I have a condition that means there's pressure on the nerves in my spine.
This can make my legs and arms unreliable. Before this I already had slipped discs and sciatica. Other people with slipped discs and sciatica but not in the same way or with my added complications are often saying things like:
You should get the op - they won't touch the discs because long story short there's more likelihood that op could make things MUCH worse. They don't fuck about with nerves, especially the ones that tell your legs to walk!
You should go to my physio she'll soon sort you
Have you tried a chiropractor? Most chiropractors won't even touch me!
And again for...osteopathy, acupuncture, acupressure...
"You don't look disabled" yea well you don't look stupid seems we're both wrong!
Also been challenged verbally attacked for using lifts, disabled loos, priority seating on public transport...
I'm slowly mobile on flat (very flat) surfaces but steps, even a slight slope if there's no bannister, can lead to my legs buckling under me.
On the multiple mental illness issues:
OCD - 'oh I'm a bit OCD' proceeds to tell me how they alphabetise their cookbooks or some such crap - FUCK. OFF!
Depression -
we all get a bit down though eh
Bet you get good happy pills - yes cos I need them to feel remotely normal!
But you smiled once 6 months ago you can't be depressed 😡
Anxiety -
It's just a case of mind over matter
Have you tried breathing exercises/cutting out caffeine/going gluten free... Erm yea I've tried most things to no avail
You just need to calm down and not worry - yea righto if it were that easy I'd already be doing it!
Dd has a disability too. Hard to say what as there are certain posters will jump on AS and say "oh but on that post you said it was X" it's still being investigated/assessed, initially diagnosed as one thing now looking like either it's another or she's got more than one thing going on. You guys will get it, people who haven't been through the rigmarole of just getting a gp to take you seriously enough to get a referral to a specialist, then specialists tend to diagnose things that fall under their remit and don't consider other possibilities etc
So... She has a disability at least one that we know of. It's largely invisible unless a mishap that others could shrug off occurred and she's on crutches or arm in sling. - to the op who said she's also had the "what happened?" To which she answered "basically...genetics". As well as joint and bone issues, growth issues (kinda opposite to restricted growth it's accelerated her growth, she's far taller with longer legs and arms and feet than is within an understandable range based on her dad and i's measurements plus the generational adjustments, another oddity is longer teeth which looks slightly odd), she has digestive, respiratory, reproductive and circulatory system issues, her mucous membranes are very fragile, her skin is delicate, nails soft, she's more vulnerable to certain germs that are EVERYWHERE eg strep, I could go on and on - I'm still learning myself plus as I said it's looking like even the specialists aren't completely sure what's going on.
She looks "normal" albeit is the tallest of her friends (inc the boys) so yea, people don't get it.
She's in pain every day, not least continuing growing pains, has to be careful with various everyday activities (brushing teeth, eating, dressing, applying make up) because it doesn't take much to sprain/dislocate joints, tear membranes etc.
At school she used to get daily really nasty comments basically accusing her of faking it (how you fake a dislocation or torn membrane or joint swelling I'd LOVE to know), inc from teachers.
Also
You don't look disabled
Oh come on just try a bit harder (when walking on sprained joints)
It can't hurt that much
Oh I'm sure it'll soon heal
Have you tried...physio, osteopathy, chiro, etc etc etc
Have you tried cutting out X y z from diet (she's very slim - we - the Drs and I - think this may be related. The LAST thing she needs is cutting out food groups! She barely maintains a healthy weight as it is!)
You can't be disabled you're only a kid - what?! Kids can't be disabled? Oh come on!
I have a friend with cerebral palsy, she's well educated and very ballsy, the amount of people who talk to her like she's 2 is ridiculous! She has far better comebacks than me and I actually can't think of one right now but it's fun to witness! She has 2 masters and a PhD and takes no prisoners!
She did tell me a story of how she turned up to somewhere to give a work related presentation and someone basically tried to tell her she must be in the wrong place purely because they assumed as she was disabled physically and in a wheelchair she couldn't POSSIBLY be qualified enough to work for X company and certainly not in that location (she works in tech/it type role), when the person who'd arranged the presentation spotted her. The person trying to tell her "you don't belong here" was given short shrift and told in no uncertain terms that intellectually she could run rings round him! The irony? The project was regarding tech/IT being designed to make life easier for another disability - sight loss.
She does occasionally give wee kids a ride in her very good wheelchair if they ask nicely though - it's one that can elevate I think it uses hydraulics or something? eg if she needs to reach high shelves in supermarkets and they sometimes ask if they can "ride in your rocket please Mrs"
CMOT - yes unfortunately still a lot of ignorance around non functioning parts and amputation as if it's a cure all - er no! It's a last resort and it's a last resort for a reason! Amputation itself can cause many other issues no matter how good artificial legs etc are they don't actually replace the limb within a functional body with a circulatory and lymphatic system etc to consider. I'm an ex nurse and remember some patients with certain conditions where if they didn't take care of themselves it could lead to amputation (diabetics not monitoring blood sugars properly or eating a poor diet, addicts (including smokers) still indulging despite warnings of the damage they were doing still indulging), seemed to think losing a leg was no big deal 'I'll just get a bionic one'.
Snipsnip - on another thread recently a poster blatantly said they didn't believe that the disabled (this was mainly in reference to the mentally ill but not solely) are discriminated against, certainly not as much as is claimed. Myself and I think another poster put them straight.
Senmum - that's absolutely shocking! He should've been done for assault!
'So I bought a 4 seater convertible' 😂😂 love it!
"Don't look deaf" wtf?!
Scary how ignorant people can be.