Should those with intersex conditions be treated the same way as transsexual people (and note intersex is under the transgender umbrella).
Not quite sure what you mean. Treated in what way?
I can't speak for intersex people as I am not one, but I understand their conditions and needs are diverse, and I do wonder what benefit there is for, say, intersex individuals who have infertility issues but no gender dysphoria to be lumped together with people who feel they were born into the wrong body.
There's evidence of persistent lobbying by prominent trans rights activists in this particular area against the wishes of many intersex rights organisations going back years. I would love to know how exactly it became acceptable to conflate the two.
See page 5 of this thread (the whole thread is well worth a read!!) www.mumsnet.com/Talk/womens_rights/3463920-Lets-go-back-to-2007?pg=5
14 May 2000 - AISSG UK's 'GIRES Statement'
A Position Statement Concerning GIRES (Bernard Reed) by the Androgen Insensitivity Syndrome Support Group UK (AISSG UK):
Introduction
The Androgen Insensitivity Syndrome Support Group (AISSG) is a peer information/support organisation established in the UK in 1988 (formalised in 1993) and which achieved UK charitable status in early 1999. We are completely autonomous but are affiliated to the Genetic Interest Group (GIG) and Contact a Family.
We have around 120 subscriber members (and many more contacts) in the UK (mostly adults but many families too) affected by intersex conditions such as AIS, XY gonadal dysgenesis (Swyer's syndrome) and 5 alpha reductase deficiency; with some XX female members who have Mayer Rokitansky Kuster Hauser (MRKH syndrome, *Mullerian dysgenesis/aplasia, vaginal atresia etc.
We have representatives in USA, Canada, Australia, Germany, S. Africa and Spain. Our website at www.aissg.org has received much praise, from people with AIS who come across it after years in the wilderness (having not been told about their condition) and from medical specialists in the intersex field.
After extensive email correspondence with Bernard Reed of GIRES during mid March to early April 2000, we decided not to work with GIRES at the present time. Overall, we wish to disassociate ourselves from GIRES and to state that they do not represent us.
We have already established mutually beneficial relationships with several groups of clinicians and are working with them on AIS-related research projects and the provision of multi-disciplinary patient care. We collaborate on joint projects with other related support organisations (e.g. the UK Turner Syndrome Society, the Anorchidism Support Group) via a consortium set up by the Genetic Interest Group. Within this consortium (set up in 1999) we have recently published a leaflet for clinicians to give to parents on receipt of a 'genetic diagnosis' and have obtained a grant from the Baring Foundation to enable one of the clinical psychologists with whom we work to carry out counselling skills training for the three groups' helpline volunteers. We also work very closely on an informal basis with the UK's Adrenal Hyperplasia Network (AHN) and Congenital Adrenal Hyperplasia (CAH) Group.
We do not foresee that an association with GIRES would follow the same spirit as those above, so do not wish to join forces with Reed. We believe that Reed's desire to change the medical management of intersex, although reasonable in itself, is based firmly on the discourse of gender dysphoria (transsexualism/transgender, often referred to as 'trans') and moreover masks an underlying attempt to exploit physical/biological intersex so as to provide an authenticity to that scenario, an authentication that it doesn't need.
We started asking questions about GIRES's policies and aims, about the nature of its membership and its credentials as a mouthpiece for intersex people. There followed a number of emails from Reed giving information about GIRES and asking for our comments on some GIRES guidelines for the medical management of intersex and on a draft synopsis of the issues that GIRES thought the BBC programme should cover.
Throughout his emails, and in his guidelines/synopsis, Reed would employ the phrase "gender identity and intersex conditions" as a means, it seemed to us, of slipping gender dysphoria into the picture without explicitly saying so. While many of the points in GIRES's management guidelines made sense at first sight in terms of intersex, we were wary of this "Trojan horse" approach to including trans within these recommendations because whatever aetiological considerations might link these, in terms of medical treatment there is a world of difference between purely gender issues and the issues faced by intersex children. We did not comment on the content of the guidelines/synopsis.
We noted several other things during the exchange:
a) Reed wrote that "We don't ask our members what conditions they have" and "I am confident that the majority of our members have no condition at all and nor does any member of their families. I estimate that only 7% of the charity's income is derived from those with a condition or the parents of such persons." It seemed strange for someone representing an organisation so underweight on the intersex side of things to be throwing so much weight around in that sphere.
b) names of well-known researchers and clinical experts seemed to appear 'overnight' against the various topics on further drafts of his 'BBC synopsis'. At least one of them (a consultant gynaecologist in the team at the UCL/Middlesex Hospital, London, who are our main collaborators on research/clinical aspects of AIS) had no idea she was itemised in this way and was quite annoyed; so we surmised that others possibly hadn't been consulted either.
(continues)