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Today I was told I have cancer. I'm sat alone at home to digest the news

298 replies

Scaredandworried98 · 25/07/2024 20:44

DH has gone out, it was planned. He asked if I minded him going. DC don't knowl and are doing own things. I messaged a friend to suggest a chat but she isn't picking up. I had told her today was diagnoses day but she's forgotten. We all have busy lives. I'm not going to tell friends over a message. Im purposely not googling it. I feel helpless waiting for the next hospital appt. Waiting to find out more.

Just wanted a hand hold

I won't sleep tonight. Any recommendations for Netflix/prime binge sets ?

OP posts:
Scaredandworried98 · 01/08/2024 10:25

thanks all. Hugs to those who have gone through cancer or are going through it now You all sounds so very strong and I admire you all for that.

I've got my scan results today, The hospital called me this morning to tell me. The scan was 4 days ago. I am now panicking as to why the results are here so quickly. Atm I don't know how I will physically be able to walk into the room. I will take diazepam (I managed to get a prescription, luckily) beforehand.

I feel sick. Physically sick.

@Rainbow1901 yes I am always very negative. I don't cope well if I am ill, and I've only ever had things like flu etc. I have health anxiety, due to the fact my sibling died of cancer aged 20 with no initial symptoms other than mild pins and needles. This was not thyroid cancer though.

OP posts:
Runsyd · 01/08/2024 10:38

Scaredandworried98 · 31/07/2024 18:22

But No one can help. I can talk until I am blue in the face. I will still have cancer. I still won't be cured. I will still be potentially facing a death sentence. I really don't see the point in talking to anyone. The issues will still be there. Today. Tomorrow. Next week. Next month. Christmas. I will still have it. I could Finish talking to someone tonight. We could have been chatting all night. Then I'll be alone and back to crying again. I'm not being stubborn. I just don't see the use in talking. I'll be voicing my worst fears. That sounds worse than just thinking them

EVERYONE is facing a death sentence. Absolutely every single last person on the planet is going to die. Not one person has a guarantee that they won't drop dead tomorrow. Yet we all live with that uncertainty day after day.

OP, I know I sound harsh, but what you're feeling now is not the way you'll be feeling further down the line. You're having a massive existential crisis sparked by this health scare. But it's perfectly possible to live happily even when you know your life might be shorter than average - I know, because I've seen people do it. Not that your life is likely to be shorter. You don't know anything yet, and you're scared, but try not to catastrophise yourself into this kind of state.

Edited: I've just read your update about your sister. I think a lot of unresolved trauma about what happened to her is hitting you now.

Angrymum22 · 01/08/2024 10:44

Good luck with your scan results. Don’t read anything into it, cancer test results are generally fast tracked. Biopsies take longer just because of the process.
Oncology is much more aware of the anxiety result waiting causes.
In fact despite all the media coverage the NHS backlog has started to reduce rapidly. I recently saw my GP re some symptoms ( not related to my cancer) relating to a long term condition. I had full bloods and they have arranged an MRI and contacted my endocrinologist who made a phone consult within a couple of weeks. The MRI is later this month. It’s not an urgent referral but does suggest that waiting times are much shorter.

I think that once you have a “cancer” label though, you usually get fast tracked.

Apolloneuro · 01/08/2024 10:45

@Scaredandworried98 the background with your sibling brings perspective to your reaction. I’m not surprised you feel like you do.

Thinking of you this morning. Let us know.

Gemmykins1234 · 01/08/2024 14:18

I was told last Friday I have breast cancer. I feel different emotions. Mostly I'm pissed off. I'm only 36. You are not alone lovely, and I hope all goes well. X

Icantfindanewname · 01/08/2024 14:56

Scan results can come through incredibly quickly, or frustratingly slowly, and usually it doesn't reflect the results. I used to think brill, they're quick so they must be clear, then on the next breath, shit that was quick, what have they found? Or, if it was slow, then it was well there's nothing more they can do for me so they are letting me live as long as possible without that knowledge, or, well they're not rushing to tell me so they've not found anything 🤦 There was no right time to get them. BUT whatever those results are, there will be a plan. A plan to get you into a better place. A plan where the NHS will throw as much as it can at it. You need to step in and grab everything. This is from someone who has had to be literally dragged into a neurologist's office and had their fingers prized off a walkway wall to go onto a ward. Keep messaging, we are here and you will get your head around this, but not immediately (which is incredibly normal) x

Fraaahnces · 01/08/2024 14:59

@Scaredandworried98 Yes most thyroids removed are benign. That doesn’t change the statistics that most thyroid CANCERS are curable. Even the malignant ones. Cancer sucks, but this is probably the best one to get.

Apolloneuro · 01/08/2024 15:05

Gemmykins1234 · 01/08/2024 14:18

I was told last Friday I have breast cancer. I feel different emotions. Mostly I'm pissed off. I'm only 36. You are not alone lovely, and I hope all goes well. X

I’m so sorry to hear this xxxx

Angrymum22 · 01/08/2024 16:16

Gemmykins1234 · 01/08/2024 14:18

I was told last Friday I have breast cancer. I feel different emotions. Mostly I'm pissed off. I'm only 36. You are not alone lovely, and I hope all goes well. X

If it’s any help, my sister was diagnosed at 33, triple neg, and is now 22 yrs NED ( full remission). I have as diagnosed at 57 and so far so good. The fear never goes but you learn to live with it. 💐

Balloonhearts · 01/08/2024 18:47

Christ almighty this is ridiculous. Get your arse out of denial, and stop telling yourself you're going to die!

You won't accept it? Good! You shouldn't. Get the aforementioned arse along to your treatments and scans and set to poisoning the little bastard that has the cheek to think it can live rent free in your Thyroid!

It is not an automatic death sentence. Put some of that energy you're wasting on denying you have it into making your body a very very inconvenient and uncomfortable place to live.

Come on OP! Now the shock is wearing off you're going to need some anger and resilience to keep you going. Time to accept facts and get pissed off! You can do this.

By Christmas you may no longer have cancer if your treatment works. You've already been in the tiny minority once, what are the chances of it happening again? If it does, you should probably post the lottery numbers!

Ineffable23 · 01/08/2024 22:22

Crikey OP, I'm not surprised you're having an existential crisis given what happened with your sister - and I'm not surprised you have had health anxiety ever since either.

How were the scan results?

I'm really glad you have kept going so far, it must feel really overwhelming but all you can do is just one little bit at a time, taking things day by day or hour by hour where you have to.

I can understand not wanting to talk to anyone but I would definitely look at whether there's anyone professional you could speak to - there won't be many people with such an unusual, traumatic experience in their history that then directly relates to their own diagnosis which is also a very emotive one anyway. I think it explains why you're feeling the way you are but someone with more knowledge than me might be able to take that and translate it in a way that allows you to turn it into some coping mechanisms.

Fernticket · 02/08/2024 10:20

Rainbow1901 · 31/07/2024 19:06

OP As I mentioned in my earlier reply - you need to change your mindset. Have you always been a negative person? Do you always see the worse side of any issue or problem? I'm trying to get a handle on how you were as a person before this came about. You are quite rightly, still in shock about your diagnosis - but you have an advantage that others may not - in that you can have an operation and you can have treatment. You won't be perfect like you were before cancer but none of us were ever perfect anyway.
Putting it bluntly, there is one thing we can all be sure of and that we all have a use by date!! How we live our lives is down to us. I've been where you are - and not been much better than a soggy puddle in the middle of the floor - railing against the unfairness of it all! But even after treatment - was not given the all clear - just told to go out and live life.
People who get cancer are just unlucky - you have not been evil or eaten the wrong bread or drunk the wrong coffee or whatever. The human body is a weird and wonderful piece of biological engineering - just like a car it can go wrong!The statistics are - that one in two people will be affected by cancer - if you watch the TV adverts - you - like myself were one of the unlucky ones. It's the luck of the draw - some you win and some you don't.
You say you don't want to voice your fears but how is that any worse than keeping it to yourself all the time? You need to say it out loud - scream it - if you have to but you can't stay quiet about it. You are right now in denial - that's okay - we all do that! But you will need to accept at some point that yes you have cancer. No cancer is good but there is much that can be done to treat it.
You have to get on board with your treatment and be reliant on yourself to get through the treatment as you are the one going through it all and lean on anyone and everyone around you to support you while you kick this thing into oblivion.
You are right that they can't help the fact that you have cancer but they can help in anyway that you let them.

@Rainbow1901 . Very wise words indeed.

Scaredandworried98 · 02/08/2024 11:41

thank you for all the continued support.

The scan has largely confirmed no spread. The scan will be looked at by the senior team, to confirm a collaborative decision. I will have surgery in approx 2 weeks to remove the remaining thyroid. Apparently this is a bit more involved than removing the first half. I will have a second scan in 3 months. I may have radiation iodine treatment after that. This could be optional, I will take it if it is. I want any possibility of rogue cells completely gone.

Sending hugs to everyone who is fighting their own battle

OP posts:
Allthehorsesintheworld · 02/08/2024 11:59

Well done, you got there, got into the room and you’ve taken in the info given. Don’t underestimate that!
And please don’t be embarrassed about crying or bawling. You’re meant to do both when shit is going on in your life.
Wishing you all the best going forward. 💐

Apolloneuro · 02/08/2024 13:24

Sounds encouraging @Scaredandworried98

VeryHappyBunny · 02/08/2024 13:35

I'm so pleased for you, for both the result of the scan and for facing your fears. You must be so relieved. Take all the treatment and help you can get and don't forget that there are loads of people on here who care about you and how you are doing.

Well done and care.

Delatron · 02/08/2024 14:22

No spread is exactly the news you want to hear. This is really encouraging. Step by step. It does get easier.

Starlightstarbright3 · 02/08/2024 16:23

Scaredandworried98 · 02/08/2024 11:41

thank you for all the continued support.

The scan has largely confirmed no spread. The scan will be looked at by the senior team, to confirm a collaborative decision. I will have surgery in approx 2 weeks to remove the remaining thyroid. Apparently this is a bit more involved than removing the first half. I will have a second scan in 3 months. I may have radiation iodine treatment after that. This could be optional, I will take it if it is. I want any possibility of rogue cells completely gone.

Sending hugs to everyone who is fighting their own battle

Really pleased to read this update …Imagine if you didn’t make it to the scan you would still be in limbo land .

focus on the positive .. hopefully all goes smoothly for the Operation

6pence · 02/08/2024 16:46

Good news op.

It really is just time. You get used to it. The first little while is definitely the worst.

Dogondoolally · 02/08/2024 16:52

Balloonhearts · 01/08/2024 18:47

Christ almighty this is ridiculous. Get your arse out of denial, and stop telling yourself you're going to die!

You won't accept it? Good! You shouldn't. Get the aforementioned arse along to your treatments and scans and set to poisoning the little bastard that has the cheek to think it can live rent free in your Thyroid!

It is not an automatic death sentence. Put some of that energy you're wasting on denying you have it into making your body a very very inconvenient and uncomfortable place to live.

Come on OP! Now the shock is wearing off you're going to need some anger and resilience to keep you going. Time to accept facts and get pissed off! You can do this.

By Christmas you may no longer have cancer if your treatment works. You've already been in the tiny minority once, what are the chances of it happening again? If it does, you should probably post the lottery numbers!

THIS

Ilikeadrink14 · 04/08/2024 14:12

Scaredandworried98 · 31/07/2024 16:52

@Fraaahnces ty. I know you are only trying to help me. But MOST, you say. My consultant told me 80-90% of thyroids he removes are begnin. I was the 10-20% not begnin. What if I'm not in the MOST category too ?

And what if you are? You must try to stop thinking these thoughts. When my cancer was diagnosed, my consultant told me that the best way I could help myself was to stay positive, so I am doing that.
Yes, you may be in the larger group, but you may not be. Many things can happen to us in our lives and you are not exempt. You might go shopping and fall under a bus. You will, no doubt, lose loved ones. You might lose all your money. Your house might be struck by lightning, etc. ANYTHING can happen to all of us and it’s often terrifying, but the only way to handle it is head on.
As a fellow cancer sufferer, I feel qualified to tell you to stop crying, stop going on the Internet, and put your trust in the doctors who will be taking care of you. It’s natural to be horrified and terrified when you get the news, and you have to allow time to let it sink in. But then you have tell yourself, ‘There are two ways I can go, either up or down’. I chose ‘up’ and I suggest you do the same.
If this sounds harsh, I apologise but I have no problem with telling you what my consultant told me, that the positive patients are definitely doing better than the negative ones. You are being, (understandably, at this early stage) negative, but there is time for you to change. By the way, unlike yours, my cancer is terminal, but I am lucky in that it can be kept under control for, hopefully, a long time, with monthly hormone injections, which will extend my life. If I can cope, so can you.

Ilikeadrink14 · 04/08/2024 14:34

Runsyd · 25/07/2024 22:10

He has left his wife to deal with her shock alone. I am judging you for not processing that.

That doesn’t help and is a totally pointless and rather cruel comment. If you can’t be supportive, then it might be best to be quiet!

Icantfindanewname · 06/08/2024 21:38

@Scaredandworried98 How are you doing today? We are still thinking about you. To repeat @Ilikeadrink14 if we can do it, so can you.

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