Please or to access all these features

SN children

Here are some suggested organisations that offer expert advice on special needs.

DLA WAIT TIMES THREAD 57

1000 replies

zoeybrooks45 · 26/11/2024 18:39

Hello everybody, I have made a new thread please put in your scan date, hopefully we hear some good news this month. please be kind and feel free to share scan date, entitlement award and what child is diagnosed with as others in similar position can feel uplifted in these stressful times. 💐

New claims (NC) are taking ‘around’ 20 weeks.
Mandatory Reconsideration (MR) & Change Of Circumstances (COC) between 20-25 weeks approx.
Renewals between 15-20 weeks approx
tribunals: when you disagree with MR and are considered by a court
scan date (SD) date form was scanned on the system and counting weeks for decision
original claim date: date you called up for the forms and you will be backdated

UC : universal credit
DWP: department of work and pensions
DM: decision maker; the person who assesses each claim and awards/decline a case

number for an update 0800 121-4600

currently we are in July for decisions! xx

OP posts:
Abwill · 28/11/2024 12:01

So they only received mr on the 12th of November I've got a long wait! Xx

Chels2020 · 28/11/2024 12:02

SKB12 · 28/11/2024 11:47

This is the best that my son’s school could come up with. I’m flabbergasted. His attendance is awful but even at the meeting on Monday more than this was discussed. No intervention plan received either by the senco despite me reminding about it and this is what the issue is. It’s a specialist placement so even more disappointing

I am absolutely in disgust over this letter! Hang on in there hun! X

SKB12 · 28/11/2024 12:03

Abwill · 28/11/2024 12:01

So they only received mr on the 12th of November I've got a long wait! Xx

unless they get through the backlog sadly yes x

Kc1999x · 28/11/2024 12:03

@SKB12 it sounds to me that these teachers and senco are in the wrong job. Supposed to be helping children thrive and helping parents along the way

Kc1999x · 28/11/2024 12:04

Abwill · 28/11/2024 12:01

So they only received mr on the 12th of November I've got a long wait! Xx

You may be lucky and it could come in early. Seen a few from September and October get results from MR already. Unless you’re from West Midlands😂😂 we have a long waitttt

SKB12 · 28/11/2024 12:07

Chels2020 · 28/11/2024 12:02

I am absolutely in disgust over this letter! Hang on in there hun! X

Us too. This is for my son’s benefit not ours so I don’t get their reluctance to provide a full written account. They’ve known him since year 7 he’s in year 8 now so they could use that but have chosen not to! I’ve provided their details to DLA maybe they will get more joy but I doubt it

SKB12 · 28/11/2024 12:08

Kc1999x · 28/11/2024 12:04

You may be lucky and it could come in early. Seen a few from September and October get results from MR already. Unless you’re from West Midlands😂😂 we have a long waitttt

😂 it’s no coincidence about the west midlands crew!

Abwill · 28/11/2024 12:10

😂😂😂 oh no !
I'm north west so maybe we have a quicker set of people🤞🏽 all I can do is hope 😂🤞🏽

Chels2020 · 28/11/2024 12:10

SKB12 · 28/11/2024 12:07

Us too. This is for my son’s benefit not ours so I don’t get their reluctance to provide a full written account. They’ve known him since year 7 he’s in year 8 now so they could use that but have chosen not to! I’ve provided their details to DLA maybe they will get more joy but I doubt it

I have the same
issue with my son in year 8 he’s at mainstream
school they told me he needs extra support but can’t give it him
because he hasn’t got a diagnosis yet so
he's just left to struggle on for the next 12/18 months I don’t understand why they don’t see that the children are suffering without the support they all need it’s wrong keep fighting xx

sjay1017 · 28/11/2024 12:15

Chels2020 · 28/11/2024 12:10

I have the same
issue with my son in year 8 he’s at mainstream
school they told me he needs extra support but can’t give it him
because he hasn’t got a diagnosis yet so
he's just left to struggle on for the next 12/18 months I don’t understand why they don’t see that the children are suffering without the support they all need it’s wrong keep fighting xx

Hey just a heads up it doesn’t make much difference even with being diagnosed. They just make little adjustments. My son doesn’t really cope
in main stream but still holding off putting in ehpc and he going in year 6 September. School fail children was much x

Chels2020 · 28/11/2024 12:17

sjay1017 · 28/11/2024 12:15

Hey just a heads up it doesn’t make much difference even with being diagnosed. They just make little adjustments. My son doesn’t really cope
in main stream but still holding off putting in ehpc and he going in year 6 September. School fail children was much x

They have told me he gets up walks sroumd
class always shouting out fidgeting but won’t even provide him with A fidget toy because he hasn’t got a diagnosis so we sent one from home and it was removed from
him! Baffles me honestly baffles me x

Kc1999x · 28/11/2024 12:20

So sad to read. I’ve been quite lucky with my boy. Had all referrals in at age 2, diagnosed at 3, ehcp finalised age 4.
@Chels2020 push for that ehcp! On my sons he is allowed movement breaks every couple of minutes and extra outdoor time to run around. Obviously my boy is a little younger but it’s the little things like the fidget toys that can keep our children regulated! If school are holding off or taking their time you can apply for one yourself!

Kc1999x · 28/11/2024 12:21

sjay1017 · 28/11/2024 12:15

Hey just a heads up it doesn’t make much difference even with being diagnosed. They just make little adjustments. My son doesn’t really cope
in main stream but still holding off putting in ehpc and he going in year 6 September. School fail children was much x

Apply for the ehcp yourself!

sjay1017 · 28/11/2024 12:25

Kc1999x · 28/11/2024 12:21

Apply for the ehcp yourself!

Hey I’m just scared it will be declined as school are dragging heels. He has had 6 icp since year 4 and nothing has improved. His eduction is really improving. The school are saying they will say the school haven’t give it long enough with everything in place

Chels2020 · 28/11/2024 12:25

Kc1999x · 28/11/2024 12:20

So sad to read. I’ve been quite lucky with my boy. Had all referrals in at age 2, diagnosed at 3, ehcp finalised age 4.
@Chels2020 push for that ehcp! On my sons he is allowed movement breaks every couple of minutes and extra outdoor time to run around. Obviously my boy is a little younger but it’s the little things like the fidget toys that can keep our children regulated! If school are holding off or taking their time you can apply for one yourself!

So I already have a boy who’s diagnosed asd he was diagnosed at 4 he’s got all the support from primary they are great with him can’t fault them but more eldest in highschool
in wouldn’t mind so much but they told me to do a referral for diagnosis he’s always got on and managed best he can just been labeled as a distruption swinging on chairs shouting out sometimes I sware he dosnt even know he’s doing it! I don’t think he’d get an ehcp though let’s get his Dla hopefully over the line before I think about anything else x I wasn’t even gunna bother with dla but he’s last 6 months been awfully funny with clothes and shoes and they are not cheap and im
a single parent so was left with not much choice

SKB12 · 28/11/2024 12:25

Chels2020 · 28/11/2024 12:10

I have the same
issue with my son in year 8 he’s at mainstream
school they told me he needs extra support but can’t give it him
because he hasn’t got a diagnosis yet so
he's just left to struggle on for the next 12/18 months I don’t understand why they don’t see that the children are suffering without the support they all need it’s wrong keep fighting xx

This is so wrong. The school should approach the LEA. Does you son have a EHCP? With the wait times as they are, school should put the support in place without the need of a diagnosis. That was the case for my son while he was at primary. You too, keep fighting for what is their basic right. x

SKB12 · 28/11/2024 12:28

sjay1017 · 28/11/2024 12:15

Hey just a heads up it doesn’t make much difference even with being diagnosed. They just make little adjustments. My son doesn’t really cope
in main stream but still holding off putting in ehpc and he going in year 6 September. School fail children was much x

It does make a difference on the funding front but support wise they should be doing that already when they can see without a paper diagnosis her son is struggling

SKB12 · 28/11/2024 12:30

Kc1999x · 28/11/2024 12:20

So sad to read. I’ve been quite lucky with my boy. Had all referrals in at age 2, diagnosed at 3, ehcp finalised age 4.
@Chels2020 push for that ehcp! On my sons he is allowed movement breaks every couple of minutes and extra outdoor time to run around. Obviously my boy is a little younger but it’s the little things like the fidget toys that can keep our children regulated! If school are holding off or taking their time you can apply for one yourself!

Same as my son. He’s 13 requires regular movement breaks and has a designated movement area in his class that’s where he will spend his whole day until his taxi arrives. It’s really sad especially when we’ve another boy close in age who smashes all targets and is very able in all aspects

Kc1999x · 28/11/2024 12:31

sjay1017 · 28/11/2024 12:25

Hey I’m just scared it will be declined as school are dragging heels. He has had 6 icp since year 4 and nothing has improved. His eduction is really improving. The school are saying they will say the school haven’t give it long enough with everything in place

Gather all the support plans you have, along side any other evidence, and fill it out yourself. You know your child’s strengths and weaknesses better than anyone. It is daunting but it may well be worth it. Or better yet if you don’t want to do it yourself just tell the school that you would like your child to have an EHCP for x,y,z reasons, therefore if they aren’t willing to help you’ll be proceeding to do it alone, they may well just say we will get started on it. You can request an EP to come do an assessment on your child at school aswell.

Kc1999x · 28/11/2024 12:36

SKB12 · 28/11/2024 12:30

Same as my son. He’s 13 requires regular movement breaks and has a designated movement area in his class that’s where he will spend his whole day until his taxi arrives. It’s really sad especially when we’ve another boy close in age who smashes all targets and is very able in all aspects

Oh it is. I have a 2 year old girl and she’s hitting all targets, talking and even potty trained. It’s like I’ve done two different types of parenting. My boy can’t even put on a pair of shoes or dress himself, or even speak🥺 but my little girl can do it all. My 16month old is speaking now aswell. It’s so bitter sweet. Wouldn’t change my son for the world but I pray one day I hear his voice

JW070116 · 28/11/2024 12:38

Emptyabc · 28/11/2024 11:44

Phoned today and still waiting to be assigned..
original scan date 26/1/24 - declined due to not sending any evidence in
MR received by dla 24/7/24
honestly it’s coming up a whole year now..!

I will be a year in Feb 🥴 about 2 weeks behind you

Kc1999x · 28/11/2024 12:39

Chels2020 · 28/11/2024 12:25

So I already have a boy who’s diagnosed asd he was diagnosed at 4 he’s got all the support from primary they are great with him can’t fault them but more eldest in highschool
in wouldn’t mind so much but they told me to do a referral for diagnosis he’s always got on and managed best he can just been labeled as a distruption swinging on chairs shouting out sometimes I sware he dosnt even know he’s doing it! I don’t think he’d get an ehcp though let’s get his Dla hopefully over the line before I think about anything else x I wasn’t even gunna bother with dla but he’s last 6 months been awfully funny with clothes and shoes and they are not cheap and im
a single parent so was left with not much choice

If he’s requiring more support than other children regardless of diagnosis they should have at least a plan in place to help him. You can request for an EP to come and assess him, usually the school then takes advice from them to support your child better. My sister done the same with her son, no diagnosis, but has extra support to help him at school

SKB12 · 28/11/2024 12:59

Kc1999x · 28/11/2024 12:36

Oh it is. I have a 2 year old girl and she’s hitting all targets, talking and even potty trained. It’s like I’ve done two different types of parenting. My boy can’t even put on a pair of shoes or dress himself, or even speak🥺 but my little girl can do it all. My 16month old is speaking now aswell. It’s so bitter sweet. Wouldn’t change my son for the world but I pray one day I hear his voice

That’s very sad 😢 obviously you’re happy when your children are thriving but it highlights even more the one who is struggling. I often wonder if my son notices and how it makes him feel. We treat them all the same but again we are aware of his limitations and ability or lack of to enjoy the same as the others.

sjay1017 · 28/11/2024 13:00

Kc1999x · 28/11/2024 12:39

If he’s requiring more support than other children regardless of diagnosis they should have at least a plan in place to help him. You can request for an EP to come and assess him, usually the school then takes advice from them to support your child better. My sister done the same with her son, no diagnosis, but has extra support to help him at school

who go to to request an ep? X

SKB12 · 28/11/2024 13:00

unless people update as they day goes on its been a fairly slow week hasn’t it

Please create an account

To comment on this thread you need to create a Mumsnet account.

This thread is not accepting new messages.