fibromyalgia, it isn't nice, my oldest friend has had ME for nearly 30 years and my brother was hospitalised with diverticulitis and ended up having a stretch of colon removed so I know these things aren't pleasant. Have some

I'm going to sound really dense but what is OP? and DS and all the other abbreviations?

Bambino...YES!! Let's do it, we can even make a catapault... After changing nappies non stop for nearly 6 years I'd like to keep my hands clean hehehe

Hi Cherry... the girls go to school/nursery and hubby sleeps a lot so I do get down time.... I cry when I need to although it's rare and I'd rather laugh all the "wobblies" out.. I do get a little sad as I have to stop everything, like college I started that but had to stop, St John Ambulance, even driving is stop start.. but then I have a kindle so what else could I need? :D xx

Thank you Prudence, yep hubby is in and out of hospital but they won't remove any bowel because he's too young...

Sigh!

Thank you all so much, I didn't think I'd actually get replies, just wanted a good old fashioned moan so thank you again xx

I think you sound fantastic actually - here is defo the right place to have a moan and get support. Also good for a bloody good bunfight when you want to vent your spleen :)

How are the kids DidISayThatOutLoud?

If you're on PC, there's a link to acronyms which give you all the abbreviations for everything!! I had to take time out to read that one!!!
Here, share my cadburys while you read it xxxx

CrystalMaize? Have I missed something? REAL point???

Think you may have Babylon - sorry

Haha, just found acronyms link.. whoops :S Real point? Well really just wanted to have a few minutes where I could get everything off my chest...without people thinking I am going to have a nervous breakdown, like I said I feel as though I am no longer allowed to have a crappy day if I wanted to since my friends think I have "enough on my plate"... come to that my family are the same- my mum was in hospital and no one thought to tell me because they didn't think I could handle it. I have given nobody ANY reason to think this.. when hubby first got ill my Step Dad said to my Mum "I'll give it 6 mths before she's back home with us"...
Here I can rant and rave and have flowers and chocolate thrown at me and there are no preconceptions of how I am, or how people expect me to behave... so my real point is basically getting it off my chest without repercussions I guess???

As for my girls, they are clever and happy, we are honest with them about everything without overloading them with details.. my hubby has walking sticks and a wheelchair so my youngest thinks everything is about his legs (awww) but they are confident girls and caring and yes they can also be "little chucky's" but it doesn't seem to be having any kind of ill effects on them thankfully... :D xx

xxxx

DidISay

I know what its like having to juggle so many things and not have a second for yourself, not even a 1/2 day off sick. I know what the endless hospital appointments are like, how draining they are (with my DD2). I know what its like feeling isolated in your situation even with friends and family around.

Its tough, real tough but you have been dealt this hand in life because you are strong enough and will not break ( well if your like me, maybe only for a second or two)

Come and moan all you like, people will always be on hand to listen and offer advice.

well come to MN, a great plave to moan and vent.

& coming your way

This sounds really, really tough and unfair! Why is that some people seem to have SUCH alot to cope with? You sound absolutely lovely and I hope very much that you both get some relief from your health problems soon...it must be incredibly stressful and exhausting. Thinking of you x

Avacado big hugs... I defo have my wobbles every now and then but usually I just use a sob story on the X factor to cover my tears hehe..or do it privately- it's not common and I am strong enough to handle all the health issues in this household- it's the friends and family bit not trusting me to say "enough" that actually hurts more.

Thanks HappyPants... love your name!! :D

I think at the moment my biggest problem is that after reading through active threads I may get a little addicted.. oops! xx

Thanks Cherriesarelovely- it's my hubby who has the health problems.. which actually makes me feel worse about having a moan...

Everyone has their cross to bear but it does seem to never rain and always poor for most!

Here's hoping that we can give eachother a bit of relief, sanity and support when needed, thanks for your thoughts xxx

How old is your DH, my BIL was incredibly ill with ulcerative Collitis and now has a permanent stoma as the reversal failed. He is 30. He hasn't looked back and is back to being the healthy man he used to be.

here have a or 12.

Sorry what is crystal maize getting at?