Also applies to people with learning disabilities (IQ below 70). My relative has Downs Syndrome and a severe LD (IQ 40-45). He was assessed in 2020 when his DLA was replaced by PIP and given a ten year PIP award.
The PIP assessor agreed with my parents, who were furious that a person with a profound developmental and learning disability should be 'reassessed' at all. It was carried out at his home but he didn't sleep the night before as he was so anxious and worried that something 'bad' was going to happen, as he doesn't like strangers in the house.
Disability benefits for people with DS should be awarded for life, and he should have been transferred onto it without putting my parents through the stress of filling out a 60 page form, obtaining doctors letters, and having to supply up to date medical evidence for a condition that has no 'treatments' and will only worsen with age/early onset dementia.
They'll have to go through it all again in 5 years time when his 10 year award comes up for renewal again. Outrageous.
The amount of money wasted on reassessment for the 1.5 million people in the UK with an LD - assessments contracted to PRIVATE companies like ATOS, I ahould add!!! - must be costing taxpayers hundreds of millions... but nobody talks about that!!!!!
At least under the old DLA system, this wasn't an issue.