Please or to access all these features

SN children

Here are some suggested organisations that offer expert advice on special needs.

DLA WAIT TIMES THREAD 56

994 replies

Ceb2018 · 21/11/2024 12:46

DLA waiting times continue from thread 55

OP posts:
Thread gallery
5
Kc1999x · 24/11/2024 10:56

Hanacrusis · 24/11/2024 10:40

I just saw that, I’m hoping that they just aren’t really sending texts and that’s why we haven’t heard anything

fingers crossed I have a good feeling about this upcoming week🙏 I’ll probs be disappointed come Friday but we move😂😂

HRL · 24/11/2024 11:02

s39 · 24/11/2024 10:21

Same as mine x
any updates for you?

No not had any updates but thinking it’s going to be a while before we hear anything x

Stillwaiting2 · 24/11/2024 11:02

@s39 yes they told me I have untill 30/12.
she said as it’s with a dm already it could be done today tomorrow next week or even 1 day before your 20 weeks is up. Think they just tell you anything to get you off the phone. im gonna call Friday for a update before I go on holiday and see if I get fobbed with something different

Tashanddaryn · 24/11/2024 11:05

Tashanddaryn · 23/11/2024 12:22

Hello i currently get hrc and reapplied for mobility and hes since turnt 5 in july . Im still awaiting decision scan dated 4/7
My question is has anyone been sucsessful getting awared based on smi rules ?
My son has asd , sensory procsessing disorder , developmental language disorder ( he can speak but its more his understanding of language) he has dyslexia too but is too young for formal assessment .
He recieves high rate care for various reasons.
I have applied for mobility on the basis of exstreme challenguhg behaviours outside wereby he phisically attacks me and peoples propery . Anything can trigger these epesodes from noise to a tiny bit of mud of his shoes .
He not only becomes agressive and needs restraining to protect myself and others but he needs restrainung due to running in any direction he feels like when having a episode . Even when he is calm he can be unpredictable and if he sees a object in the middle of the road he will run out to investiage despite trying to stop him this again leads to having to restrain him wile he is kicking and punching me in the street .
Wr can be crossing a road and a loud moterbike will ve heard and he will stop still holding hos ears and start stimming in the middle of the road and wont move ( by this time the traffic lights are green and cars are been thiet horns making him worse and agaun resukys in having to retrain him .
When he does walk its exstremly slow and despite leaving at differnt times mornings for school is is over 30 mins late for school each day if i have managed to get him t9 leave the house at all that is.
Had anyine been awared under smi for these type of behavioirs ?
Any advise would ve greatly appreciated please

Anyone ???

Hanacrusis · 24/11/2024 11:14

Kc1999x · 24/11/2024 10:56

fingers crossed I have a good feeling about this upcoming week🙏 I’ll probs be disappointed come Friday but we move😂😂

I thought that last week 🤣

s39 · 24/11/2024 11:16

Stillwaiting2 · 24/11/2024 11:02

@s39 yes they told me I have untill 30/12.
she said as it’s with a dm already it could be done today tomorrow next week or even 1 day before your 20 weeks is up. Think they just tell you anything to get you off the phone. im gonna call Friday for a update before I go on holiday and see if I get fobbed with something different

Let us know how you get on x
Good luck everyone waiting hope there is lots of rewards this coming week X

Kc1999x · 24/11/2024 11:19

Tashanddaryn · 24/11/2024 11:05

Anyone ???

I’ve seen a lot of people on Facebook awarded under SMI. They have evidenced the flow chart in order to receive it. As long as you evidence everything on the chart your child may qualify

Kc1999x · 24/11/2024 11:20

Hanacrusis · 24/11/2024 11:14

I thought that last week 🤣

Yes me every week since 15weeks😂 if I don’t laugh I’ll cry tbh

Hanacrusis · 24/11/2024 11:21

Kc1999x · 24/11/2024 11:20

Yes me every week since 15weeks😂 if I don’t laugh I’ll cry tbh

Yeah that’s how we survive as SEN parents right? 🤣

Tashanddaryn · 24/11/2024 11:21

Kc1999x · 24/11/2024 11:19

I’ve seen a lot of people on Facebook awarded under SMI. They have evidenced the flow chart in order to receive it. As long as you evidence everything on the chart your child may qualify

Thankyou ! What is the flow chart ?? X

Kc1999x · 24/11/2024 11:23

Tashanddaryn · 24/11/2024 11:21

Thankyou ! What is the flow chart ?? X

This is the SMI chart. You have to evidence everything on it or your child won’t qualify

DLA WAIT TIMES THREAD 56
Kc1999x · 24/11/2024 11:24

It’s probably blurry however you can find it online for clearer view

Kc1999x · 24/11/2024 11:24

Tashanddaryn · 24/11/2024 11:21

Thankyou ! What is the flow chart ?? X

And you have to be very clear that you applying under SMI. They seem to always by pass it. That’s why I’m doing an MR currently

Carson2504 · 24/11/2024 11:33

I just don’t feel very hopeful now. With 2 different people saying was with a DM last week but still not had any txts or phone calls. I know they don’t always, but just taking it as a decline now. 19 weeks 2 days. 12/07. I won’t be calling anymore now as working 9-5 tomorrow and Tuesday. Good luck all xxx

AKD · 24/11/2024 11:36

Carson2504 · 24/11/2024 11:33

I just don’t feel very hopeful now. With 2 different people saying was with a DM last week but still not had any txts or phone calls. I know they don’t always, but just taking it as a decline now. 19 weeks 2 days. 12/07. I won’t be calling anymore now as working 9-5 tomorrow and Tuesday. Good luck all xxx

I’m also the 12/7 haven’t heard nothing, don’t lose hope!

Tashanddaryn · 24/11/2024 11:38

Kc1999x · 24/11/2024 11:24

And you have to be very clear that you applying under SMI. They seem to always by pass it. That’s why I’m doing an MR currently

Thankyou , dam i dident ask for it under smi i just filled rhe form i did add as nuch evidence as poss tho and a few syatements from family eho have witnessed the behavioir , we have a family suppprt worker in place for him because we struggle so much as a family due to his needs and outbursts ! I do hope the dm calls the family suppprt worker as only last week when he had a outburst in the street it was so bad i cried on the phone to her she was on the phone to be over 45 mins talking me through stratagies to calm him down once i got him home i had to remove the family from the room he was in wile he was smashing things and hitting walls , he put his fist through a computer screen wile on the phone to her ! She kinda witnessed the whole event. It took me and tye family support worker over 45 mins to calm him down then tall throigh his emotion cards after ti get him to reflect on his emotions and how he could have better presented them . I did call in dla and report the event sonits logged but was too late in the claim to send it in writing . Wr have a tam meeting this tues to discuss way forwards and hes struggling with the structure of year one so bad . But know not all dm will call out to people So prob be a mr coming my way! He does seem to fit the crieria tho! I hope you get sucsess please do keep me updated on yours and fingers crossed you get the award your child needs xx

Carson2504 · 24/11/2024 11:51

AKD · 24/11/2024 11:36

I’m also the 12/7 haven’t heard nothing, don’t lose hope!

It’s just seeing people get txts or calls with dates same or after. I didn’t have much evidence for my 11 year old. Just the acceptance letter into Camhs and the schools input etc. xxx

Mum21056 · 24/11/2024 11:58

Does anyone what date they pay us back to? Is it the date it’s scanned in?

PollyH3 · 24/11/2024 12:03

Carson2504 · 24/11/2024 11:51

It’s just seeing people get txts or calls with dates same or after. I didn’t have much evidence for my 11 year old. Just the acceptance letter into Camhs and the schools input etc. xxx

I'm sd 8th July and as of Friday at 4 30pm there was still no decision made. It doesn't mean a decline. They all go to different decision makers, and some are a lot slower than others. So some get done while others are still waiting. It's so disheartening but hang in there. I'm 20 weeks tomorrow and calling to get it escalated (although they may make me call back Tuesday as they'll say they have until the end of tomorrow to make a decision)

SKB12 · 24/11/2024 12:04

Hanacrusis · 24/11/2024 10:41

I’m clutching at straws but hoping medication might help hence wanting the private diagnosis ASAP

That’s entirely justifiable. Are school able to chase? Ours apparently have but they can’t speed up the wait times unfortunately

Stillwaiting2 · 24/11/2024 12:06

I’m not sure if my daughter will qualify if I’m honest, thinking it’s a decline. She’s nearly 12. I didn’t have anything apart from school passports and the schools input, they put in they sent a referral off for autism & adhd. Then my input. The passports and the schools input in the forms did detail a lot tho. Just Hoping it’s enough

seen so many declines lately. More girls aswell

SKB12 · 24/11/2024 12:09

Tashanddaryn · 24/11/2024 11:38

Thankyou , dam i dident ask for it under smi i just filled rhe form i did add as nuch evidence as poss tho and a few syatements from family eho have witnessed the behavioir , we have a family suppprt worker in place for him because we struggle so much as a family due to his needs and outbursts ! I do hope the dm calls the family suppprt worker as only last week when he had a outburst in the street it was so bad i cried on the phone to her she was on the phone to be over 45 mins talking me through stratagies to calm him down once i got him home i had to remove the family from the room he was in wile he was smashing things and hitting walls , he put his fist through a computer screen wile on the phone to her ! She kinda witnessed the whole event. It took me and tye family support worker over 45 mins to calm him down then tall throigh his emotion cards after ti get him to reflect on his emotions and how he could have better presented them . I did call in dla and report the event sonits logged but was too late in the claim to send it in writing . Wr have a tam meeting this tues to discuss way forwards and hes struggling with the structure of year one so bad . But know not all dm will call out to people So prob be a mr coming my way! He does seem to fit the crieria tho! I hope you get sucsess please do keep me updated on yours and fingers crossed you get the award your child needs xx

I didn’t specify either. I would think that the evidence submitted would speak for itself along with his RISE referral for mental health concerns. Family support worker can certainly inform them of your struggles along with what she herself has witnessed. We will take to tribunal if we aren’t successful as I know a lot of kids with autism are incorrectly awarded LRM. My son has violent outbursts like yours. We find leaving him to calm down of his own accord and just speaking to him from a distance so he knows we are there helps a little.

PollyH3 · 24/11/2024 12:11

Stillwaiting2 · 24/11/2024 12:06

I’m not sure if my daughter will qualify if I’m honest, thinking it’s a decline. She’s nearly 12. I didn’t have anything apart from school passports and the schools input, they put in they sent a referral off for autism & adhd. Then my input. The passports and the schools input in the forms did detail a lot tho. Just Hoping it’s enough

seen so many declines lately. More girls aswell

If it gives you a bit of hope my daughter is 8 and was awarded back in June and all I had was school wrote the someone who knows your child, and referral letters. So got everything crossed for you

Hanacrusis · 24/11/2024 12:27

SKB12 · 24/11/2024 12:04

That’s entirely justifiable. Are school able to chase? Ours apparently have but they can’t speed up the wait times unfortunately

They won’t even consider ADHD assessment here until they’ve had ASD assessment

Stillwaiting2 · 24/11/2024 12:30

@PollyH3 thanks polly. Yes school filled that bit out and stated they sent a referral and that was in July. Haven’t heard anything so don’t have a referral letter or anything to send 🤦‍♀️ just hope that her passports is enough.