DLA WAIT TIMES THREAD 45

[Matilde08]

💗🤞🏻💐

I applied first week of December and had a payment into my account yesterday. A very long wait! Still no text/letter/ email to confirm that we've been awarded though.

He was rather happy!! And seemed helpful so maybe

So happy for you ❤️
amazing news

So I have just rang back and spoke to a different guy who was completely lovely and he explained that they did receive my application on the 20th of February and the 28th of March date was when they received extra information. He wasn't very happy with the first guy I spoke to and said he should have been doing his job properly. He apologised so much for him and told me that my application is with a decision maker and the latest I will get a decision will be 9th of July. So glad I called back!

Also congrats to everyone who's been awarded ❤️

Hi all,

SD - 27th Feb

Well I’ve just recd my first letter from DLA the standard one confirming scan date and it’s taking 15 weeks (yeah whatever it should read + 5 plus and some) lovely for them to let me l know 14 weeks after scan date they have 6 days left 😂 pigs will fly first! I did call a while back to confirm scan date as was worried it was lost.

I’ve just had a look on fb and there have been a few awards today ranging from 9th and 14th Feb X

Does anyone know how they decide each award?
is there any kind of system to awarding
LR, MR or HR? or is it literally just a case by case situation?

I think its middle care + low mobility x

some rewards today hopefully I get a decision soon my scan date is 15/02 and I’m really hoping for HRC, I don’t think I can go through all this waiting around again😫

@Ljstar thank you so much 🫶🏻☺️

In your MR do bullet points. I dont know how old your child is but im going to example 7.
The aids for bedwetting they are referring to will be pull ups. State either your child leaks through these or refuses to wear them. As such this causes 2 bed changes and more washing. Due to bed wetting child can get sores and has to wash every morning due to smelling. Child requires supervision with this. When wetting the bed it can take you 20mins to change bedding and child it then takes another 40 mins to settle back off.
Sleep walking. Although cupboards are locked, doors are locked and you have stair gates your child manages to open stair gates and get downstairs. This has caused xyz accidents to happen, find any report you can on child sleepwalking. Showing signs, symptoms and how they can still function in their sleep as they would awake 🤦🏻‍♀️. You really have to belittle and spell it out to them like your explaining to a child x

Thank you so much for your suggestions. I explained in my COC form that they wet the bed and require changing of sheets, washing and a change of nightwear through the night. I put on the form the amount of times this happens and how long it takes each time. Our child is in high school and there's no chance that they would agree to wear pull ups.

We don't lock our front door when we sleep - it can't be opened from outside without a key. We put the chain on at night but don't lock it with the key from the inside as I feel like we wouldn't be able to get out of the house quick enough should there be a fire for example. Our child if sleepwalking would be able to remove the chain and leave the house (this has happened in the past). They're's old enough and tall enough to be able to climb over a stair gate and get around most other humane safety devices that we can think of and this is why now, we take turns sleeping in the room with them.

It's quite frustrating that the forms ask you about bed wetting and wandering then respond to this by saying there's aids to help manage this.

Honestly i understand. You just need to fight back. And keep a detailed night diary. Print as many fact sheets as you can to add. You and your parent write statements on how its affecting you both and family. Its the whole family that suffers and they seem to forget that 💖

Congrats to the ones who have been awarded..💐 and sorry to hear some of you have been declined 🫂

I just again wanted to let you know how grateful I feel for your empathy, care, emotional support, encouragement, positive thoughts and prayers. It means a world to me... honestly 🫶🏻💗✨️💐 I ended up with extreme panic attack while did my grocery shopping later on today. Thanks to my hubby and some gardening was able to calm down. Even asked to my passed late husband to do something about this and help 😇

Oh sweetie im sorry to hear that 😔 hope you are doing okay now? No one truly understands how relaxing gardening is. Growing veg truly helped me last year. You have such a good man beside you 💖. Beautiful inside and out, never forget how strong you are. You are an amazing mum to your boys. Fight of a lion but heart of an angel 🌸

So sorry for all that you are going through. I don't post on here often but I have been keeping up with your journey. Praying and hoping you get your answers soon x

Aw... thank you for your kind words 💗 I'm a bit better now, but feel super drained by that all. I really need to focus on other stuff and duties, so.. yes, it's ridiculous they don't realise how much they affect our health while we still need to look after our special need children.
Garden is my therapy sometimes.. planting flowers, and just spending that time with my thoughts in piece. We went mental with veggies 2 years ago in our greenhouse, but realised we are too busy for that as it takes a lot of time and energy too look after it properly 😵‍💫😄

Thank you so much 💐 those positive thoughts and wishes means a lot 💛

Ah i bought my veg from rocket garden, put straight in the garden and just watered every so often 😂. All the guys at the gym were getting weekly veg handed to them 😂

That's awesome... 😄 we seeded a bit too much of everything and tomatoes especially went wild 🍅 but yes.. you can taste the difference, tasted way much better than the ones from shops

Hi do you know where you read that my claim was received 9/2 and I called today and still no decision 🤦🏼‍♀️

i'm so sorry you're going through this ❤️
panic attacks are awful. Definitely try and do some things that usually bring you peace and relax you. Easier said than done I know!

Joining @Matilde08 thread as I need to know how things work out for you ❤️ I have sort of caught up and see you and @Fee89 are still no answers as of yet keeping you in thoughts and will be checking in ❤️❤️ xx

Been following this thread. Scan date 28/02. Good luck everyone. Keeping everything crossed for us all 🤞🏼

I am so sorry to hear that their lack of care & empathy has resulted in this happening to you. How you are treated is absolutely disgusting. I so hope & pray that you get the outcome you all so desperately deserve. We shall all continue to send positive thoughts your way x