Some NHS trusts have recently been running a trial whereby adults who present to the GP with symptoms of autism are not assessed and diagnosed. They are merely directed to an online self-assessment tool which identifies the person’s difficulties and support needs, and signposts them to charities and other non-NHS services.
The idea behind this is that there is no NHS support available for adults with autism anyway, so what’s the point of spending money on diagnosing them? Particularly because NHS waiting lists for autism assessment are growing out of control (mostly due to increased awareness of autism among adult women who weren’t diagnosed as children). In most areas the waiting list for diagnosis is up to five years.
Under this trial the only people who are eligible for a professional assessment are those who are at risk or have a legal need for a diagnosis. The lack of formal diagnosis is not only making it more difficult for disabled people to access support such as benefits to which they are entitled, but it’s also creating a culture of self-diagnosis. Autism is being framed as an identity that you self-identify with, not a disability that you’re formally diagnosed with. Which basically means it’s not going to be taken seriously.