Hi all,
currently going through MR. We’ve had a right time of it, our experience with DLA has been abysmal.
my daughter has a serious heart condition, an artificial valve, heart block, on medication 3different medications throughout the day, alongside severe GORD resulting in failing to thrive, an oral aversion, 18month old now & will have some oral diet/fluids but not enough to sustain her so has ng top ups…she was going to have a gastroscopy but because of the size & location of her pacemaker and how small she is it wouldn’t be possible. She’s had three open heart surgeries, will be having more the end of this year after which she will be on warfarin.
requested forms June via phone- 4 weeks later didn’t receive,
requested again in July and was informed that nothing had been sent out (I have phone records that prove otherwise)
scan date was in August (can’t remember exact date now)
i needed to send original birth certificate off to prove I wasn’t making up my daughter 🙄…they tried to say they hadn’t received it, I had to pay for a new one and sent that off…only then to get both of them back in the post.
then end of December I had a phone call to send more information, I sent it in (took a bit longer than expected as it was Xmas) sent that I. And a couple weeks later got a letter it had been declined- there had been a delay scanning my information on and them declining. Did an MR and sent off more information- didn’t hear anything.
called them up & they actually apologised as I should have received an acknowledgement letter- was told to call in 6-8 weeks.
i called today- lovely lady but she said they were taking 11weeks. I said that this has been going on for 9 months now & she passed me to a different department to put it as a priority & mark as urgent.
The next lady was lovely, she said they’re taking 8weeks, and that she will expedite it so I should hear in the next week or so
fingers crossed we’re almost at the end of this nightmare