Please or to access all these features

SN children

Here are some suggested organisations that offer expert advice on special needs.

See all MNHQ comments on this thread

Mandatory reconsideration part 1

785 replies

Emma2345 · 13/03/2024 11:51

Started this thread to help people pass the time and also communicate time frames and outcomes going through the process of a MR

OP posts:
Thread gallery
8
Kc1999x · 03/02/2025 07:45

It’s rare but it can happen if all the evidence supports the care side of things I wouldn’t worry. I not long ago did an MR for my son’s mobility and his was overturned. I asked for only the mobility to be looked but knowing they look at the care side aswell especially if going down the SMI route I knew my sons care evidence was strong enough not to be taken away. Hope that makes sense and helps a lot. Good luck x

Will36 · 07/02/2025 17:20

We got MRC only for a 4 year old.

With MR, should I be sending more evidence?

We have already supplied absolutely everything, covering not just the diagnosis but the care needs. Our son has Autism and regularly refuses to walk, we have to carry him and take a pushchair everywhere. We had to buy a specific car just to get him in, so we can take him out the house. And for night needs, he barely sleeps, over the last couple of weeks I'm often up from 1-4am trying to settle them, in addition to nappy changes as their SPD makes toilet training impossible and also their diet issues means they need changing in the night.

HRM was denied on the basis he can walk sometimes, and there are no night needs.

Matilde08 · 07/03/2025 13:02

Hi 💐 After 7 months from scan date we finally received mandatory reconsideration decision letter and unfortunately they have not changed their minds. Nothing about his special needs.. all about regulations etc. Kind of felt the outcome will be the same as again it toke 7 months for them to deal with my boys case. I'm not sure if I'm ready for tribunal as it's too upsetting with deal with this again. I'm trying my best to not take it too personal but the whole thing is like how dare we even claim. And the main issue of him not being eligible for care component is his father's death and pension he's having. It doesn't make any sense why he's then eligible for mobility component. Sorry for my outburst here 😢 😔

Hc9212 · 08/03/2025 18:48

My son was awarded high rate care last year for 3 years, I applied for mobility under smi and got rejected I did a mandatory reconsideration in December.
i got a random payment from Dla then received a letter a day later saying they have changed their decision after looking at whole claim again and stopped his Dla from a month ago which is confusing as I have received payment after they sent the letter?
i have not received a mandatory notice yet will this be the same decision ?
has anyone been through anything similar as I will be appealing

malah · 13/03/2025 12:33

my granddaughter is no verbal autistic (non diagnosed) but noted by school doctor etc she is 5yo, bounces jumps spins round, makes non verbal noises, cant read, wright, always on the go. doesnt understand letters etc, has 1 to 1 in school. is not toilet trained weve tried hard but she wont do it. has no sense of danger inside or outside the house, climbs on worktops etc, can climb over safety gate on ztairs. gets bored very easily, has a thing about plaing in water, emptying sugar container etc on worktop, e.ptying toothpaste tubes and shampoi etc all over bathroom, constantly stripping naked. soiling and wetting anywhere. doesnt eat properly,or sleep properly,throws herself on the floor and wont move in the house or when outside or shopping.
yet she was refused dla, as they said all thats wrong with her is behavioral problems.
i dont know where they get these decision makers from but they are not qualified in identifying problems in children.y daughter has asked for an mr and is awaiting the outcome of that. if its still the same answer she will appeal that decision.

Coffeeandcrocs · 13/03/2025 14:43

Not a MR but a COC awarded today, scan date of 13/09 so 26 weeks + 2 days!

Sharnim25 · 22/05/2025 01:46

My son is also 3 on June 1st 2025 non verbal autistic (not diagnosed yet) but is on the JADES pathway and has been since 1n half years old but we finally had the call this week for his assessment dates I’m so happy for him my health visitor also fobbed me off saying he’s to young for u to think he has autism! He was doing all different things to my older children my oldest being nearly 16 years old ! They were all on point with there mile stones but my youngest seemed so different u know ur own children !! He was regressing with words said mum at 4 months and never said it again he has also said a few more words but never said them again like he needs to learn them all over again , spins in circles , and walks on tiptoes , walks round with eyes closed , climbs on everything , has no awareness of danger the list goes on !

Lovingangels01 · 22/09/2025 13:37

Renewal was sent in 12th June, claim runs out 2nd Oct I called this morning and they said it hadn’t been looked at! I received this text 2 hrs later..

We've decided your child qualifies for Disability Living Allowance. You don't need to contact us about this. We'll send you a letter with all you need to know. If you don't get this within 2 weeks please contact us.

is there anyway I can find out what rates I’ve been awarded rather than having to wait 2 weeks for the letter?

thanks

LoudBee · 22/09/2025 16:50

My Daughter runs out on the 1st October , I called Friday to be told a decision has been made but wouldn’t tell me the outcome over the phone if she had been successful or not for her renewal and I have to wait for a letter, no text. I’m thinking the worst

Abwill · 22/09/2025 17:05

I got a text today and a missed call saying before we look again at your child's claim we need to speak to you and will call between certain times and of course I was on the school run when they called , they have said if I wasn't available I can call back the main line , I'm wondering what it can be for ?

New posts on this thread. Refresh page