Please or to access all these features

SN children

Here are some suggested organisations that offer expert advice on special needs.

DLA WAIT TIME THREAD 43

1000 replies

Tracy37x · 15/05/2024 14:41

DLA wait time thread 43

OP posts:
Thread gallery
16
ADT13 · 17/05/2024 20:49

It is so sad when I see people getting rejected, and on the other hand, people chasing to be a priority because they need to refurbish their bathrooms, etc. (We all need help in one way or another.)

We are here because we have difficult financial problems, and any help will benefit our children; otherwise, we would have applied and not even cared when the result would be announced.

I hope this message didn't upset anyone because this is the reality in my opinion.

Scan date: 12/02 - called Monday, been told in three weeks.

Fee89 · 17/05/2024 20:59

ADT13 · 17/05/2024 20:49

It is so sad when I see people getting rejected, and on the other hand, people chasing to be a priority because they need to refurbish their bathrooms, etc. (We all need help in one way or another.)

We are here because we have difficult financial problems, and any help will benefit our children; otherwise, we would have applied and not even cared when the result would be announced.

I hope this message didn't upset anyone because this is the reality in my opinion.

Scan date: 12/02 - called Monday, been told in three weeks.

You can still be rejected after being made a priority 🤷🏻‍♀️

ADT13 · 17/05/2024 21:01

Fee89 · 17/05/2024 20:59

You can still be rejected after being made a priority 🤷🏻‍♀️

Yes but that is not the point.

Fee89 · 17/05/2024 21:03

@ADT13 People have the right to ask for priority. If it gets accepted or not is down to the managers and how urgent they deem it. If that wasnt the case then it wouldnt be an option to ask for.

ADT13 · 17/05/2024 21:06

Fee89 · 17/05/2024 21:03

@ADT13 People have the right to ask for priority. If it gets accepted or not is down to the managers and how urgent they deem it. If that wasnt the case then it wouldnt be an option to ask for.

What about we will all ask?
Will be a competition/race?

bloom1927 · 17/05/2024 21:09

ADT13 · 17/05/2024 21:06

What about we will all ask?
Will be a competition/race?

Everyone can ask but not everyone will get it. It’s up to the decision makers / managers to determine based upon circumstances, they don’t just pick priorities Willy nilly. That’s why they mark them as priority

Fee89 · 17/05/2024 21:11

ADT13 · 17/05/2024 21:06

What about we will all ask?
Will be a competition/race?

Ask, IF you have a need to ask.
I was a priority, so am i just as bad as everyone else?
You are the one seeing it as a competition.
We are all applying for the extra care our children need. And someone being in financial hardship means their child isnt getting that care they need. Btw im not being arsey etc just speaking (i know how text can come across)

ADT13 · 17/05/2024 21:18

bloom1927 · 17/05/2024 21:09

Everyone can ask but not everyone will get it. It’s up to the decision makers / managers to determine based upon circumstances, they don’t just pick priorities Willy nilly. That’s why they mark them as priority

Edited

Based on what arguments were made over the phone?

Anyway, this falls much more out of my oint. I will not discuss this further, as the purpose of this thread is not related to this.

Good luck to everyone in receiving a fair response/result from the DLA.

Summerrp · 17/05/2024 21:19

Everyones situation is different and isn't our place to judge who is marked a priority and who isn't. If someone is made priority I believe there is good reason and I'm more than happy for them. I have explained my financial situation to them I have no idea if this will make things any quicker, when people have to give up their job completely, get 0 help with housing, are single and have barely anything coming in to care for a child who requires substantial amount of care it's bloody tough waiting 15 or 20 weeks.

Also I don't know who it was but a safe bathroom and washspace for a disabled child is hardly a luxary. So good for them

bloom1927 · 17/05/2024 21:21

ADT13 · 17/05/2024 21:18

Based on what arguments were made over the phone?

Anyway, this falls much more out of my oint. I will not discuss this further, as the purpose of this thread is not related to this.

Good luck to everyone in receiving a fair response/result from the DLA.

I have no idea, only the person who spoke to the DM knows that, everyone’s circumstances are different regardless of finances and may be marked priority for a number of different reasons. Just trying to explain how it works, not having a go or anything

Fee89 · 17/05/2024 21:24

@ADT13 I'd happily discuss my daughters claim, if you would like me to then i can go into detail? Id be more than happy to. It may give an insight as to why some are priority.

bloom1927 · 17/05/2024 21:29

Fee89 · 17/05/2024 21:24

@ADT13 I'd happily discuss my daughters claim, if you would like me to then i can go into detail? Id be more than happy to. It may give an insight as to why some are priority.

You don’t need to justify yourself, you advocate for your childs needs who you know better than anyone and that’s no one else’s business x

ADT13 · 17/05/2024 21:32

Fee89 · 17/05/2024 21:24

@ADT13 I'd happily discuss my daughters claim, if you would like me to then i can go into detail? Id be more than happy to. It may give an insight as to why some are priority.

Sorry, I didn't mean that in any way, but the decision will only make a difference in time, like one week or two, I believe.
Sorry again, I didn't mean to involve anyone's children in the problem.

Fee89 · 17/05/2024 21:34

bloom1927 · 17/05/2024 21:29

You don’t need to justify yourself, you advocate for your childs needs who you know better than anyone and that’s no one else’s business x

No i dont need to but seems some people have a problem with it. Jealously over a child getting an award they deserve. And then stating fair response. What isnt fair is a perfectly healthy child becoming ill, it isnt fair for a mother to see drs sticking needles all over their child, it isnt fair a 9 year old almost had to go in a coma. And it sure as hell isnt fair that dla make you wait 3 months before you can even apply 🤷🏻‍♀️..........going back in my box xxxx

Fee89 · 17/05/2024 21:36

Urghhhh im now crying. I dont mean to have a go. Sorry 🌸

Aussielover · 17/05/2024 21:39

@Waiting1901 exactly, 3 hours is nothing when there is 24hrs in a day. The smi criteria for restraint does your child need to be stopped wandering in road etc x

bloom1927 · 17/05/2024 21:40

Fee89 · 17/05/2024 21:36

Urghhhh im now crying. I dont mean to have a go. Sorry 🌸

I 100% agree with you, some people don’t understand the realities of other people’s lives and that’s ok. You keep doing what you’re doing because you are doing the best you can, You wouldn’t be a normal parent without going through the wars for your child, Your little one is lucky to have you xx

Kell85 · 17/05/2024 22:05

ADT13 · 17/05/2024 21:18

Based on what arguments were made over the phone?

Anyway, this falls much more out of my oint. I will not discuss this further, as the purpose of this thread is not related to this.

Good luck to everyone in receiving a fair response/result from the DLA.

What’s a fair response? I’ve been made priority for legit reasons! Reasons being my sons school said they don’t have the facilities for him, he has been made to change schools and until I can find a school that can accommodate him I’m out of work. Is that not a priority? I don’t get any other benefits so that means ZERO income. So I think if they have accepted my priority then great. If I don’t pay bills or my rent then I’m homeless how is that giving my partially sighted, ASD, ADHD son everything he needs. People that keep complaining about others being made priority are really getting on my nerves. I’ve had to send proof my son is out of education, so if they accept me good for me because I don’t have anything else to fall back to on

Kell85 · 17/05/2024 22:11

Summerrp · 17/05/2024 21:19

Everyones situation is different and isn't our place to judge who is marked a priority and who isn't. If someone is made priority I believe there is good reason and I'm more than happy for them. I have explained my financial situation to them I have no idea if this will make things any quicker, when people have to give up their job completely, get 0 help with housing, are single and have barely anything coming in to care for a child who requires substantial amount of care it's bloody tough waiting 15 or 20 weeks.

Also I don't know who it was but a safe bathroom and washspace for a disabled child is hardly a luxary. So good for them

Edited

This is my situation right now. My son was in reception year from September, he had only been doing half days till November then they changed his hours to 2 hours a day and then in march said they can facilitate him or his needs. I’m a single parent and worked 24 years, I’m now out of work until he is in education again. The only income I get is my child benefit and that’s far from paying rent and and all my bills. I can claim universal credit and get an advance but I still have to wait 5 weeks for that to kick in. I have never wanted it to be like this, I hate being in financial difficulty, it’s embarrassing and it makes you feel like a massive failure so for anyone to comment stupid comments like that makes a hard situation even harder and makes the parent feel like absolute shit!

ADT13 · 17/05/2024 22:20

I am feeling really bad. I didn't even think about involving your kids in this situation.

I swear I didn't intend to do that. I know how challenging this situation is; I'm experiencing it too. But I understand that we're all under a lot of stress.

My main point is that we should wait one or two more weeks for those who aren't in the same situation. I didn't mean to imply anything negative. Please understand where I'm coming from.

Summerrp · 17/05/2024 22:21

@Kell85 I absolutely feel for you and understand because I'm in the same boat, it's a desperate feeling 😞 I sit at the nursery where my son can only manage one hour a day. The nursery want me to stay for the hour for now incase of meltdowns which happen very often. I know I have the stress of EHCP coming.
Had to leave my job of 12 years and due to my living situation in my childhood home I can't get any help with housing even though I pay full rent. These horrible call handlers need to remember people are in desperate situations when speaking down to people calling awaiting updates. Sending lots of love and hugs and I pray you get the support you need for your little one

Kell85 · 17/05/2024 22:25

Fee89 · 17/05/2024 21:24

@ADT13 I'd happily discuss my daughters claim, if you would like me to then i can go into detail? Id be more than happy to. It may give an insight as to why some are priority.

Don’t explain to anyone, you don’t need to. It’s getting on my nerves people keep bringing it up as well. If I didn’t have financial difficulty I would wait a year for a decision. Some cases deserve to be made priority. I would exchange DLA for my child being healthy any day of the week. Hope you’re ok, just keep being strong, I know it’s hard some days but just keep doing what you’re doing. Xx

BlueyMama · 18/05/2024 01:02

Claire11031982 · 17/05/2024 17:57

We're on week 15, almost 16. So worried that it'll be a decline due to no knowledge about it. I'm not holding my breath on the genetics team, I've just had to send off family history so they can build a family tree ready for June. They sent a questionnaire asking about any questions I may have when we see them. I've got absolutely loads of them so pleased they asked as I'm sure I'll have brain freeze when I'm face to face 😂
We've just had the riot in the doctor so I'm frazzled this evening.....roll on bedtime so I can have a couple of hours free before he wakes up constantly 😵‍💫

Hopefully you'll hear soon and 🤞🏻 it's an award!
That's really good they're doing that though, we just had an appointment and nothing else😅 it really wasn't that helpful for us unfortunately, I think with it widely not being known about there's not really much they can say or even do (unless severe) thats the jist I got from it anyway, but hopefully they can answer all your questions and help you, it's definitely a good idea to be prepared to get as much info as you can. I hope you managed to get some hours for yourself, my daughter has been a nightmare for sleep herself she has to be on with me atm and even then she's up throughout the night then awake first thing - it's so tiring. As bad as it sounds I cant wait till the kids are in bed just so I can relax for a bit, it's non stop isn't it!? Xxx

BlueyMama · 18/05/2024 01:13

Why are people getting annoyed at others being made a priority? We are all here for the same reason and we should be happy and celebrating others who get rewards even if they're SD is before our own, that shouldn't even matter!
DLA aren't just going to put anyone and everyone on as priority, only those than genuinely need it and I don't think there's any need for it to keep being mentioned🤷🏻‍♀️
Let's just all be supportive of eachother instead of being jealous, it really isn't a race..
I'm usually more of a lurker than a poster but this has came up a few times recently and it's grinding on me now.
If you cannot be supportive or get annoyed that people actually have higher needs and need to be a priority case then just don't say anything at all🤷🏻‍♀️
Don't want this to come across as rude but it's starting to really annoy me now.
Let's all just enjoy the weekend and hopefully hear of some rewards next week! :)

ADT13 · 18/05/2024 01:25

BlueyMama · 18/05/2024 01:13

Why are people getting annoyed at others being made a priority? We are all here for the same reason and we should be happy and celebrating others who get rewards even if they're SD is before our own, that shouldn't even matter!
DLA aren't just going to put anyone and everyone on as priority, only those than genuinely need it and I don't think there's any need for it to keep being mentioned🤷🏻‍♀️
Let's just all be supportive of eachother instead of being jealous, it really isn't a race..
I'm usually more of a lurker than a poster but this has came up a few times recently and it's grinding on me now.
If you cannot be supportive or get annoyed that people actually have higher needs and need to be a priority case then just don't say anything at all🤷🏻‍♀️
Don't want this to come across as rude but it's starting to really annoy me now.
Let's all just enjoy the weekend and hopefully hear of some rewards next week! :)

I did say I wouldn't reply to such messages, but you seem like a very frustrated person, throwing rubbish at others with no sense.
Check what my point was, think a bit, and maybe apologize?

Please create an account

To comment on this thread you need to create a Mumsnet account.

This thread is not accepting new messages.