DLA Wait Times 80

[Kirstygingee]

MR- Mandatory Reconsideration
NC- New Claim
COC- Change of Circumstances
SD- Scan Date
LRC- Low Rate Care
MRC- Middle Rate Care
HRC- High Rate Care
LRM- Lower Rate Mobility
HRM- Higher Rate Mobility

Nope nothing on my jornal apart from them saying it can take 2 weeks tgem them apologising sayinf it’s been escalated

It took almost 2 weeks for them 2 verify my sons, then a week 2 get dm letter, still waiting for the statements to change and back pay letter :-/

Omg really last year when my oldest daughter got awarded it took them 10 days altogether including the backdating

Im hoping but think unlikely will be before new yr for back pay for us... dont know about escalation esp with xmas and new yr

he really does heavy on the pop lol I just no the kids at nursery hate to see him coming at lunch time haha not really he has a 1-1 the kids are safe 😮‍💨yes the pains oh god not easy at all…aw least they stuck with u make the evidence a whole lot easier that’s the thing with me don’t even have gp back up because we’ve never seen them specifically about the tism the health visitor st 2 year review put in referrals and we just been going from there lol we’ll probs have a verdict in another 24 weeks 😂x

Hi my MR for my sons DLA was 10/6 called for the first time today and said its with a case manager. Does anyone know how how long it roughly takes? And does it go to someone else after or they make a decision? Any June MR's came back yet?

Lol bless him he sounds amazing bless him! Thats awful, i really hope you are able to get the help and support you need asap as it would really help you!
We have been extremely lucky to get the support a lot quicker with the twins. We have an inclusion support officer helping us get the help and support for when they start nursery in january too. They are going to have a limited timetable of one morning a week as it will be too much for them!
I hope its not too long for you and the wait times will come down for MR and COC. Im 19 weeks into COC and 23 weeks into MR for my other daughter too. The waiting is so stressful and i feel so sorry for you that you waited all that time for nothing to change its awful xx

More than likely be into the new year

You know what he is as challenging as he is sometimes I have to be greatful as it could be so much worse!! And honestly that’s all we need just abit more support never been one to try take more than I need and it is needed, aww that would be good for them and you give u a little break and hopefully there days will get extended hope they have lovly teachers I cannot fault my sons there all so lovly and proper take care of him and his sister I have no support worker involved at the moment a little confused on how u get one and I’ve asked lol that’s what I’m thinking now because I expected the 30+ weeks for the coc like most people so to only do the 24 shows it must be coming down praying for a quick outcome just really sucks cause I could have been getting the back pay before Christmas then wouldn’t need to hold back on anything for him he needs loads of sensory toys and right now his mid rate is only covering half the travel costs for the month 😭😭proper stressful but the fight is not over yet lol x

Anyone else still waiting for MR sent 13/05. It’s so stressful all this waiting

Just waiting on them to retrieve a reference number for my son - NI number
This has been processing since Friday does anyone know how long this could take ?
thank you

Just called again which was pointless. Lovely lady’s but just gave the spiel of its in the queue you don’t need to call us if we need anything etc. said she didn’t even know what date they were working on 🤦🏼‍♀️ here’s hoping for a Xmas miracle as we go to Disneyland on Tuesday. Would love for her to be able to get anything she wanted ❤️

Yeah i know what you mean, i didnt even know you could get dla for your autistic children and only applied 2 years ago for my oldest. The cost of everything is so much and if your child is entitled to the help you should definitely take the help as it only benefits them in the long run. I got mine through my health visitor so maybe see if you can make an appointment to see her and ask her to be refered for one. They do help in ensuring everything is right for your child and the school have the right tools to be able to help your child thrive.
It seems like they must be coming down a bit for everyone, hopefully they keep up with it and everyone else who is waiting is able to get seen too quicker. I hope your MR doesnt take too long for you and your able to get the support for him. I know what you mean about the sensory toys as they do really help autistic children. I was hoping to be able to buy some new cots for my twins as they seem to keep hurting themselves on the ones they have got. I feel like they need some specialist cots to prevent them being able to harm themselves. But the cheapest ones ive seen are lile 700 each and i just dont have that sort of money xx

Just rang DLA to let them know i have an extra piece of evidence and he told me to get it in ASAP as mine is very close to being looked at. He said i should get a decision this week but if i dont hear anything this week it will definitely be the week after christmas.
Am i over thinking everything or does this all sound promising?

do we call DLA to request a COC? Is there a form to fill out or is it done over the phone? I think DD should be entitled to HRC rather than MRC as she is up constantly in the night and has to be supervised as she has no sense of danger or communication and has PICA meaning you have to watch her like a hawk to make sure nothing goes in her mouth. She’s 3 in April and last night as an example she went to sleep at midnight and woke up at 4am. We’ve had to change nursery times as she was never awake. We’ve tried waking her still in the morning and it was awful, she would just scream and headbang due to tiredness/frustration. Me and DH are exhausted. I don’t know how he’s functioning at work in all honesty.

Yes you have to ring up and request a COC form, but if awarded HRC they will backdate to the date you requested the forms. Your daughter sounds just like my twins who are 3, they are up near enough all night every night and only sleep four hours a day. They do the headbanging and nut things and people when they are distressed. I am currently waiting on there new claims and im hoping for HRC for them both. I will be doing a MR if they get MRC as i know they should be entitled to high. I will let you know my outcome, it is always nice to have a little hope that you can get the same outcome.

My daughter has pica and I understand the feeling she stims a lot through the day with her legs waiting on autism diagnosis through the hospital my daughter got awarded hrc start of December she’s had just turned 3 at the end of November

Uc finally done the Verify today we’re getting somewhere

Yayyyy finally!!
Im still waiting for them to backdate! They have verified and got dm letter 2 say special circumstances apply and accepted, thats it!
@Curlycookie5 have you heard anything

Thank you finally getting somewhere hope your hear from the backdate soon

Nope not a thing 🙄 it’s taking forever, I did the change of circumstances on 12/11, it was verified on 1/12 then complained and was told it would be sent as urgent on 11/12, I’ve not even received the letters saying they’ve agreed to it yet so I think you will receive back pay before me, have you looked to see if they have updated your previous awards? I wonder if they have sent the letter and back pay to you on the same day?

Nope no previous statements changed :-/
Left messages on journal (replied to the dm acceptance letter) monday and today...
I will keep you updated,
I did change 26th Nov, verified 8th, and dm letter 15th
X

It’s ridiculous how long they take

This happened to me with my daughter MR they attached it to my claim as I put my NI at the top and hers at the bottom. It’s with her claim now but dunno if this will delay further x

I hate the lack of response or lack of set time frames from them!
I did call them earlier, went through security q etc told her why I was calling and the line went dead! Ugh