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DLA wait times 76

1000 replies

HeartyGuide · 08/08/2025 16:28

New Thread as previously one nearly full.

OP posts:
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11
PositivityRipples · 15/08/2025 21:48

flawlessflipper · 15/08/2025 20:59

I have provided links to reputable sites to evidence what I am posting, yes.

The link to the page from Contact, an extremely well regarded national charity, is specifically about DLA.

I provided the link to Mencap and NICE to show the definition of learning disability. A learning disability is a specific diagnosis regardless of what DWP want to believe.

An ASD diagnosis and a learning disability diagnosis are not the same thing. They can both fulfil that part of the test under severe mental impairment criteria, but that isn’t the same thing as being the same.

No seperate diagnosis needed

Yet again, I have not said they do. I have repeatedly said the opposite! I asked you to provide a quote where you think I have said both diagnoses are required. You have failed to do this. Funny that! Not surprising since I have posted no such thing.

and tagging me in

I have not tagged you in any links. I have only tagged you once and that post did not include any links. It is clear for people to see that from reading my actual posts, not making things up by saying I have tagged you in links when I have not.

I work for a charity who supports parents of disabled DC, including with DLA claims. I also support many parents away from this role. I said I do this (and EHCP support) day in, day out. As in I support parents with this day in, day out and I also support parents with EHCPs (and a range of other things) day in, day out. Everything I have posted is correct. I have provided evidence to prove what I am posting is correct.

@flawlessflipper
My point is you're posting things from other agencies and online to evidence definitions of learning disabilities ect and make your points.

But we are talking about DLA only.

When you're stating that a "learning disability is a specific diagnosis regardless of what DWP want to believe"

That's my whole point we are talking about DLA and the DWP and disability claims and criteria and decision maker guides and legislation that is set by the secretary of state and the DMs have to follow and the DWP health care professionals have to follow across the board so it's very relevant what they believe and what's in there guides as that's what we are talking about
Specifically the SMI criteria set by the secretary of state.

So whatever it says in NICE or Menap and their definition of a learning disability is highly irrelevant and that's not what I'm talking to you about..

I am telling you what the secretary of state has defined for the smi criteria...

Internal documentation for the DMs and dwp healthcare professionals states.

"learning disability" in the jurisdiction of England and Wales shall be defined as a term that broadly describes a reduced ability to learn, understand new or complex information, and cope independently, we use the term learning disability in the guide to refer specificially for the SMI criteria this shall include neurodevelopmental conditions that affect two broad areas
Cognitive functioning - such as learning, problem solving and functioning
Adaptive functioning - activities of daily life, including communication skills and social participation, for the avoidance of doubt this shall include learning disability to be classified as how the child learns, retains and uses information impacting academic, social, intellectual and daily living skills, diagnosis is not necessary when referring to the term learning disability this shall be used under the broad spectrum of autistic children with evidenced diagnosis of severe autism and their diagnostic symptoms, four diagnostic symptoms will be present in children with a severe mental impairment : see flow charts for further definition of learning disability, children who meet the criteria for the higher rate mobility component using the guides will follow set criterias of four learning disabilities and one diagnosis: see section 9 for diagnosis conditions also see section 13 for children meeting the high rate care component, it is only once all 6 are completed in full that the case should be processed with the allocated case manager and internal completion of the relevant medical document from the healthcare professionals, keep all internal forms with the relevant case

Hope that clears it all up for you that it is not a specific diagnosis or seperate to ASD for dla claims.

They use the term learning disability in a completely different way to what you're saying, they categorise a child with a number of learning disabilities without diagnosis under the SMI criteria and a child with just a diagnosis of autism.

Which I've been trying to state to you.

Hopefully this clears up my point for Smi HRM.

Haze87 · 15/08/2025 21:51

Garfield456 · 15/08/2025 21:46

This was last year but i waited a month for backpay from UC, i did have to ring them for them to sort it in the end as i was not getting a response from the journal.

Yeah they are a nightmare

i’m on my last part of my review telephone call booked next week so apparently no backdate will be actioned until I’ve completed that part!
Fuming, I said what has that got to do with my underpayments from the past 14 months!

s39 · 15/08/2025 21:52

Garfield456 · 15/08/2025 21:46

This was last year but i waited a month for backpay from UC, i did have to ring them for them to sort it in the end as i was not getting a response from the journal.

Hey thank you for replying x
It has only been just over a week but not heard back I will leave it another week or 2 and chase it up x

Asdmummyhere · 15/08/2025 21:53

I have followed these pages for 5 years and seen us mums fighting to get what our child deserves. This is the first time I have ever seen any massive disputes between 2 followers. I understand your are both trying give advice but please leave it now. This forum is here for advice and to try and make friends. Your opinions differ and it’s not making this forum a healthy place to be, especially for anyone who wants to join. Please be kind to each other

flawlessflipper · 15/08/2025 21:55

Still no quote? Again, funny that. Easy to say I am doing and saying things I am not when you can’t back it up by quoting exactly where.

As I said, a learning disability is a specific medical diagnosis even if they want to define it otherwise. A medical diagnosis is not ‘highly irrelevant’.

Garfield456 · 15/08/2025 22:03

s39 · 15/08/2025 21:52

Hey thank you for replying x
It has only been just over a week but not heard back I will leave it another week or 2 and chase it up x

If you havent heard anything i would do it next week, just so they can start sorting if for you 😊.

PositivityRipples · 15/08/2025 22:06

flawlessflipper · 15/08/2025 21:55

Still no quote? Again, funny that. Easy to say I am doing and saying things I am not when you can’t back it up by quoting exactly where.

As I said, a learning disability is a specific medical diagnosis even if they want to define it otherwise. A medical diagnosis is not ‘highly irrelevant’.

😂😂😂😂
We are not talking about medical diagnosis of learning disabilities an autistic child doesn't need any learning disabilities diagnosed the meet the smi criteria.. The dla DM define the learning disabilities based on symptoms and real world situations described in the claim form..
I'm so confused on what you're even debating.

@Asdmummyhere I've been on these pages for over a year aswell.. Nobody is being unkind.. I gave some advise based on a conversation this lady was having with another lady and now I don't even know what she's saying or why she's sending links from everywhere when we are specifically talking about dla and the smi criteria for HRM 😂🤣

The debate is taking up the pages here on the thread though so I'll leave it there

🫶🫶🫶

flawlessflipper · 15/08/2025 22:10

Again, I have not said an autistic child also needs a diagnosis of a LD. I have posted multiple times, they don’t. You can’t even quote where I have apparently said they do. That is because it doesn’t exist! I did not say it.

If you are so confused don’t know what I am saying reading and comprehending the actual posts rather than making things up by saying I am doing and saying things I am not.

xxstac3yxx · 15/08/2025 22:20

I was having a discussion with my friend about coc, she said if my son changes from mrc to hrc and hrm, he will be back paid the difference, is that true? First I have heard about that.

PositivityRipples · 15/08/2025 22:21

flawlessflipper · 15/08/2025 22:10

Again, I have not said an autistic child also needs a diagnosis of a LD. I have posted multiple times, they don’t. You can’t even quote where I have apparently said they do. That is because it doesn’t exist! I did not say it.

If you are so confused don’t know what I am saying reading and comprehending the actual posts rather than making things up by saying I am doing and saying things I am not.

Go and have a cuppa and take a deep breath it is not that deep, you jumped down my throat from the off, maybe you're having a bad day or just like going round in circles you can't be strong and wrong.
It doesn't even matter but if you help with dla claims and work for charities and help with EHCP ect ect.. At least take the time to understand when legislation and dla guides are explained to you.. You never know you might learn something about the smi criteria and dla DMs.
I'll throw in the towel as this debate is no longer necessary or informative for the thread 🥰

Take care, hope all goes well with your claim 🫶

Irongirl71 · 15/08/2025 22:23

Jenni20 · 15/08/2025 01:45

Also, can anybody give me advice on universal credit. I was supposed to be starting back at university this September. I know I can’t claim carers allowance if I’m in full time study, however I’ve seen something about carers element and premium? Does this allow me to study or not? And do these automatically get added on when I inform if about the dla? And also, what’s the benefit cap? Sorry for all the questions there’s just a lot to it.

Im a full time student at uni and you can claim the disability element and the carers element of universal credit. Along with your student finance.

flawlessflipper · 15/08/2025 22:23

I don’t need a cuppa. I haven’t said it was ‘deep’. I haven’t jumped down your throat. Saying I don’t know why you have tagged me in the rest of your post isn’t rude. It is literally saying I don’t know why you have.

I understand the legislation and case law perfectly fine, thank you.

LocoCoco13 · 15/08/2025 22:37

PositivityRipples · 15/08/2025 19:14

So when you've stated here

Specifically:
“A learning disability is a reduced intellectual ability” - not all with ASD have a reduced intellectual ability, so not all can be diagnosed with a learning disability

Yes not all ASD children have a reduced intellectual ability which is why not all ASD children qualify for HRM under Smi

But the ASD children who do have a reduced intellectual ability meet the criteria for" impairment of intelligence "therefore qualify for HRM smi route,
They don't need a seperate diagnosis for this specific learning disability because the learning disability is already diagnosed as a byproduct of autism as its a spectrum.

Understand?

Edited

Autism is a social and communication disability. Autism no matter what, is not and never will be a learning disability. You do not have a diagnosis of a learning disability just because you have autism.

I actually think it speaks ALOT about how messed up the dla system is if you oversee DMs and your your husband is a DM, if thats what you think about these diagnoses ect. Its quite concerning actually that people like you oversee these claims bo wonder most children are not getting the correct awards

s39 · 15/08/2025 22:40

In your own ways ur both correct it’s clear you both have a lot of knowledge x
Why don’t u just agree to disagree 🫶🏼
Everyone is here to support one another and help each other get through what’s best for our LOs xx

flawlessflipper · 15/08/2025 22:42

Irongirl71 · 15/08/2025 22:23

Im a full time student at uni and you can claim the disability element and the carers element of universal credit. Along with your student finance.

If you are in full-time education, you shouldn’t get the carer element. The government’s ADM chapter on the carer element is here - full-time education is abbreviated to FTE.

PositivityRipples · 15/08/2025 23:50

LocoCoco13 · 15/08/2025 22:37

Autism is a social and communication disability. Autism no matter what, is not and never will be a learning disability. You do not have a diagnosis of a learning disability just because you have autism.

I actually think it speaks ALOT about how messed up the dla system is if you oversee DMs and your your husband is a DM, if thats what you think about these diagnoses ect. Its quite concerning actually that people like you oversee these claims bo wonder most children are not getting the correct awards

Edited

You're misinterpreting what it says...
We was talking about the smi route to HRM..
In order to claim it you have to meet the criteria..
Which is
Arrested or incomplete development of the brain ( autism) satisfies this criteria.
The child must be in reciept of high rate care component.
The childs must exhibit extremely disruptive behaviour ( which can be evidenced by sen or EP reports or school reports, nursery reports ect
The child must have an impairment of intelligence and social functioning ( this is the marker we were debating and what I stated was in order to have an impairment in intelligence the dla guide states this is a learning disability and it is described as one for the purpose of the claim it's basically just to evidence that the child is on the way severe end of the autistic spectrum hence the need for HRM the child doesn't need a diagnosis of the learning disability it is already recognised as a symptom andd a byproduct of autism)
And then the other criterias which are the child needs intervention and restraint and constant supervision.

That's it.

Also i don't set the criterias the criterias are set by the secretary of state.

But as I've said I've not said what you're stating. Have a read through.

My husband isn't a DM my children's father is we split 10 years ago but yes he's a DM..
I work for HMRC i oversea the DWP i work in the bridge between the secretary of state and the DLA and PIP DMs...

PositivityRipples · 16/08/2025 00:06

LocoCoco13 · 15/08/2025 22:37

Autism is a social and communication disability. Autism no matter what, is not and never will be a learning disability. You do not have a diagnosis of a learning disability just because you have autism.

I actually think it speaks ALOT about how messed up the dla system is if you oversee DMs and your your husband is a DM, if thats what you think about these diagnoses ect. Its quite concerning actually that people like you oversee these claims bo wonder most children are not getting the correct awards

Edited

And you're absolutely correct children most children are not getting the correct awards MY own child included he's autistic, adhd, pda, ptsd and blind in one eye.
He's been removed from school permanently due to the incompetence of the school and them not following restraint and safeguard policy property he's high risk for physical violence, the police are actually on his risk assessment to help with restraint as the level needed is above the schools policy he's totally out of control NOT HIS Fault, he now requires round the clock supervision he's assaulted 17 teachers and various peers he's smashed property he's learning age is 6 Years behind his actual age he's impaired in social and intelligence he's extremely disruptive he has no balance he's got complete vision loss in one eye he's had brain scans and the part of the brain responsible for emotion regulation and behaviour and impulse control is damaged he has ptsd from his own violence and his nervous system remaining in a state of fight and flight amongst other factors I have evidence coming out my ear holes and the DM clearly didn't read it all and awarded LRC only, I'm 19 weeks into a MR and I will take it to tribunal if needed... I still have to follow procedure like everyone else and I wait these atrocious wait times and figure out work with a child now at home full time and going to the governing panel because of the school exclusion under disability discrimination which the EP and all other professionals involved are backing me with.. The whole system is a joke.. But as I said I don't make the rules or legislation..
We are all fed up with the state of this government.
🤕

Kits45 · 16/08/2025 06:22

Any whooo I think with coc being few and far between it might be handy when someone does get there decision to pop it in here so it's helpful for coc people to track where there up to 👍🏻

Mumofthree1989 · 16/08/2025 08:26

Kits45 · 16/08/2025 06:22

Any whooo I think with coc being few and far between it might be handy when someone does get there decision to pop it in here so it's helpful for coc people to track where there up to 👍🏻

I’ll definitely update when I get mine. But seeing as my scan date was 12th May I could be waiting a fair while lol

Emzi538 · 16/08/2025 09:12

Mumofthree1989 · 16/08/2025 08:26

I’ll definitely update when I get mine. But seeing as my scan date was 12th May I could be waiting a fair while lol

Im the 16th may so just after you.... sending extra evidence again this week

Mumofthree1989 · 16/08/2025 09:22

Emzi538 · 16/08/2025 09:12

Im the 16th may so just after you.... sending extra evidence again this week

Good idea, I’ve sent loads in and also had to do her renewal so they’ve got both now. We have her ASD assessment on 26th so will send that report in too

Meglee93 · 16/08/2025 09:31

Anyone had a text from dla today xx

Kits45 · 16/08/2025 09:35

Mumofthree1989 · 16/08/2025 08:26

I’ll definitely update when I get mine. But seeing as my scan date was 12th May I could be waiting a fair while lol

Mine is 25 March so I will update when I know I'm not expecting to hear anything till possibly early October as that will be 28 weeks which is at the higher end of waiting 👍🏻

Kits45 · 16/08/2025 09:38

Mumofthree1989 · 16/08/2025 09:22

Good idea, I’ve sent loads in and also had to do her renewal so they’ve got both now. We have her ASD assessment on 26th so will send that report in too

I sent off my last evidence last week as he got accepted for ehcp so I sent a copy of the draft off along occupational therapy and NHS contenice products letter hopefully with all the stuff I've sent on since March should be plenty 👍🏻

Curlycookie5 · 16/08/2025 10:14

Kits45 · 16/08/2025 09:35

Mine is 25 March so I will update when I know I'm not expecting to hear anything till possibly early October as that will be 28 weeks which is at the higher end of waiting 👍🏻

I will update everyone too, I’m 2 weeks behind you and was thinking I should receive a decision towards the end of October so I probably won’t call until 28 weeks unless I see the wait times go down, I called to check evidence yesterday and she said COC is taking 27 weeks and that is the wait time I was told months ago too

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