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Here are some suggested organisations that offer expert advice on special needs.

DLA WAIT TIMES THREAD 48

974 replies

OneGreenBird · 30/06/2024 14:40

Time for a new thread ready for another week of waiting.
Hopefully lots of us get the results we're so desperately awaiting 🤞🏻❤

OP posts:
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6
OneGreenBird · 11/07/2024 11:38

Mamof2devils · 11/07/2024 11:28

It wasn't aimed at you no.. the ones who have been doing it haven't commented on thread since I mentioned it, I no some people won't agree and some people will agree I didn't want it to cause people distress just wanted to warn people some people ain't what they seem, sorry about your son, my oldest lashes out aswell it's never ending you feel like you have to tiptoe around them as anything little thing can set them off 😳

I get what you're saying, I really do. I wasn't trying to upset or fall out with anyone either. Emotions are high when you live the lives we all do!
Thank you, appreciate the understanding and same to you, it can be really draining cant it. Yes!! That's exactly how I feel too and mines only 2.5 so I imagine its only going to get harder as time goes on. Its unlike anything I've ever experienced, I regard myself as a strong person but this breaks me, not the care but being hit, watching him want to hurt me with no understanding of if its even upset me and also I hate seeing him upset when its going on, bless him.
It goes against all my parenting instincts too because if my oldest had hit me when she was his age I would of told her off and explained why it was wrong and she would of understood but I dont even know how to handle it when he lashes out because he doesn't mean it/understand it. Its really getting me down!

Im glad we were able to sort things out, I hate falling out with others!

OP posts:
MrsMacmumto6 · 11/07/2024 11:40

This has gotten way out of hand. I asked the original question about priorities that was a simple thought that popped into my head while typing (and as a teacher I should know better) I should have thought a little more about it before I spoke. Everyone’s opinion or thoughts on everything is going to be different in some way. We are all different people from different walks of life but one thing we all are is adults. Let’s leave the salty words for the Facebook groups and get back to hearing positive scan dates.. best of luck to those still waiting

Mamof2devils · 11/07/2024 11:56

OneGreenBird · 11/07/2024 11:38

I get what you're saying, I really do. I wasn't trying to upset or fall out with anyone either. Emotions are high when you live the lives we all do!
Thank you, appreciate the understanding and same to you, it can be really draining cant it. Yes!! That's exactly how I feel too and mines only 2.5 so I imagine its only going to get harder as time goes on. Its unlike anything I've ever experienced, I regard myself as a strong person but this breaks me, not the care but being hit, watching him want to hurt me with no understanding of if its even upset me and also I hate seeing him upset when its going on, bless him.
It goes against all my parenting instincts too because if my oldest had hit me when she was his age I would of told her off and explained why it was wrong and she would of understood but I dont even know how to handle it when he lashes out because he doesn't mean it/understand it. Its really getting me down!

Im glad we were able to sort things out, I hate falling out with others!

It's okay we all under pressure 😊
And yeah I totally understand we're you coming from and it gets harder as the days go on.. my oldest is nearly 6 now and he started from nursery age, the meltdowns get worse they brake things more frequently and they get stronger so harder to restrain, hes autism diagnosed not adhd diagnosed as yet just waiting but at his autism assessment they said he does have that aswell but can't give him diagnosis till he 6, he's sensory issues walks on his tiptoes also wets bed and never sleeps he's very violent no sense of danger and it's getting worse every day, I do think its got worse since he feels more comfortable in himself now and does not mask anywhere anymore.. my younger is the same apart from he don't hit me he hits himself head butt's walls etc but he don't speak where older one does, it's very hard to get through especially once they given a diagnosis they basically discharged from all service, I was given older ones diagnosis and some leaflets then that was that, hes now got cahms and people involved again due to adhd assessment needed, younger one as speech cahms peads etc but will change when he's diagnosed. It's wrong as we're treat like we no what to do with these special children and we don't have no idea we have to learn as we go along, I read alot of things on threads like this to try help me manage my 2 boys somethings work somethings don't but it's better to seek help from people actually going through the same as you than read the stupid leaflets they give you, you feel awful when they behaving the way they do but you also feel like a horrible mum when you try to punish them as they don't understand but they can't rule the roost either, I'm finding at the minute they love to garden so we dug a patch in the garden and they growing things init soons they start to show like a meltdown is going to happen I say quick wellies on you ain't watered your garden it helps 90% of the time.. I find you have to try find a distraction before it turns into full blown meltdown, I no its easier said than done but hopefully you find something that helps your little one

Murphy47 · 11/07/2024 12:00

MrsMacmumto6 · 11/07/2024 11:40

This has gotten way out of hand. I asked the original question about priorities that was a simple thought that popped into my head while typing (and as a teacher I should know better) I should have thought a little more about it before I spoke. Everyone’s opinion or thoughts on everything is going to be different in some way. We are all different people from different walks of life but one thing we all are is adults. Let’s leave the salty words for the Facebook groups and get back to hearing positive scan dates.. best of luck to those still waiting

Edited

Well said good luck and 🤞 to everyone still waiting 🍀x

Holly3020 · 11/07/2024 12:53

This reply has been deleted

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Mamof2devils · 11/07/2024 12:58

This reply has been deleted

Message deleted by MNHQ. Here's a link to our Talk Guidelines.

If you bothered to read the full posts you will see we have put our differences aside so stop trying to get your pennies worth in bringing it back up when it's been sorted 😊👍🏻

Miracleoracle · 11/07/2024 12:59

I am awaiting the 19/3 scan date. ADHD diagnosis with academic difficulty. Called yesterday to be told in correct pile but no movement.

Holly3020 · 11/07/2024 13:01

Mamof2devils · 11/07/2024 12:58

If you bothered to read the full posts you will see we have put our differences aside so stop trying to get your pennies worth in bringing it back up when it's been sorted 😊👍🏻

No mate not bothered reading full posts because it’s pathetic it’s all that keeps popping up 😂.

Mamof2devils · 11/07/2024 13:01

Miracleoracle · 11/07/2024 12:59

I am awaiting the 19/3 scan date. ADHD diagnosis with academic difficulty. Called yesterday to be told in correct pile but no movement.

Hopefully you here something soon, they are working weekends to get through backlog although you can't ring up weekends they are still getting through some

Mumof2boys84 · 11/07/2024 13:03

Parking 15/4. Wait times are horrendous not great when you have anxiety.

Reading some of these comments and I honestly see where both sides are coming from but maybe we should just stick to being nice and helpful, rather than arguing. I think we have enough to deal with, with our children that have extra needs.

Maybe it’s time for “thread 49”😁

Mamof2devils · 11/07/2024 13:05

Mumof2boys84 · 11/07/2024 13:03

Parking 15/4. Wait times are horrendous not great when you have anxiety.

Reading some of these comments and I honestly see where both sides are coming from but maybe we should just stick to being nice and helpful, rather than arguing. I think we have enough to deal with, with our children that have extra needs.

Maybe it’s time for “thread 49”😁

We have sorted it out and yeah I agree do you want to do the honors of making it thread 49 ☺️

Mumof2boys84 · 11/07/2024 13:09

Mamof2devils · 11/07/2024 13:05

We have sorted it out and yeah I agree do you want to do the honors of making it thread 49 ☺️

Edited

Glad to see it’s all sorted now and I’m new here so only just starting to work this all out 😂 Hopefully someone else might be able to help!

Miracleoracle · 11/07/2024 13:10

Mamof2devils · 11/07/2024 13:01

Hopefully you here something soon, they are working weekends to get through backlog although you can't ring up weekends they are still getting through some

thank you. I read you work for UC - me too . Different department to you (I believe from your description you’re RR?) I do sympathise with them entirely as the backlog is horrendous. Still frustrating as anything for everyone though.
hopefully we all hear soon my anxious brain is in overdrive currently.

Kelbizz · 11/07/2024 13:15

We have the same SD hopefully hear something soon

Mamof2devils · 11/07/2024 13:24

Miracleoracle · 11/07/2024 13:10

thank you. I read you work for UC - me too . Different department to you (I believe from your description you’re RR?) I do sympathise with them entirely as the backlog is horrendous. Still frustrating as anything for everyone though.
hopefully we all hear soon my anxious brain is in overdrive currently.

Yeah I work for uc.. what part do you work in?. and the wait is horrible you think they would update system as everything else is online would be so much quicker and easier, hopefully it's not much longer for you ☺️

Mamof2devils · 11/07/2024 13:24

Mumof2boys84 · 11/07/2024 13:09

Glad to see it’s all sorted now and I’m new here so only just starting to work this all out 😂 Hopefully someone else might be able to help!

I no how to comment and that's it myself 🙈🤷‍♀️🤣

Billie87 · 11/07/2024 13:50

@KB1994SD are you a priority claim? Bear

Vic747 · 11/07/2024 14:04

KB1994SD · 11/07/2024 11:14

SD 03/04
I’ve called today and they said its with the decision maker and I should hear back by the 25th of July.

the man did ask for my sort code the money will be paid into. Is this a good sign or just a security question?

I'm 2/4 this gives me hope

Murphy47 · 11/07/2024 14:06

Shannon1995x · 10/07/2024 20:41

Hi ladies I rung up today my scan date is 20/03 and got told that it is with the decision maker now and should hear back within the week ☺️ When I spoke to them last week they said could take up to the 7th august I’ve seen someone on here with same scan date got told the same thing so hopefully theirs will be with the decision maker now too

Hi my scan date is 20/3 I got told last week they were looking at it then this week I got told is taking up to 7 th august so who knows x I’m not going to ring again now for a couple of weeks just going to try and wait it out x I hope yours come through for you soon x keep us posted x🤞🍀

KB1994SD · 11/07/2024 14:06

@Billie87 No I don’t think so, my son is 3 possible asd and autism, speech and comprehension delay on the pathway for asd and is according to his nursery functioning at a 18-24 month level.

it might be because its all signed and dated early march by myself and his teachers as i was waiting for his paediatric report to come through. I printed it myself and was received by the 3rd of April

KB1994SD · 11/07/2024 14:11

@Vic747 good luck to you and everyone! Hopefully we wont be waiting too much longer

Murphy47 · 11/07/2024 14:15

🤞🍀

Murphy47 · 11/07/2024 14:16

KB1994SD · 11/07/2024 14:11

@Vic747 good luck to you and everyone! Hopefully we wont be waiting too much longer

🤞🍀

ArtfulJoker · 11/07/2024 14:18

@MotherAndDSon any news hun x

NimbleQuail · 11/07/2024 14:50

I’m ringing again. The wait is too stressful. SD 14/03.