DLA WAIT TIMES THREAD 48

[OneGreenBird]

Time for a new thread ready for another week of waiting.
Hopefully lots of us get the results we're so desperately awaiting 🤞🏻❤

I see what you're saying, but some of us can't work because of our children's needs and the DLA money has to compensate for that. It's not ideal, but that's the way it is.

I'm here with you, same 2 neurodiverse kids that have to be literally watched every second I have them or they trash the house and kick hell out each other and it is haaaaaard! DLA won't change that for me, I'm by myself, my ex doesn't parent my kids because thier behaviour is embarrassing and disgraceful and won't have visitation with them so they got me, that's it. I pay for my kids, we get 35 quid a week from my ex and I use that to buy the kids takeaway on Fridays and give them pocket money. Dla is anything relating to my kids needs from thier disability that's all

I didn't say everyone on the thread I said some! And yes I do no the struggles I did work full time and had to drop to part time due to how exhausting it is surving on little sleep, and appointments you attend can claim travel expenses for theres signs up in the hospital and there is other help available out there other than dla, and yes it is my opinion that I'm voicing as some are making themselves look that way if you look at some of the comments lately they ain't actually greatful they have some kind of award for thier child they furious they ain't been awarded more, so yeah each to there own 😊

Horrible isn't it having to do it all alone and yeah I had to claim dla not as I wanted it or needed it but without it my children wouldn't get the help they needed what is not right at all, some people are on here wanting to no the ins and outs of everything so they can get everything given to them and yeah it's rattled a few cages but I'm only stating what others dernt lol.. and yeah some are making themselves look stupid and greedy 🤣

Yeah I totally agree with some people only have dla as they can't work etc and i hold my hands up to those people its not nice that's why I didn't say everyone I said some people.. I don't get why some people are only interested in how to get hrc hrm how to get priority what else can they get now they have dla it's just got me bit pissed off and I've voiced it

I honestly believe 99% of these people on these threads are genuine parents at the end of their rope with the ridiculous system but yea when you see an award made and it's not enough it's frustrating. My youngest got flat out declined the first time I waited 6 months and reapplied using exactly the same evidence and he was given HRC. I'm fully expecting my oldest claim to be declined because I am having to fight and fight just to get him a referral, they don't accept them here unless you have done every school intervention, early help and support groups so I have no official evidence of his needs outside of the amazing account written by his school. If he's declined for lack of evidence he doesn't qualify for the extra help in school but I cant get the evidence until I have proof of assessments etc which could take more than a year. I've been fighting 18 months already I'm tired but i we just gotta keep going.

I see everyone's point here

Tbh what irritates me is the posts that say "I know they're entitled to HRC & HRM" and so on and then playing the system when those of us with real needs and evidence have to fight ... just because you as a parent believe that, you have to back it up. Not for the money. But for your child's needs!

I was shocked at the rate my boy got, because he's only 2. But so so thankful as it helps us with the costs towards his travel & hotels for his appointments.

We all struggle in different ways with our SEN kids.

We just all want what's best for our kids

Fair enough. I get it, I only have one who sounds like yours and I'm lucky that his siblings are incredibly tolerant and good with him. I think the fact that people are being told different things all the time and the DWP aren't being transparent about waiting times is causing people a lot of stress. I do think someone needs to make a separate thread about updating UC (if they haven't already).

Didn't state everyone I said some!!.. reading through comments you see them and they all what can I claim now I have dla and furious they only been giving hrc or lrc etc with no evidence.. should be greatful they have been awared somthing and yeah I've had to go from full time to part time at work due to my kids doesn't mean I don't no what it's like to struggle.. and dla isn't going to make the way I struggle better my children are still up all night they still have meltdowns etc money isn't going to improve their disabilities 😳

Oh I have 2 that are dreadful morning non and night but money won't make that go away.. I new it would rattle a few cages but I did say some not everyone.. but read through comments you will get what I'm trying to say. Yeah the wait times are stressful ringing up getting lied to isn't nice either they need a major update on how to claim as paper isn't necessarily ideal anymore be quicker online where we could check on the progress ourselves

Didn't even want to involve myself but yes, we're all entitled to an opinion but why oh why did you have to voice yours when no one asked and ruin a perfectly nice thread where we're supposed to support eachother.
It almost seems like you're angry at people for wanting to claim what they're legally entilited to?
If we're all so "grabby" why is it suggested to you that you claim DLA by speech/language groups we attend, nursery's and doctors?
DLA is there to support the needs of SN children, as others have stated no it doesn't change their needs but it helps in terms of transport, equipment etc. Im so glad you manage your children's needs with bubbles and balls and in a way I get that I really do but each day is an up day battle for us and its only getting worse, I really am hoping things go well with his claim because there are so many things I would use HIS money for that would make both of our lives that little bit easier day to day so I maybe get one less smack in he face or he has one less meltdown, what youre saying almost implies our child's needs could be managed better if we were less focused on money and more loving, do you know how insulting that is? My son gets love, support, care and plenty of bubbles but given he's autistic, non verbal and has limited understanding of whats going on around him there's only so far love will go. Love is a given but it doesn't change his needs otherwise we'd all love our children's needs away and nobody would even need DLA anymore.
Im not relying on DLA, I was doing an open university course before he was born but his needs are so high I unfortunately needed to quit to be there for him. Im not waiting on the money, we survive each month but when suggested by his 1:1, I applied.
DLA is there to claim for a reason and you're rudely disputing these reasons and using them as a way to bash people who only want the best for their children, I find that really sad.
I know you'll say you didn't mean anything by it but think before you speak instead of thinking you're better than everybody else.
Look at it this way, you're in a good place financially stashing away your child's DLA for savings for them when they grow up VS someone using it to support there child's daily needs as its intended, but yeah im so glad you're able to use your child's DLA as a little trust fund 🙄 I know who I believe is more in need of DLA if I had to choose
Lastly, maybe next time you want to brag about your tory views try picking a Britain first group of something instead of a support group for parents of SN children, wrong crowd sorry.

Does anyone know what happens if your child is awarded when they are 4.5 years old? Do you immediately have to fill in all the paperwork again because they are eligible for lower rate mobility at five?

SD 12.3
Awarded 5.7

Seems a slow week

Haha this was thread for helping people but lately it's turned into anything but and I didn't state everyone if you read it properly I said some I'm not the only one thinking the same either the amount of private messages I've had over what I've just posted but if the shoe fits and you think it was aimed at you let it be.. and no its not a just fund for my children they have one of them already from day they were born.. and no my kids don't just play with bubbles and balls they have quads and ponies go 4 holidays a year days out every weeked but I didn't state how I treat my children.. if you read the comments you will see what I am on about certain people not everyone so get off your high horse coz you made this thread it wasn't even yours to start with silly women.. and no I don't think I'm better than anyone else at all my children are entitled to dla yeah not because I want it but had to have it in place for certain help they needed but if you can't see the greedy con artist on the thread maybe you need glasses 😊

Oh my word ladies ! Can we just agree to disagree here and go back to providing support. If you don’t like what’s on the thread then leave it. No one is making you stay. But for people like me who are navigating a system for the first time it’s proved invaluable to have the support of people going through the same

I couldn't agree more. It pained me to write that message because like you this thread has got me through, yes some people seem desperate but thats life when you have SN children, just a shame not everyone understands that.
I've been nothing to supportive to others in this forum, massive shame others cant do the same 😩

I totally agree. The way it's set up seems insane when pretty much everything else is online, you print off a form and send it to them only for them to scan it in at the other end?! What a waste of time, money and trees!

Wow this doesn't even warrent a proper reply you vile human being.
Enjoy your holidays and ponies, you're pathetic honestly.
Im not even going to begin to brag because its disrespectful but you're not the only one living a good life, the difference is attitude and you're honestly disgusting me with yours 🤢
You can carry on judging and I'm going to go back to supporting people who need it because im nice and I actually care, I dont see any con artists you mad head just people who are in need.

I am one of the ones asking about how to get my universal credit adjusted! And your support to others has been so lovely. I know I’m advocating for my child and that’s what I will continue to do. We all have our own struggles. Let’s come together for our children not against each other.

Sorry but I replied then put my phone down and laughed out loud at your reply, 4 holidays a year and ponies 😂😂😂 can you hear yourself. No wonder you're judging people, the only con artist I see around here is you. You're claiming DLA while clearly being loaded judging people who are eagerly awaiting there claim being approved because they're struggling. Omg I cant even 😂😂😂

Throwing out a long shot here ..

Don't suppose anyone else's child is visually impaired as well as other diagnosis like autism/GDD/ARFID etc?

And here’s me coming to moan about my award today for my daughter she’s entitled to HRC LRM so I’m probably going to get slated for this ,, I’m not by any means a greedy person either and not scamming !! But this is what my child is legally Entitled too I no this should be her entitlement because my other child gets it and was awarded HRC he is to young for mobility tho and their care needs are the exact same and she’s only been awarded MRC , it’s not even about the money because I’m being greedy it’s genuinely to help her and support her she doesn’t sleep is extremely violent deliberately injures herself by burning herself with things required hospital treatment for this and for excessively dangerous climbing where’s she’s split her head open doesn’t sleep well at all between an hour per night every night needs CONSTANT Supervision lots of prompting and assistance and support still in nappies she’s (5) I’ve never claimed for her before even tho she’s been entitled to it I’ve only claimed now as her needs have become more and more harder to handle and she’s damaging and destroying furniture which I can not keep replacing she throws objects attacks myself and others has 1-1 support at school has individual education plan at school speech and language reports acceptance for autism assessments and awaiting adhd referal at age 6

Wouldn't even worry about being skated

If you got the evidence etc deffo MR it!

This has been such an invaluable thread, it’s a shame to see it go this way. Let’s agree to disagree, everyone has an opinion but let’s not get nasty with it! I am one of those people that got put on priority and then asked regarding my UC, however everyone’s situation is so different and ultimately we are all just trying to navigate and support our children the best we can, if you don’t like what’s being posted then no one is forcing you to stay! The system is so silly and the frustration it causes is so clear and upsetting on these threads :( just to be clear I only asked re UC because this is all new to me and I have no idea what I’m doing, let’s all continue to support eachother and be kind! So much luck everyone’s way for some positives outcomes throughout the rest of the week!! Xxxx

Your so funny ain't you.. I work for every penny it's earned NOT given and that's why the money I get for dla is in a bank untouched and as for con artist hmm okay.. I didn't slate anybody but you took it upon yourself to take it was aimed at you so that's your problem not mine.. I have met some nice genuine people on here and others are just on for information how to fill thier application out to get what they can not my fault your blind and can't see these people.. your still going on about rubbish.. I don't need to brag what I have or haven't got but atleast I can say it's all earned not given.. i dont need dla no but have to have it or my children dont get the support needed.. also i donate to charity and help fundraise every year and every Christmas i give tobthe local toy appeal and make a hamper for feedling families even though my children have me worn i still help others where i can.. like I said before it wasn't aimed at everyone it was a certain few so no I'm not judging everyone at all so get back on your high horse and tell someone who gives a Dam what you like.. jealousy gets you nowhere and that's all your are they way you keep going hiding behind your keypad 🤣👍🏻