support thread for the going to be starting school or at school thread lol

[bubblagirl]

thought maybe as there is a pre school thread maybe we could have a going to be starting school or at school thread all welcome really

but we are waiting for our re written proposed statement to turn up tomorrow hoping all is going to be as we need it this time

im really nervous and anxious about him starting school bubblaboy my 4 yr old with HFA for all who may not know me

he had induction today but his sound sensitivity was played up with singing time so may have to ask if he can sit outside of the group with support when he starts and introduced to it gradually as at the moment he dont like big school dont want to go and doesn't like the singing so would hate for that to be what ruins his joy of going to school every day

ok, you've inspired me. i'm definitely going to do it.
is it like a little reader/children's book, or is it just on A4? I spose it doesn't matter, I'm just trying to visualise it.

WE also have personalpassports, senco in infants suggested for ds1 on transition but never did it so I did instead.

Did a similar thing for ds3 when he transfered to his SNU but in the form of a scrapbook as he needs more in the way of prompts- they really found it useful.I have three in school; ds1, 9 HFA / AS, 0 hrs 1-1 (needs lnchtime help but doesn't get) in MS; ds2 8 recently picked up dyspraxic being bumped up to SA+ for next term , ds3 in an LRC (same as SNU but different mame LOL) he's almost 6 and got 16 hours last term in MS, on trips we simply wrote 'only with 1-1support' across the consent form in bright red pen, it was easier for them to 1-1 than place him in another class so they did it LOL.

IEP fords1 and ds2 on Wednesday. DS3's first report today- think it will be a good one, teacher describedhim as delightful

Also have ds4 aged 14 months NT atm, will go to same school only if SENCO in infants mmoves one (as it is reputed she will). Applying to a SN education support charity for voluntary work from September (SNAP), do a fair bit of informal stuff- have someone coming over Wednesday to help with application for statement.

Still lots I need for ds1- he'd be better off in an SNU but there isn't for verbal spectrum kids here (ds3's is general but he's less aggressive). But am happy with ds3'saplcement at the moment, and ds1 / ds2 are palced in a great Junior school where we feel they are really on side.

(sorry, ds1 10 hours..... it's technically small group support rather than 1-1)

my personal passport i typed on comp a4 had his photo on front with name and personal passport written on it

then i added pages

about me
my name is bubblaboy im 3 yrs old i have high functioning autism
live with mum and dad
have animals cat, guinea pigs {then added names]
ALSO SAYS HAVE X AMOUNT OF COUSINS AND GRANDPARENTS GREAT GRANDPARENTS

oops sorry not shouting

dislikes
loud noises
having hair cut
people talking to loud
i copy other peoples actions dislike being told off
new surroundings
about how i give choices and prepare him
dislike being left out as i dont know how to play

saying how to gently approach if hands over ears
how to help him interact with others

so i need people to think of my feelings and be patient with me i cant communicate the same as other children as i have autism

likes

numbers, letters, shapes,
computer games
learning things
if i have bad day i like to play games all day mummy says its because my mind is working too fast for me to understand whats going on or what to expect,
i often stick my arms out and push im not being mean i need my space as it feels safer
i like doing silly things and playing with my mum and dad
i like puzzles

toileting
prompt dependent
don't like hand dryers {then how he would react and how to calm him}
needs to be asked as will not communicate his needs

my autism

my autism makes me repeat myself if i like something i say it over and over again
i run off and cry if all becomes to much im ok if left alone and calm quicker too many words confuse me

if im talked to in a tonelss voice i dont understand and think im being told off so i need a calm voice that i understand

i dont sleep well and this affects me i get frustrated and cannot handle being spoken to and noises seem much louder

i need patience as its not me but my autism and it makes me sad when i cant do things i normally can

i need alot of verbal prompts and may not respond when being spoken to im not being rude im just not always aware of things and people around me

i always remember whats said about something and will always repeat when near that something

my autism makes it hard for me some days im ok and others i find the world hard and people think im rude and im not it makes me sad

my autism gives me struggles and people need to understand them to be able to get the best from me patience and kindness is needed

mummy thinks im really calm and good and always knows how to make me feel better with cuddles and kisses and leaves me alone to deal with my thoughts when i need it , i always go to mummy when im ready

i may have struggles but im happy and a jokey boy who loves to be around others i love to learn and love to laugh so most of all my autism makes me

i learn best
when im away from distraction
sensory issues are dealt with {list sensory issues} and how to deal with them

i need to be in front of teacher to understand whats being said

when i have support

when im not too tired if i am i need more help

at home and school i need help with
social interaction,danger awareness, sensory issues,

says how i prepare him with now and next and constantly telling him

toileting
placement in class
loud noises needs help to notice when not coping

just an idea of how to set it out its obviously written in more detail would take me too long lol just how they cope what they dont cope with who and how they can be helped anything your child finds difficult you can use any ideas written above if needed

Yep, our passport and scrapbook are similar (with extra dietray advice and ideas section), but the book has pictures as ds3 can't describe things or people very well.

i also had all headings on separate piece of a4 then laminated it all if ds wrote his name on paper i added this also and a picture he drew

hole punched it all and put some string through or plastic binder so it all looks like a book

yes ds cannot but i wrote it on his behalf yes any other need can be added but ds doesnt have dietry so hadn't mentioned that but any other need your child has medication, diet,mobility,anything you feel relevant for them to know

i wrote it all on ds behalf on how i manage him and what works best what i see upsets him etc

peachy you have your hands full my ds is HFA and im trying to get him lunch time help when he starts school do the school help him get lunch? im wandering if the school would at least help him get his lunch and seat him

He can fetch lunch / be seated and Head mionuitors his eating he ahs eating disorders, but is doing OK atm and gained a few pounds last motnh- to put it in context his weight was just above 3st at 9 not long ago).

Head shouldnt ahve to though, but its his aggression in the playground thats bad: at playtime there ias timeout hel available, but nothing at lunch.

oh bless him yes i think i remember your post now about ds i hope he is recovering well and monitoring he should have 1-1 is there a way you can fight for this help? especially on aggression basis and eating disorder i would have thought you'd have a good case

There's no precedent of lunchtime help in our OCunty; we could challenge that but there's a chance he would be palced in an EBD unit which would be A Bad Thing.

i know you have probably tried everything felt silly writing that but i did see somewhere about if child's needs have changed and statement needs changing etc there was an address you can write to

oh right x post with you there

well i hope the school can offer some more support if possible then

Don't feel silly LOL!

I ahve asked a few times but never happened: after my thread last night I ahve relaised that its coz I didnt push hard enough, we're halfway to a review anyway so I will amke sure it is tkaen on board as an issue next time.

well good luck with that we have to remind ourselves to really fight for what we believe dont we its hard at times but i guess its what we need to do so dont let them fob you off

just peeked at your pics your dc are adorable x

bubbla - sorry to take so long to reply.

that is FANTASTICALLY helpful. I'm totally on a roll and am going to put one together today.

may come back with more questions.

peachy - good luck with review.

Bubbla, that's amazing. I am also going to do it if DS gets through the admission process for the new school. We are hopeful, they have accepted application for two other children with autism, so there is always hope.

oh fingers crossed for you x

hi i just joined today..
so nice to read about other mums like myself.. son sttartin school september, statemented for 29.5 hours a week.
its so hard all my friends kids are so ahead..
never seem to meet other mums that know what im going through..
so hello all..

Hi Cazcountry. Its hard isn't it. My son has started doing school visits and I hate watching the others doing their letters and answering questions excitedly, while he sits in the corner and fiddles with lego... Awful.

hi caz you most certainly are not alone can i ask what your ds diagnosis is im struggling to get hours for ds statement im on battle with them at the moment my ds has ASD and atypical speech sounds

welcome to mumsnet

hi ben is 5 in october, he has epilepsy, and global development, and for tha he got 29.5 hours a week statement.. i so wish i could meet up with all you mums, it is so hard.. everyday is a new challenge..

hi Cazcountry where abouts are you ,29.5 hrs sounds good