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Here are some suggested organisations that offer expert advice on special needs.

DLA Wait Times 80

1000 replies

Kirstygingee · 15/11/2025 17:22

MR- Mandatory Reconsideration
NC- New Claim
COC- Change of Circumstances
SD- Scan Date
LRC- Low Rate Care
MRC- Middle Rate Care
HRC- High Rate Care
LRM- Lower Rate Mobility
HRM- Higher Rate Mobility

OP posts:
SassyPearlMember · 24/11/2025 19:23

Sophhiiee89 · 24/11/2025 19:14

Wow but even these little things are so expensive ain't they and they really shouldn't be and there should be more variety for children ❤️ my daughters 14 and in 16/17 more 17/18 with room I go on a website for uniform as i struggle to find the right sizes and it is perfect expensive but shirts last never go grey or funny colour never iron them they just have no creases lol takes pressure off me not having to iron lol as its a chore I have to do when its silent xxxxx

The asda ones are great for that yes after a few months they start getting dull but they don't crease easily. He refuses to wear anything ironed as he says they feel stiff and wrong.
His current size are 5.50 for 2 so great on price. Him and buttons is just asking for a meltdown so he has velcro. Once he has outgrown the biggest size they do I will probably have to special order them, or fix some myself 😅.

Sophhiiee89 · 24/11/2025 19:32

SassyPearlMember · 24/11/2025 19:23

The asda ones are great for that yes after a few months they start getting dull but they don't crease easily. He refuses to wear anything ironed as he says they feel stiff and wrong.
His current size are 5.50 for 2 so great on price. Him and buttons is just asking for a meltdown so he has velcro. Once he has outgrown the biggest size they do I will probably have to special order them, or fix some myself 😅.

Aww bless him its sad ain't it but its beautiful because they are amazing and being neurological makes them there own person. my little boy hes 4 has to strip off loves being nude hates clothes so with school uniform every morning I have to literally have to spend 3 hours doing bit by bit he gets up at 3am by 7 hes dressed and out the door for 7.45 he would love velcro would be so much easier for him aswell but im not sure its wise as he would be nude within 5 seconds 🤣🤣 he hates buttons and the elastic at the side trousers but I cant find ones that fit there either to big to small not enough room .I feel like sometimes its a massive battle then he gets quite violent xxxx

SassyPearlMember · 24/11/2025 19:51

Sophhiiee89 · 24/11/2025 19:32

Aww bless him its sad ain't it but its beautiful because they are amazing and being neurological makes them there own person. my little boy hes 4 has to strip off loves being nude hates clothes so with school uniform every morning I have to literally have to spend 3 hours doing bit by bit he gets up at 3am by 7 hes dressed and out the door for 7.45 he would love velcro would be so much easier for him aswell but im not sure its wise as he would be nude within 5 seconds 🤣🤣 he hates buttons and the elastic at the side trousers but I cant find ones that fit there either to big to small not enough room .I feel like sometimes its a massive battle then he gets quite violent xxxx

So they do the velcro polo's as well as shirts which he might forget its velcro because the physical buttons are still there to see and touch just as decoration. My son would forget on the polo's until the ta would remind him (every pe lesson).
For trousers they do half elasticated waist full pull ons or with a zip and slider fastening instead of a button. My son hates the adjustable waist ones as it was just more buttons he could feel against his skin. He switched to full pull ons for a few years then moved to the zip and slider.
This time last year I was still physically dressing him but now he is able to do it all himself, granted I put all his clothes out ready and it takes close to 45 minutes but he knows there's no buttons at all for him to try and fasten so he is a lot calmer.
He also has shoes with elastic laces and velcro because one of his fidgets is laces... the knotts he created left many adults baffled.
For sensory safe (tag info printed directly onto clothing so no actual tags to irritate) easy on uniform asda is my go to I haven't found any other that comes close.

Emzi538 · 24/11/2025 20:16

brc13 · 24/11/2025 17:13

I’ve just called, I’m actually quite livid, not with a DM yet. Mine was supposed to be an MR to send late evidence in March after a decision was made for a NC but they said the evidence I sent was more of a COC so they sent it to that team on the 06/05, I have uploaded so much evidence and changes since March (in Scotland so you upload evidence online) and I’ve called every time I’ve uploaded evidence to make sure everything was done right and going in the right direction because it was an mr and they haven’t contacted me to do any other form or anything like that and they have always said yeah everything is fine. So the women on the phone has said that I should have been sent a COC form to fill out as the COC team might not take the MR letter or evidence I’ve sent into account, she’s spoke to a few people in her department and they said they would advise me filling one out but they don’t know if it will make the wait longer now and start the process again, she’s spoke to a case manger and he said that I’ve done everything right, if they haven’t called or sent a form then that’s not my fault but they will call me back tomorrow to see what I’ve to do🙈 the stress on top off stress is a joke😬X

What the heck!!!!
So you have been waiting all this time and now no one knows what is going on??? Thats awful, im so sorry this is happening to you :-(

bp19 · 24/11/2025 20:23

Hiya, sorry new here. I sent my sons COC form 30th April, is anyone around the same time and still waiting?? Thanks x

brc13 · 24/11/2025 20:41

Emzi538 · 24/11/2025 20:16

What the heck!!!!
So you have been waiting all this time and now no one knows what is going on??? Thats awful, im so sorry this is happening to you :-(

i know, I’m so stressed out🙈 my little one hasn’t been to nursery(he only goes for 2hours) since Wednesday as he’s withholding doing the toilet and he’s still not done it so he’ll be off for a few more days so really don’t have the time to be dealing with this at all as he just clings to me all day as he won’t walk as he’s uncomfortable🥹 I’ve managed to get him settled down with some melatonin and hope he falls asleep for a few hours while I try to make a start on the form incase they need it asap but my head is like mash and I can’t concentrate at all😬 it’s the not knowing that’s bugging me, as I called at 4:30 today and there wasn’t much the call handler could do until tomorrow but I’m really not sure what’s going to happen, waited since March and the possibility of 1.having to do this wait again and 2. None of it even being backdated if I have to do a new form. Some people doing Coc recently have been getting decisions within weeks which is the only good thing but I would have more than likely been getting a decision this week or next . all this waiting was genuinely for nothing if it goes to the worst case of starting again and it makes me feel physically sick😥 so 🤞🏽that’s everything is fine and the are able to make a decision with what I’ve already sent X

Emzi538 · 24/11/2025 21:42

brc13 · 24/11/2025 20:41

i know, I’m so stressed out🙈 my little one hasn’t been to nursery(he only goes for 2hours) since Wednesday as he’s withholding doing the toilet and he’s still not done it so he’ll be off for a few more days so really don’t have the time to be dealing with this at all as he just clings to me all day as he won’t walk as he’s uncomfortable🥹 I’ve managed to get him settled down with some melatonin and hope he falls asleep for a few hours while I try to make a start on the form incase they need it asap but my head is like mash and I can’t concentrate at all😬 it’s the not knowing that’s bugging me, as I called at 4:30 today and there wasn’t much the call handler could do until tomorrow but I’m really not sure what’s going to happen, waited since March and the possibility of 1.having to do this wait again and 2. None of it even being backdated if I have to do a new form. Some people doing Coc recently have been getting decisions within weeks which is the only good thing but I would have more than likely been getting a decision this week or next . all this waiting was genuinely for nothing if it goes to the worst case of starting again and it makes me feel physically sick😥 so 🤞🏽that’s everything is fine and the are able to make a decision with what I’ve already sent X

I really really hope that they can see they have given you wrong info time and time again :-(
Fingers crossed they sort for you ASAP! X

Sophhiiee89 · 25/11/2025 05:48

Does anyone know how long payments take at all . And also good luck to everyone still waiting and I hope everyone gets an award hopefully before Xmas ❤️❤️❤️ you all deserve it and so do the kiddies your all super mums never forget just why your fighting it gets hard but always know each and everyone one of you have got this and will get this ❤️xxxx

Emzi538 · 25/11/2025 07:17

bp19 · 24/11/2025 20:23

Hiya, sorry new here. I sent my sons COC form 30th April, is anyone around the same time and still waiting?? Thanks x

Hi
Im just after you, 16/05 for our coc ... I called last monday and was told still in the holding queue to go to dm, they wont give any time frames now

Princessmom222 · 25/11/2025 07:46

Sophhiiee89 · 25/11/2025 05:48

Does anyone know how long payments take at all . And also good luck to everyone still waiting and I hope everyone gets an award hopefully before Xmas ❤️❤️❤️ you all deserve it and so do the kiddies your all super mums never forget just why your fighting it gets hard but always know each and everyone one of you have got this and will get this ❤️xxxx

3-5 working days, you will probably recieve back pay thursday/friday xx

Sophhiiee89 · 25/11/2025 08:40

Princessmom222 · 25/11/2025 07:46

3-5 working days, you will probably recieve back pay thursday/friday xx

Thank you xxx

bp19 · 25/11/2025 09:14

Hiya I sent COC 30th April and woke up to back pay - good luck all - hope this helps on dates waiting ❤️

Jessesmum19 · 25/11/2025 09:39

Emzi538 · 25/11/2025 07:17

Hi
Im just after you, 16/05 for our coc ... I called last monday and was told still in the holding queue to go to dm, they wont give any time frames now

I'm 28th April for coc it's with a descion maker now xx

Jessesmum19 · 25/11/2025 09:40

bp19 · 24/11/2025 20:23

Hiya, sorry new here. I sent my sons COC form 30th April, is anyone around the same time and still waiting?? Thanks x

I'm 28/04 coc and with a decision maker x

Jessesmum19 · 25/11/2025 09:41

bp19 · 25/11/2025 09:14

Hiya I sent COC 30th April and woke up to back pay - good luck all - hope this helps on dates waiting ❤️

Congrats fingers crossed I get my decision this week x

LuckyGoldBird · 25/11/2025 09:45

Called this morning and the lady told me they are working on mays mr. In case anyone is waiting for their mr xx

Emzi538 · 25/11/2025 09:48

Jessesmum19 · 25/11/2025 09:39

I'm 28th April for coc it's with a descion maker now xx

Thank you,
Fingers crossed tou get the award your lo deserves x

Jessesmum19 · 25/11/2025 10:12

Emzi538 · 25/11/2025 09:48

Thank you,
Fingers crossed tou get the award your lo deserves x

Thankyou you too xx

Sophhiiee89 · 25/11/2025 10:25

LuckyGoldBird · 25/11/2025 09:45

Called this morning and the lady told me they are working on mays mr. In case anyone is waiting for their mr xx

Hey sweet they must be lying i got awarded yesterday and im 4th June babe. Xxxx so could be anytime

LuckyGoldBird · 25/11/2025 10:26

Sophhiiee89 · 25/11/2025 10:25

Hey sweet they must be lying i got awarded yesterday and im 4th June babe. Xxxx so could be anytime

I think I remember you saying you got your mp on it ?? Maybe that’s why you got yours first? Because I did mention that I’ve seen people from June and she said I know they are now working on may x

Sophhiiee89 · 25/11/2025 10:28

LuckyGoldBird · 25/11/2025 10:26

I think I remember you saying you got your mp on it ?? Maybe that’s why you got yours first? Because I did mention that I’ve seen people from June and she said I know they are now working on may x

Yeah maybe babe i hope noones waiting to long xxxx

LuckyGoldBird · 25/11/2025 10:30

Sophhiiee89 · 25/11/2025 10:28

Yeah maybe babe i hope noones waiting to long xxxx

Feels like it’s been forever 😩 did you get the award you were hoping for x

Sophhiiee89 · 25/11/2025 10:32

LuckyGoldBird · 25/11/2025 10:30

Feels like it’s been forever 😩 did you get the award you were hoping for x

My daughter got low rate mobility middle rate care so to me anythings a bonus bless her helps towards everything she needs xxx I hope you get the outcome you are waiting for xxxx

Momof3boys2girls · 25/11/2025 10:55

Just had a phone call from the dm regarding MR asking loads of questions and they threw me off with it all my mind went totally blank.

does anyone know roughly how long after the dm calls a decision is made?

hope all goes well for anyone calling today and awaiting decisions

Kirsty19922025 · 25/11/2025 11:03

Momof3boys2girls · 25/11/2025 10:55

Just had a phone call from the dm regarding MR asking loads of questions and they threw me off with it all my mind went totally blank.

does anyone know roughly how long after the dm calls a decision is made?

hope all goes well for anyone calling today and awaiting decisions

Hi sorry I can’t help with your question but what date was you MR x

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