DLA Wait Times 80

[Kirstygingee]

MR- Mandatory Reconsideration
NC- New Claim
COC- Change of Circumstances
SD- Scan Date
LRC- Low Rate Care
MRC- Middle Rate Care
HRC- High Rate Care
LRM- Lower Rate Mobility
HRM- Higher Rate Mobility

I’ve just called, I’m actually quite livid, not with a DM yet. Mine was supposed to be an MR to send late evidence in March after a decision was made for a NC but they said the evidence I sent was more of a COC so they sent it to that team on the 06/05, I have uploaded so much evidence and changes since March (in Scotland so you upload evidence online) and I’ve called every time I’ve uploaded evidence to make sure everything was done right and going in the right direction because it was an mr and they haven’t contacted me to do any other form or anything like that and they have always said yeah everything is fine. So the women on the phone has said that I should have been sent a COC form to fill out as the COC team might not take the MR letter or evidence I’ve sent into account, she’s spoke to a few people in her department and they said they would advise me filling one out but they don’t know if it will make the wait longer now and start the process again, she’s spoke to a case manger and he said that I’ve done everything right, if they haven’t called or sent a form then that’s not my fault but they will call me back tomorrow to see what I’ve to do🙈 the stress on top off stress is a joke😬X

I thought I would too as my SD was 14/10 and the text said 25 weeks. But I had a gut feeling and called last week to find out decision made. I'm now waiting on the letter (British post from mid November to mid January is hit and miss, mostly miss here) and back pay arriving so I can get next steps going to keep me as available as possible for my boy.

Nothing surprises me .. sorry you're going through such red tape.

I actually don't know what's going on there.

Thank you, i do appreciate it! If i dont call il just get anxiety that its gone to the wrong address. Xx

I called this morning about my daughters renewal for the 7th December and was told I'd probably hear something next week so to call back then.

I had a call from DLA 45 minutes ago on 08000232635 asking for some details on my childs night time needs and said if anything improves then let us know straight away. I stupidly didn't ask when I would find out the decision 🤦🏻‍♀️

I get it. I called carers today to make sure I can get sorted for that ASAP. If I don't its the constant push to find work but not work that works around my son. I was worried because I was someone else's carer previously and didn't want to shoot myself in the foot.
Lucky for me my worry was unfounded and once I have his reference I can get that process started. Otherwise its just stressful knowing he's months away from multiple appointments and trying to juggle work, his needs and appointments as well as my daughters (18 also on the spectrum and in the process of being diagnosed with fibromyalgia and chronic fatigue syndrome).
I'd have no hair left 😅

That's amazing news!! Maybe I will get a lucky Xmas present eh? I had to drop to part time to make sure I was available for my daughter and it's been a big ole hit.

Let's hope you get the letter soon :)

I've phoned i couldn't wait she's been awarded middle rate care and low rate mobility xxxxx im over the moon I've cried and I told my daughter and her words were i can finally have clothes and bedding with materials i like and socks 😭😭❤️ its just the little things that make such a difference xxxxx

Luckily even if the post sends the letter into the abyss for the next 2 months his reference will be on his backpay payment information so I don't have to wait too long should be any day now.
I am so thankful they took his needs seriously first time around unlike his school who waited so long he will finally be diagnosed a few months before he leaves them for good.
The way his face just relaxed when I said he didn't have to think about starting wrap around care at school anymore was worth every second of my worry.

I feel you on the socks. My son even in summer will only wear the fluffy winter socks. When I put him in normal cotton socks he spends the whole time growling and pulling at them until they are off even if thats at school. Once off he is back to actual words and sentences. He would rather be barefoot at school than wear standard cotton socks.

I hope it gets sorted for you soon, it is very hard having to juggle everything. If you get UC you can get carers element for your child as lomg as they get DLA. And you shouldmt have to wait too long.

We both had to quit our jobs because of the extensice care needs of our children and the numerous different appointments so i know exactly how you feel.

Everything is so stressful and you constantly feel on edge.

Yeah i understand that my daughter is the same she said they suffocate her feet and they are dying . Same with underwear she hates restricting even though she's 14 she has to have large underwear so she gets nervous getting dressed for p.e because everything's loose so im battling with school at the moment for her to be able to go 5 minutes before and get changed xxx

Omg thats absolutely amazing and very quick, i am over the moon for you and your daughter. And awww bless her, thats so sweet it actually brought a tear to my eye. Bless her so much!! 💗

All my girls wont wear socks and will only wear fluffy ones if we are off out somewhere. But my twins take of their socks and shoes even when out as they hate anything restricting their feet.
The older girls dont like knickers either, and will only wear boys silk boxers.
(Im exactly the same)

They are also very particular with all their clothes and say every material is itchy. And will only wear loose fitting shoes.

But honestly that has really melted me heart!!!

Oh I know all about fighting with the school. I only got anywhere because one of the other teachers had a daughter with ASD and she was recognising the masking signs. Id not even have a diagnoses if it was up to the senco.

I honestly cant be more thankful. And I really really hope your outcome is one that can help as much as you deserve honestly no children should have to feel restricted or have to not be able to feel comfortable ❤️ it should be affordable and in shops worldwide but only things are on the Internet and expensive even just be able to buy her things she needs and food aswell that she enjoys instead of having to try and mingle bits together . I really wish you the best please please keep me updated ❤️❤️❤️

My sons dad and I split because he refused to make any changes to help or attend any appointments for any of our 3 kids. I'm glad you have a supportive partner because I know it makes a difference not just for your kids but for you as well. Lucky for me I come from a big family so I'm used to chaos or idk if I would be coping as well as I am. Some days it still feels like too much and the internal noise matches energy with the external noise but I will keep going.

He just repeats they are wrong once they are off. He can't seem to process exactly why they are wrong he just knows they are. He's fine with his boxers but they have to be the snug ones as he doesn't like feeling things move against him there even his own skin. I'm nervous for the next few years when it comes to him and clothes as he is only 10 but already in 13-14. Asda does great uniform that fits his needs perfectly but that won't last if he keeps growing the way he is.

All children should be able to feel like themselves and feel 100% comfortable. Im so happy the money will make everything easier and your daughter will be able to get everything she wants. I will 100% keep you updated, im also waiting on two new claims and a COC. So ive got this wait for a while yet.

Thats absolutely awful, I am so sorry to hear that. More fool him, your kids are very lucky to have a mother that will do anything for them and fight their corner. You are one very strong mumma, you should be so proud of yourself. And go you for slinging someone out that doesnt deserve you or your kids, if he isnt willing to step up and do his job as a dad💗

I really do respect single mothers because it really isnt an easy job being a parent, and its even harder having children with uniqueabilities, thats what we say our kids have because my oldest got made fun of for it. She didnt understand, but her cousin got into trouble for headbutting a kid because they were calling her a special and disabled and talking to her weird.

But honestly i do have the best, hes an amazing husband and dad so i know i got lucky with him but we have been together since 15 and him having children was the making of him. They do say having children is the making of a man or the breaking of a man❤

Omg that is awful, i really hope they sort it out for you and soon and you dont have to do a COC form.

You really shouldnt have to do anything else. Especially after waiting so long. They should look into your case sooner rather then later.

Let me know if you hear anything else. Fingers crossed for you that it all gets done sooner. Xx

The women on the phone was lovely and I’m glad she caught it incase it is worse case and they don’t take it into account but I’ve called more than a handful of times over the past couple months and no one has caught onto anything or said anything🙈 she asked if I could fill out the form tonight and send it online just incase, the change I’ve done is for my little boy not sleeping and bouncing from wall to wall for majority of the night so yeah sure I have the time to do that😂 the case manager is going to call in the morning once they speak to the COC team to help me with what to do next 😬 the forms obviously aren’t easiest thing in the world to do and you normally get 8 weeks to send them back when you do a change or NC🫣 honestly baffles me how DLA is for disabled/ children with more needs and this is the stress they cause with wait times and not doing things properly🙄

let me know if you hear anything too, this thread is the only thing keeping me sane and in the loop for non existent time scales😂😊X

What an absolute joke that is. How on earth do they expect you to do that. Thank god she did notice, but still besides the point you shouldnt have been messed about for so long.

If it is a COC and you send the form i hope to god they put you at the top of the que because it is not your fault and you've been messed about so much. They should not make you wait another 30 weeks because that would be a complete joke.

I really do hope they manage to get it sorted and it gives them the nudge they need to get yours seen by the DM.

I know I am so thankful to this thread because its the only thing that keeps me sane too. And i will do xx

Wow but even these little things are so expensive ain't they and they really shouldn't be and there should be more variety for children ❤️ my daughters 14 and in 16/17 more 17/18 with room I go on a website for uniform as i struggle to find the right sizes and it is perfect expensive but shirts last never go grey or funny colour never iron them they just have no creases lol takes pressure off me not having to iron lol as its a chore I have to do when its silent xxxxx

When my daughter was first diagnosed with adhd and a compulsive tic disorder at 14 she lost a lot of friends, and her dad said she was faking.
However through that she found support from people she never would have expected it from. One boy in particular tried to sit with her during lessons to distract her from the gossip he would point out how her vocal tics were making the school day feel less like a robot factory. He was also heavily into sports and fitness so was able to dodge when the motor tics were too hard to control.
They had been in the same school for years and barely interacted before but he became the student she felt safest with and is probably why she doesn't get upset at herself for her tics now. At home she can let them fly and I will simply clean up behind the chaos, he became that for school.
One light is all it takes to make our world's less scary.

Thats awful, dont get the mentality of some people.

Bless him he sounds amazing, it is so nice to see some children are actually so kind hearted. His parents must be very proud of him.

Im so glad your daughter is able to be herself without all the worry and im glad hes made her feel safe. All it take is one person to help and make us feel accepted.
Bless them both!!