DLA WAIT TIME THREAD 40

[Fee89]

DLA WAITING TIME 2024

It makes us unwell with worry doesn’t it? I’ve started feeling resentful when February applications are awarded. I’m not a horrible person but the longer I wait, the longer I feel it’ll be a decline and then another battle of MR and tribunal.

A little update from me: I wasn’t going to call again due to it always being “it takes 20 weeks so you’ve got another two weeks, call back next week we are just waiting for the teacher’s input”. Anyway, I called today and told the man that it’s making me unwell, that I’ve had a breakdown and now this is making things worse. I explained that I’m worried as she’s not yet diagnosed so it’s only my form, a diary and another letter from me that’s on the system.

This man put me through to a woman from DWP, she looked through the file and could see a lot of information (sent from me) so she said she’d send the case manager a message. She did so whilst I was on the call. I don’t think it’ll do anything but I was grateful. So 18 weeks and I’m still in their queue - I think it’s because the teacher sent the form to Freepost address and it’s not yet been scanned.

I know its hard but i'm glad you rang and spoke to them. She will off made you a priority to the case manager and you totally deserve to be!!! Id say call Tuesday late afternoon for an update if you can 💕

Thank you so much Fee, I will xx

I really do hope you get some good news! It is stressful, genuinely messes with your moods!
fingers crossed for you 🤞🏼❤️

Just called and been declined 2 days ago 😭 going to try and gather my thoughts and think I'll do a MR, just don't know if I have anymore fight left in me as my child masks heavily in school so we don't have any support there (asked for another meeting with senco so hopefully that'll change) but over 18 weeks wait to be a decline 😭

Hope everyone who's still waiting gets what their little one's deserve ❤️

So sorry your child got declined. Dont give up 💪 you got this xx

maybe a stupid question but on my first letter its dated 18/01 so i presumed that was my scan date... but on rereading it says "we received your claim on the 16/01"

so does that mean the scan date is the 16th or the 18th for when the letter was dated 😅

Ahhhh see this hurts my heart - and exactly what I’m expecting for my daughter’s claim too - because there’s no professionals involved and the masking in school. But you know as a parent that your child has more needs than a NT child and waiting for a diagnosis here takes 3 years 😢 and the masking in school because they’re terrified of being seen as different. I’m so sorry for you 😞 This is the first step but not the last. Gather your thoughts, gather your strength and on to an MR. Good luck xx

Snap!! The anxiety is high. Hoping to hear back by mid to end of next month based on what I've been reading. Then as soon as this one is over got my other little one I need to make an application for also. Give us strength!

Scan Date 30/1 & starting to get nervous that my boy will be declined! Sent every letter I had, preschool did an in-depth report, he gets inclusion funding & I sent his diagnosis letter but he has 15q13.3 microdeletion syndrome & nobody seems to know anything about it! Even Google is vague.....fingers crossed everybody in the same boat x

Called again… as apparently can’t help myself. Guy told me pretty much same thing at top of DM pile should have decision mid next week. I was told 2nd May so that fits. I worry it’s a decline as did say If I have more evidence can send it in.

What’s your scan date? Fingers crossed we’re not waiting too long for our babies

09/01 or 10/01 not too sure! I really hope so it feels like it has taken me forever to make people listen to me about my daughters needs. I was going backwards and forwards with various issues since she was born. Eating, growth, slight irregularities with her body shape, headaches and her behaviour. All health workers made me feel like I was an over anxious mum. She was the referred by school as they felt she showed signs of autism but masks well. Her consultant has been the first person to listen to me! She knew from meeting her I was right and did genetic testing. Shes 11 and been diagnosed with Turner syndrome, AFRID, high blood pressure and sight deterioration. Consultant has agreed she is autistic but just waiting for last bit of her assessment to be completed which should be next year!

@Fee89 Thank you! I'm going to have a few days and then fight for what she deserves 😘 xx

@Justkeepsplashing Don't lose hope, fingers crossed yours has gone to a nice DM who understands children mask and how hard it is to get their voices heard in these situations and your daughter gets awarded. You know your child more than any of them who decides if she gets awarded or not, keep your head high!
You're so right with the masking at school though as like you said they're terrified of being seen different, it's a struggle to get her to school in a morning and the moment we leave school she explodes and all school say is that she's just very quiet and slow with her work.
Thank you, I hope you get good news soon and keep us updated xx

16th x

@Persianpoppy just seen your post and I'm really sorry that you have to go through this. This is f*** insane that there's no update yet they told you that you should know by Friday. They're working through the weekend aswell so hopefully you hear by start of the week ❤️
To those who got awarded today- congratulations 🎊 I'm so happy for you I know the stress of not knowing
To those being declined - I'm so sorry that you all have to go through this after all this wait and I hope your children get what they deserve 💙

Hey. They are not allowed to refuse ! If management is busy they do a call back within 4hrs and they should take your number down. That call handler sounds horrible! Did you catch her name? If so she needs complaining about xx

I didn’t want to ask if your child was a girl but I knew she was - they mask so well, it’s so hard for them to fit in. School see them as being compliant, the perfect student but don’t understand the struggle it takes to get them in to school in the first place and that when they’re home they are disregulate, angry, overwhelmed etc. Try and have a restful weekend and then back to it on Monday xx

Yeah I think you’re right. Thank you. Will send it off tomorrow. Just didn’t want to delay anything by sending in extra evidence. I feel that they already should have plenty in evidence- I’ve sent off a lot with the original form.. but then my anxiety kicks in and I think it’s not enough!!

I so get it! I would be the same..thinking I have sent lots, but then if I send more is that only going to delay the decision, then thinking but maybe I should...and on it goes. All this waiting and anxiety for everyone is so horrible, especially as we only trying to get support for our kids and to be heard and believed..we may need to create a recovery group for everyone who has gone through this and invite a few DM's to come along to the pary..😅Good luck

Evidence defo helps but I’ve heard of some people being awarded with non. Or if you were to apply now and you could get a statement from the nursery that would defo help.
my little boy was the same, the process for my son began at 3.
will you be applying for an EHCP? - that’s what really helped get professional support in place for my son.
by 3 years and 9 months his EHCP was complete and he had loads of professional reports/statements.

Girls just letting ye know you can ask for there email address to send proof to I sent stuff rang next day and it had already been put with my form it just speeds stuff instead of waiting on post etc

She was so horrible! When I was reading out my son's NI she said ' you NEEED to come CLOSER!!' I told her how much more closer do you need the phone when it's right next to my ear! She then said, how many times must you be told to wait 20 weeks? Which caused me to respond with, then dumb people like you shouldn't be sending out letters stating 'upto 15 weeks' if that isn't the case!
I cried sooo much after as I hate being confrontational 😭

It has really knocked my anxiety today, overly emotional since that call 😭 makes me regret even putting in a claim in the first place xx

I didn’t know this.. Thank you!