I can totally agree with what's been said though, as this is my 5th or 6th thread since waiting and this is the ONLY one where people are so obviously looking for ways to recieve the highest award or asking how to get priority, you only have to see someone say they got hrc and people are straight on it asking how what evidence ect, if your have sufficient evidence then you should get the right award, I do believe people are missed or given wrong awards ( like people with no evidence getting awarded and people with loads get declined) but come on not every award is wrong and for people to say they don't want certain awards comes across they only want money because unless something is clearly wrong you should be happy with any award to help with your child's needs! I've seen people asking whether to send evidence from school ect because it doesn't fit their narrative.
This priority aswell, if people genuinely need it then fair enough but I think some try to use it just to skip the wait times. I could so go for priority, our household income has dropped dramatically I'm on maternity leave and won't be returning as my husbands just been diagnosed with a life changing disability so he's had to leave work to start treatments so I need to care for him, plus my child has anxiety, tics, depressive disorder on medications, on asd pathway (finally at teenage age and being lost in covid) been referred to salt, has specialised therapy at camhs, has soiling issues, runs away consistently (suspected pda), self harms, on melatonin as doesnt sleep without it sleeps a few hours with it and then is dangerous when awake so has to be supervised constantly and is in alternative provision within school. Not to mention they eat a rediclious amount of food whether given or not.
Their meltdowns this weekend alone as caused holes in the wall, drawing everywhere, bedroom door pulled off not to mention soiled clothes, bedding and things cut up (clothes) and that's just one day. But im still going to wait it out until theure awarded because others have been waiting longer. The arguments and deregulation is another thing, I'm hoping if they get dla I can build a sensory corner in their room to help deregulate and get communication aids because even though they're verbal they have no understanding of feelings and emotions and cant express these at all again they're a teenager not 3 or 4 where certain behaviours can apply for others their age, what they do i dont know any other teenagers to do (but obviously there are just not ones i know) I've been eligible to apply for years but never have just because I didn't want someone I didn't know judging me but something needed to change to get things they need and so I applied.
To say that there's not people out there who use and abuse the benefits system is being nieve. I've sent 15 plus pieces of evidence that probably equate to 60/70 pages and still worried it's not enough yet people send nothing and get awards, obviously got a certain way of filling the forms. (Told to base on worse day which I disagree with it doesn't give a proper sense of the childs everyday needs. My sleep diary I sent showed a night they slept all night, a night they didn't sleep at all, a night they ran away, a night they woke 2 or 3 times and the need to change and shower this was all in the same week and I feel accurately shows a weeks nights with the child. I could of sent one before melatonin where they literally slept a hour and was up but that doesn't reflect a week now)
Again after 5/6 threads this is the ONLY one that's been like this regarding award amounts and priority. It's no longer helping and supporting 😕