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DLA WAIT TIMES THREAD 55

1000 replies

zoeybrooks45 · 13/11/2024 18:06

Hello everybody, I have made a new thread please put in your scan date, hopefully we hear some good news this month. please be kind and feel free to share scan date, entitlement award and what child is diagnosed with as others in similar position can feel uplifted in these stressful times. 💐

New claims (NC) are taking ‘around’ 20 weeks.
Mandatory Reconsideration (MR) & Change Of Circumstances (COC) between 20-25 weeks approx.
Renewals between 15-20 weeks approx
tribunals: when you disagree with MR and are considered by a court

scan date (SD) date form was scanned on the system and counting weeks for decision

original claim date: date you called up for the forms and you will be backdated

UC : universal credit
DWP: department of work and pensions
DM: decision maker; the person who assesses each claim and awards/decline a case

number for an update (0800) 121-4600

currently we are beginning of July and some last June dates! xx

OP posts:
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Chels2020 · 21/11/2024 06:59

AugustLily · 21/11/2024 03:05

Positive post! S/D 11/07, woke up and I can see a pending transaction from DLA due for tomorrow. I can't believe that the wait is finally over. Good luck to everyone and I hope that everyone gets this outcome.

Congratulations hun :) xxx

Kc1999x · 21/11/2024 07:20

MelTom88 · 21/11/2024 06:41

I'm in the process of tribunal for my 3yo on mobility side.
You can only claim hrm for under 5s. I was told it was due to the amount of supervision guidance and awareness of dangers any under 5s have.
To get hrm they need to be virtually unable to walk or have a severe mental impairment.
As been said above, they are so strict and generally decline the claim (hence I'm now at tribunal stage)
I had consultant paediatrician write supporting letter stating his severe mental impairment and occupational therapy state how my son is. Along with the documents for his sedatives, padded helmet and safe space bed.
I've now gone all the way as he does fit all 6 criteria under the smi rule.
Here's to the next set of waiting for me x

SMI & VUW are the two behavioural criteria’s that you can go down for HRM not the only two ways to qualify.
there’s also-
not being able to walk at all
Having no legs/feet
blind or severely sight impaired
Being blind and deaf
there’s a little more to each point but that’s in short

Grolma20 · 21/11/2024 07:21

sjay1017 · 21/11/2024 05:46

Hey guys could I ask some advice? My son is diagnosed autism and he is struggling with a ta in school,
he is stimming so bad as she took his break away the other day for talking when he said he wasn’t it was another child talking to him, this has really affected him. She told him off on the first day back at school in September and he never met her before for tapping a pen on the table. I have informed senco but nothing seems to be being done.
unfortunately when my son stims it involves licking lips to an point he makes them so chapped and sore. We are currently at this point. His lips are so bad, and he isn’t stopping, I feel like giving him a couple days off school to heal his lips as it’s windy and cold as well, it will get worse.
they are splitting and bleeding, it’s so horrible to see and he isn’t stopping coming home from school with them worse everyday. I’m treating them with Vaseline etc but it’s not helping.
i just don’t want to get in the habit of time off when he struggling with something if get me as we could then have school refusal.
he is a twin as well and my other son will have to go school.
I just don’t know what to do.
also children are laughing at him saying boys don’t wear lipstick, I’m angry as well to be honest as this is a bloody ta fault

Edited

Hi, I’m a 1:1 LSA in a primary school. If you haven’t got a response from senco, you should get in touch with the headteacher and say you have a safeguarding issue. Tell them you want a better behaviour management plan as your son is struggling with the current behaviour managements in place. It is extremely unreasonable for your son to be told off for tapping his pen, I’d deffo raise that. Make your voice heard. Us mummies have more say over what happens in the classroom and what support is given then we think xxx

sjay1017 · 21/11/2024 07:46

Grolma20 · 21/11/2024 07:21

Hi, I’m a 1:1 LSA in a primary school. If you haven’t got a response from senco, you should get in touch with the headteacher and say you have a safeguarding issue. Tell them you want a better behaviour management plan as your son is struggling with the current behaviour managements in place. It is extremely unreasonable for your son to be told off for tapping his pen, I’d deffo raise that. Make your voice heard. Us mummies have more say over what happens in the classroom and what support is given then we think xxx

Thank you for this I’m giving him a day off today and ringing the school as he is expressing he is scared of this ta and afraid to talk at all now. He doesn’t haven’t great communication anyway without this added. So he is licking his lips to self sooth because he is uncomfortable with this ta and she in his class everyday. This is now physical impact as his lips are so bad, we have only had this once with one other teacher and he is in year 5. Thankfully that got sorted, but we there again.. drives me mad. X

PollyH3 · 21/11/2024 08:06

It makes me so sad that these teaching staff don't always understand our babies and their needs. I keep trying to explain to my dds school that she needs coregulation not 'telling off' because if you tell her off you've lost her for the entire day, where as if you help her Co regulate then you can get her back. A lot of the time it's the old school thinking of "they are being naughty so need to be told off otherwise you are letting them get away with it". With a SEN child they cannot help their behaviour when they are dysregulated, it is most definitely not a choice to be 'badly' behaved.
Morning rant over 🙈

PollyH3 · 21/11/2024 08:07

I am that person calling every day! Waiting for the lines to open. So happy for everyone awarded, but desperate for it to be our turn (sd 8/7 nc)

sjay1017 · 21/11/2024 08:33

PollyH3 · 21/11/2024 08:06

It makes me so sad that these teaching staff don't always understand our babies and their needs. I keep trying to explain to my dds school that she needs coregulation not 'telling off' because if you tell her off you've lost her for the entire day, where as if you help her Co regulate then you can get her back. A lot of the time it's the old school thinking of "they are being naughty so need to be told off otherwise you are letting them get away with it". With a SEN child they cannot help their behaviour when they are dysregulated, it is most definitely not a choice to be 'badly' behaved.
Morning rant over 🙈

I just spoke to schoolnand sen is ringing me back asap. As I mentioned safeguarding and no child should be scared of someone especially in a safe place like a school, they said this needs to be sorted, I suggested that maybe they need to intervene now and hold a meeting with the ta, sen and Leighton to move forward positively with this before the situation gets out of hand, they totally agreed they will be sharing this with the head as well! Seems as soon as you say safeguarding they listen, but you shouldn’t have to. Also I’m getting a behaviour plan as suggested by the nice lady above xx

Ivytor · 21/11/2024 08:34

I feel the exact same! Especially when seeing people on fb being awarded and their reward date is 28/08! They must really not do things in order of submission date

Chels2020 · 21/11/2024 08:35

@Kimh95 are you phoning today? Someone this morning got backpay for 11/07 which means they was done either end of last week or beginning of this week if it takes 3/5 days to get to us x

Kc1999x · 21/11/2024 08:37

PollyH3 · 21/11/2024 08:06

It makes me so sad that these teaching staff don't always understand our babies and their needs. I keep trying to explain to my dds school that she needs coregulation not 'telling off' because if you tell her off you've lost her for the entire day, where as if you help her Co regulate then you can get her back. A lot of the time it's the old school thinking of "they are being naughty so need to be told off otherwise you are letting them get away with it". With a SEN child they cannot help their behaviour when they are dysregulated, it is most definitely not a choice to be 'badly' behaved.
Morning rant over 🙈

my boy is currently waiting for a place in a specialist setting but attends a mainstream atm. And honestly his teachers are absolutely amazing. His key person for 1:1 absolutely adores him and he adores her, he’s happy leaving me to go to her every morning. And another of his teachers is actually the school senco, so I feel that I got lucky with the schooling. I visited numerous schools before asking for this one if specialist wasn’t available and I’m really glad I did. There’s no telling him off, they obviously have boundaries but it’s all re direction and if things are too much and he becomes deregulated to he point he can’t be spoken too, they asked for my permission to pick him up and remove him from the situation once sensory room or outdoor and water play. They keep me updated on everything throughout the day and have took so much time to get to know him and his additional needs which is a lot, and they are still learning new things about him as they go along. So I’m feeling quite blessed at how well trained his teachers are🥹

KingJoyce10 · 21/11/2024 08:37

SD 12/07
getting the kids ready for school and stupidly missed my phone, DM left a voicemail to say she needs some very important information to proceed and make a decision! Said keep my phone on and they will try again between now and 5:30pm 😩 I’m so anxious as I don’t know what that means, I didn’t miss anything off the form X

sjay1017 · 21/11/2024 08:40

Ivytor · 21/11/2024 08:34

I feel the exact same! Especially when seeing people on fb being awarded and their reward date is 28/08! They must really not do things in order of submission date

I’m 28/08 and I know I’m nowhere near getting a decision was told it probably won’t be before Xmas

Chels2020 · 21/11/2024 08:44

KingJoyce10 · 21/11/2024 08:37

SD 12/07
getting the kids ready for school and stupidly missed my phone, DM left a voicemail to say she needs some very important information to proceed and make a decision! Said keep my phone on and they will try again between now and 5:30pm 😩 I’m so anxious as I don’t know what that means, I didn’t miss anything off the form X

Don’t worry they have rang me twice with my two boys claims to check information and they both get hrc fingers crossed for you xx

sjay1017 · 21/11/2024 08:46

Katie1906 · 20/11/2024 18:22

Peeing on the seat 🤦‍♀️ my boy is 16 in 2wks....its like he uses a sprinkler! Never puts the seat up and when he does its the exact same on the seat...how, I have no idea! 😫 the wallpaper and paint picking is interesting to read, I just thought he was a destructive little swine. I've stood and watched mine do it, it's like he's talking to me but his hands have a mind of their own and he has no control of what they're doing if that makes sense to you. It's almost like an autopilot thing. Xx

It’s a stim and soothing for them, just like fidgets, it works the same hun xx

KingJoyce10 · 21/11/2024 08:47

Chels2020 · 21/11/2024 08:44

Don’t worry they have rang me twice with my two boys claims to check information and they both get hrc fingers crossed for you xx

Thank you! That makes me feel a bit better 🤣😬 I already have it in my head it’s a decline so anything positive is a bonus I guess lol xx

MelTom88 · 21/11/2024 09:00

Kc1999x · 21/11/2024 07:20

SMI & VUW are the two behavioural criteria’s that you can go down for HRM not the only two ways to qualify.
there’s also-
not being able to walk at all
Having no legs/feet
blind or severely sight impaired
Being blind and deaf
there’s a little more to each point but that’s in short

Apologies. I think I had just interpreted what I had been told which you're right, it is the behavioural criteria side of it x

Ivytor · 21/11/2024 09:06

I’m the 6/8 new claim, been told different things like “definitely before Christmas” and “I have no idea why someone would tell you before Christmas” hahaha x

Chloe132 · 21/11/2024 09:07

Sd 12 july coc
Just called they said there's still no decision and if I don't hear by the 29th witch is 20 weeks to call back

Kimh95 · 21/11/2024 09:09

Chels2020 · 21/11/2024 08:35

@Kimh95 are you phoning today? Someone this morning got backpay for 11/07 which means they was done either end of last week or beginning of this week if it takes 3/5 days to get to us x

I want to but Im going to try hold off till next week only 18 weeks today. Saying that I’ll probably change my mind by the afternoon and call them😂😂 are you going to? X

KingJoyce10 · 21/11/2024 09:13

Chloe132 · 21/11/2024 09:07

Sd 12 july coc
Just called they said there's still no decision and if I don't hear by the 29th witch is 20 weeks to call back

I was told this yesterday! And I’m now waiting for DM to call me today as missed it this morning x

sjay1017 · 21/11/2024 09:15

Ivytor · 21/11/2024 09:06

I’m the 6/8 new claim, been told different things like “definitely before Christmas” and “I have no idea why someone would tell you before Christmas” hahaha x

I don’t think they said before Xmas I think they said probably not this year as my 20 weeks isn’t till 7th jan and that’s how long they are talking! Just I know I won’t get it before Xmas, which would helped my family loads like many others xx

Kel3270 · 21/11/2024 09:15

Katie1906 · 20/11/2024 18:22

Peeing on the seat 🤦‍♀️ my boy is 16 in 2wks....its like he uses a sprinkler! Never puts the seat up and when he does its the exact same on the seat...how, I have no idea! 😫 the wallpaper and paint picking is interesting to read, I just thought he was a destructive little swine. I've stood and watched mine do it, it's like he's talking to me but his hands have a mind of their own and he has no control of what they're doing if that makes sense to you. It's almost like an autopilot thing. Xx

I live in a house with 5 children , ages 6months, 8y, 10y, 11y and 35y (this one is 3 months older than me) and not one of them remembers to put the seat up in the morning!! Not one. Pretty sure they go in a helicopter at this point!!

Kel3270 · 21/11/2024 09:16

BoyMummy2024 · 20/11/2024 17:14

Iv been following this for a couple of weeks now and firstly can I just say how amazing you all are with the support you give each other 🫶… my forms dated 5 June .. scan date was 11th July … I caved and rang on Monday and was told it was in a holding cue .. then I’d missed calls this morning I rang the number that was in the text I think I went straight through to the decision maker and he just verified a couple of security questions then asked if my son was still waiting for to be assessed then asked me for my bank details as the system was saying incorrect id put a wrong number ..then told me id receive a letter in a week … my mind was thinking it can’t be a no if he needed my bank details… played on my mind all day so gave in and rang … he’s been awared hrc lrm so happy … im in the middle of changing over to uc … what do I need to now … seen and few things on here about an element and a carers thing I don’t want to get it wrong … do I wait for the letter before telling them too?
thank you

Congratulations 👏 you will need to call the benefits your currently recieving for a back payment and when applying for UC you will need to declare that your child receives DLA and you care for them x

Chels2020 · 21/11/2024 09:27

Kimh95 · 21/11/2024 09:09

I want to but Im going to try hold off till next week only 18 weeks today. Saying that I’ll probably change my mind by the afternoon and call them😂😂 are you going to? X

I was thinking the same very tempted to call 🤣🤣 if people are getting payments they maybe on our week (hopeful thinking at this point in time) 🤣🤣 xx

PollyH3 · 21/11/2024 09:30

Just called, still no decision. She said I should definitely have a decision between now and the end of Monday as that's when I'm 20 weeks, although I am most definitely not filled with confidence that that's going to happen.

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