Hello, all you lovely lot,
I have been popping in and catching up a bit with what’s going on, especially when I’ve needed some good news, but I think I’m going to be out of this thread for a very long time.
If anyone can be bothered to join the dots, saying this could be outing and I’d rather not out myself, but I’m having a really tough time at the moment.
Multiple myeloma is better than secondary bone cancer with an unknown primary, but it’s still pretty shit and I found out a week or so ago that I have an aggressive form. I start the mainstream treatment tomorrow but I’m already drugged up to my eyeballs and I’ve gone from looking and feeling fit and well too sleeping in a recliner chair downstairs and struggling to transfer. Walking a few steps to get to the car is a major achievement and I’m catheterised because it’s too difficult to get to the bathroom.
I’m facing eight months of treatments. I do stand a very good chance of going into remission after that but how long it will last and what will happen if I relapse is uncertain. The average survival rate from diagnosis is five years. I’m pushing to be one of those that drives it up if I possibly can.
My world has shrunk very quickly and I’m clinging to as much normality as I can amid the illness, fatigue and treatments, but I think it would be fair to say it’s pretty minimal this stage.
Good luck with your respective journeys. This thread is a Dailey inspiration and possibly the best on mumsnet