support thread for the going to be starting school or at school thread lol

[bubblagirl]

thought maybe as there is a pre school thread maybe we could have a going to be starting school or at school thread all welcome really

but we are waiting for our re written proposed statement to turn up tomorrow hoping all is going to be as we need it this time

im really nervous and anxious about him starting school bubblaboy my 4 yr old with HFA for all who may not know me

he had induction today but his sound sensitivity was played up with singing time so may have to ask if he can sit outside of the group with support when he starts and introduced to it gradually as at the moment he dont like big school dont want to go and doesn't like the singing so would hate for that to be what ruins his joy of going to school every day

i cant be assed to deal with this now its pissing me off 3 extra hours no 1-1 still no mention of 1-1 for trips out pe or lunch so really im still none the wiser

again no mention of ta being autism trained either its shite again

bugger , bugger . slides irish coffee over

when had meeting the Lea did mention depending which categprary ds fitted into was the max amount of hrs they could offer was done on a tick sheet thingy
nothing like ignoring the childs needs.

and esse3x tend not so specify 1-1 like to leave it to school to decide.Have they at least agreed to smaller groups in numbers ds was reworded that nomore than 2 others and they must be working to same level and similar difculties .but they then rechanged that

You going to go for a meeting this time or another rewrite

they haven't changed any wording at all in part 3 just added 2 sections that is all they have done

it says small groups or individual but doesnt say how small the group is or individual SALT time which he really needs

nothing is set out clear still its all the same they just added close supervision at lunch, trips , pe not 1-1 close

and again just added a section SALT will provide help to ta nothing else has changed but again they have said he can dress prompted but he cant he can only do pants

i'll check in later im going to town to clear my head and will get back and write another letter see if they can do something i only get 7 days this time

hello everyone,
can i join your thread?
my dd has epilespy and is due to start school in september, i am very worried as the stress could make her seizures worse i have spoken to the school and all they said is they would have in 2 more afternoons than the rest of the class to get to know her new teacher,
i am abit worried now because your dc's seems to have been to their new schools and met thier teacher dd hasnt as of yet,
maybe i should talk to the school again monday?
hope you dont mind me sneaking in the thread i am really nervous about it

My dd2 has been at sch 2 yrs now - I remember all the pains and nerves you are all going though - you have my sympathies. Our set-up has worked very well after some close work with the staff early on. I have found that making an effort to communicate well with the staff has made a difference.

It is important to make a fuss sometimes: eg after-school activities, where they sent letters home inviting children to join in a "kids pirate party at kids club" which is run on site but in a mobile with no ramp. So it was open to all kids EXCEPT my dd2 who is wh/ch bound. I WAS OUTRAGED!!!! I got on to the head, the chair of governors, everyone. It is not appropriate exclude only the child in the wheelchair. They knew I was right and after lots of squirming I got an apology and since then they have been very careful to ensure activities are open to all, if my dd2 wants to come the club is moved to the main building.

its ok ds not been in ether or any kids goingto ms dont even know who teachers are till next week ,think their vists start in July

yeah think were all jittery about it ,can you get pictures of your dd teacher school etc so can talk about it

DS is 4 has ASD and is due to start school in September. WE are currently changing the draft statement. WE want Ds to go to a special school because he has no language and severely limited understanding of language. Doubt we will sort the statement before September so I'm not really sure what we will do.

staryeyed were asking same thing just had meeting and the non verbal and GDD is why were asking for sn panel will sit sometime next 3 weeks

.Hmm dependin when it was sent in theres a final date less of course it goes to tribunal .

Can I join please? Worried sick about ds1 who will be 4 in August and starting in September. He has language difficulties - possibly HFA/auditory processing/God knows what. He has no dx, no statement and will be going to the small mainstream school he already attends for nursery twice a week.

As his nursery is integrated with his reception class, and he is doing well without any support, I don't know why I'm so worried. I think it's because I don't trust that they recognise how delayed his receptive language is. I think superficially he's functioning well but probably isn't taking an awful lot in. I really wish I could give him an extra year in nursery.

of course you can join sorry your so worried too its not nice but he sounds like his doing well in the environment which is great

hope you feeling bit better Bubblagirl girl round 3.Hope yopu gotself nice bottle of wine tonight

sorry hear your worried reducedfatkettle fingers crossed that school keep eye n him and flag up if he needs morehelp

ive cried and ranted and am suggesting they give him 25 hrs so it leaves just 1 hour a day unstructured i think he'll struggle but would be happy with this i could ask school if they could have someone take him to lunch get food and set him

i think im going to have to give in on some parts but will fight for what i feel is more important and the hours are 1 hr i think we can cope with 2 and half a day he wont

im just so wound up hoping my suggestion of 25 hrs will do they only need to offer 2 more as school give 5 there offering 18 they need to give 20 and id be happy

just few tweaks also to do with SALT and how some bits are worded but to be honest i dont think they will as haven't touched any of what i asked some of it is ok just some is so vague but i do see his needs in there still so may have to just accept that

no wine but have got lagers may have a few of them instead

i feel sad but i feel if we can get 25 hrs and compromise then he can cope with an hr with no help he'll struggle but an hr is better than 2 or more

dont want to just admit defeat but feel we may need to compromise as technically compared to some children he is more functioning and this may affect it but if i say i'll accept 25 they may do it to shut me up lol

i can then speak to school and all the bits im concerned about maybe they can deal with this from inside its only song time he will melt down this needs to be dealt with as this is whats making him not want to be at school gradually introduce him at song time would help there is a story corner i want to ask if he can sit in there out the way when singing as he is sensitive to the sound and cannot handle it but with support gradually introduce him to it

again for other things to be aware then 25 hrs would be ok as it would only be lunch unstructured he'd probably just run the whole time anyway and he may need that to unwind

its so hard horrible time cant wait for it to be over

phoenix when are you off? make sure you have great time i liked your dipping in the sea idea pack light more room for wine

bubblagirl - i really feel for you. what a battle. you must be exhuasted just thinking about it.

hello to all the worried mums. kettlechip - good that DS is already on site - so its familiar. But 4 is SO SO young to be starting school and no matter what they say about it being play-based - its still school.

I think meltedmarsbar is right and that good communication wtih the teachers is key.

our teacher is very good and responsive, but she hasn't seen DS in meltdown yet - and that may set her back a bit.

he hates even coping with the change of the school holidays, he's going to really struggle with such a big change.

I just want to say hello.

my ds is 5 and starts P1 (Scotland) in August.

He is at nursery at the school just now, and they have been brilliantly supportive, and are working really hard to get him used to the idea of being in P1. His 1-1 or one of the nursery teachers takes him into P1 for 10 mins during nursery time. He will still see the same eys teacher he sees weekly, the school knows him and I am really quite hopeful atm - though I don't yet know what hours he will get for support, I am apprehensive about play time and lunch.

We don't know who his teacher will be yet... but I have met them both... hoping he will get the same one to one, who is great.

DS is anxious about being 5 (he prefers being 4 lol) and I have told the teachers it might be that he doesn't want to be told he is going to be a "big boy".

Off to read the rest of the thread.

hello brokenspacebar your ds sounds adorable and sounds like he has a lot of support on his move to big school

im too apprehensive about break time and lunch due to bubblaboy atypical speech and inability to mix without support

well round 3 i have written a nice long letter again with evidence of his communication problems through out reports and also SALT recommendation of SALT either in school or at clinic and pediatrician saying he still needs SALT

so lets hope this time they will listen and amend part 2 and then part 3 accordingly wish us luck i have my fighting head on now didnt sleep a wink last night through worry and feel relieved to have written letter and got it all enveloped up ready to go tomorrow as i only got 7 days this time from date of letter and it was dated the day before it was sent so i was 2 days down when it arrived

will let you know outcome of this one

Having just returned from an emergency holiday (either cope with happy about routine distruption or violent due to disruption I took happy and went) You have all made me feel very positive about the school we have for ds.

We can't get ds dx as boarderline and too young (or some such nonsense) but was honest with schools when looked around and found the catchment school was very positive (one school answer the special policy for kids with dx behaviour policy with 30 exlcusion in 20 mins) and even gave strategies for how they would deal with the individual issues and weren't worried about him having a statement.

We eventually had a CAF meeting were the medical profession washed their hands completely and passed it all over to the school. They had him in for a 1hr individual visit one afternoon last month which went so well that his teacher to be (head of special needs) said he was over ready for school and she was looking forward to him starting as you could have a good conversation. (wait til she discovers he doesn't shut up and can be very topic specific

Personally I am a little concerned about the group visit -especially as my mum is going to have to take him due to ex's work commitments and me having an interview as he does like large groups (though have been working on it). singing group thingy

Am very scared about what will happen a month or so into school when the novalty wears off and the real problems kick in.

Is anyone else worried about this too or am I just very lucky?

oh yes to start with all may well be exciting lol but once the novelty of being more structured and unable to do own thing kicks in very worried how he'll cope

but im also hoping maybe the structure is exactly what he needs to cope as pre school is so mad and unstructured most of time maybe the structure will help him focus and understand more
i guess we'll all have to just wait and see with anticipation

i'm glad your happy with your choice of school i feel fairly positive with the school but just not with help offered in statement as school cannot offer this help without it

Hun -we don't even qualify for a statement - so have to have faith in school [pleading emoticon] thankfully they have stated they will get one if needed. But wish that someone in medical profession would get off backside and do something. have to book what will be very tense meeting with dc's doc tomorrow and dreading it. Sent letter after CAF stating I felt med prof washed hands of situ and that 4 months was too long to wait for help! its going to be hell...

did i get you all wrong sorry my head is spinning ive been sitting writing and re writing my letter to statement people to bloody re write it again

sorry its tough for you i guess your chasing up as much as you can at the moment with them
when they were dragging heels with ds i went back to gp cried and shared my fears they chased it all up for me and got the ball rolling maybe you could do this

good luck im glad school appear willing and helpful see if they can put anything in writing at all

Actually all specialists, dr and peads felt situation was fine as was. Dr called CAF because he felt I shouldn't be therapist, councilor, behaviourist and all the other things that we sn mums do and I should have time just to be mum. So instead of someone sitting down and saying ok we can help with this (which the school did) they just said they felt the situ was fine. And when questioned about the severe sleep issues I was told it will get better when he goes to school. 4 f**king months away. I have faith in the school as there is no-one else to have faith in anymore. (except the wise mnetters!)

I just wish someone could make the dx and statement process easier as it is supposed to help the parents and child and all it seems to do at the mo is cause so much more distress!

Hope you finally get your statement sorted!

I am going to go hide in corner and pretend I am still on holiday