Dla wait time part 2 2022

[Ltb17]

Set new one up as old thread ended @April202 @Nicky80catri @Leaf1216 can't remember any other names

Sodie you should ask for a mandatory reconsideration and appeal if necessary.

I was pretty hysterical on the phone, so will phone back and ask for a mandatory reconsideration. Honestly the person they got in touch with was the community children's nurse who we have put many complaints in against. She said my child has no mobility needs, no mobility aids, no sleep problems, no mental health issues. No care needs, no schooling issues. Honestly my daughter is down for a stepping stones tutor with a view to go to a mental health unit. Ot have said she is not able to do any schooling. She can walk 10 steps to the toilet that's it. I have to brush her hair, her teeth, dress her, when she has her period I deal with that. She can't watch more than 30mins tv a day, can't read a book, can't look at a screen. Her bed is in the living room I sleep on a mattress next to her. She sleeps 17-18 hours a night. She is doing fatigue management. Just yesterday ot said they are writing again to camhs because of her mental health. Ot have pushed for us to be moved to a bungalow. You don't get a wheelchair from wheelchair services if you have no bloody mobility needs. My whole life revolves around her. Honestly I'm livid.

Sodie that is absolutely disgusting have the not award ANYTHING at all ? Definitely do a MR. I don't know how to do one of these. I am going to research myself because I don't think my son will be awarded. So stressed myself so I know what you feel like.

@Sodie do appeal! I'm sure you already have this covered: if you write on the form that she sleeps 17-18 hours do make sure that you emphasise that you have to sleep next to her at all times and be alert to her needs if she wakes up. To get a higher care element you have to prove that you are giving care through the night (my child is up 4-5 times a night and sleep is terrible - we were awarded Middle rate). Thinking of you today, you both deserve help and support.

Nothing at all I feel sick. She is living in one room. We are priority for a bungalow. She is doing chronic fatigue management which involves near complete rest. She is in bed all day because she is so tired. She is terrified of health care professionals, she is so scared. She can't return to mainstream school she can't access any education but ot have said her fatigue will get worse. She had two weeks in year 7 in September before she got sick.

I really feel for you both what a awful situation for you to be in. Make sure you do some research on MR. How long did they take to look at your claim ? Sending you so many positive vibes now.

Scan date 15th march had no text or anything but just called and been awarded HRC and LRM finally the waiting is over!! 12 weeks and 3 days in total

Over the moon for you

@Sodie how heartbreaking! So sorryAppeal I fresh pair of eyes will look over your claim!
@gemma1988 thank you

I have just done a mandatory appeal over the phone. The guy noted everything and even he was shocked that somehow someone thought what was happening with my daughter was no different to another child her age. I have to wipe her bum, I have to brush her teeth. She is too unwell to even see a stepping stones tutor for half hour a week. Another four week wait at least for this. I won't put anymore of a downer on this thread, genuinely pleased for everyone who has got a positive decision. Hopefully I can come back in a month or so and say that they changed their minds. If not I'm fully prepared to take this all the way to tribunal.

@Sodie I'm really sorry, and totally shocked to hear that. You have to wonder if some of these dms have any idea what they are actually doing!!

Anyone no what scan dates there up

Told me 29th march yesterday but they also told me that 2 weeks ago 🤷‍♀️

@Sodie from what I have read about your daughter it’s discussing on the decision. I really hope the MR turns everything into a positive for you. Even though my waits over am going to keep poping on to await to see your outcome. I really hope it is a positive outcome for you

@gemma1988 I was told was 29th March today when rang up

@Sodie i am So shocked and disgusted by their ridiculous decision!! Out of everyone on here you were the one claim i thought would 100% see high rate award for both care and mobility.
whoever made that decision needs the sack!!
go all the way and don’t stop till she gets it!.

Well if they read the form I sent, as well as the reports properly and backed it up with calling her school, doctors and consultants then they’d know she was physically disabled and entitled to hrm.
clearly they don’t always read it properly because you can’t give hrm to some and not others that fit the criteria.
@Sodie is an example of this.

I rang Wednesday (scan date 31st march) told its not been looked at yet and isn't with a DM and I'm probably looking at another 2 weeks 🙄
So bloody annoying. 12/13 weeks seems to be the average.
Starting to worry about getting turned down now, had a good report off school, sent all the hospital reports ect. My daughter has a bone disorder which affects her mobility (she can walk but not far, is very slow) has had 2 operations to straighten her legs and also has autism. Hoping at least for LRM and LRC I'm not building myself up to get any more then that..

There must be a better way of allocating to DM than they have now, so it's as close to date order as possible? You'd think they could develop a virtual pile in date order which you take the next one of when you've done another! 🤷‍♀️

I didn’t say DD wasn’t entitled to HRM. I said you cannot know for certain that she would have been awarded HRM if the school had been contacted, and you can’t. Just because someone is entitled to it doesn’t mean they will be awarded it because otherwise everyone would get it without appealing and no appeals would be successful. because you can’t give hrm to some and not others that fit the criteria. and yet they do, hence some appeals being successful.

Most of your last post has nothing to do with my post as I didn’t mention anything about them reading the form/evidence or not.

Again, people shouldn’t rely on them calling anyone, because they often don’t.

Again, people shouldn’t rely on them calling anyone, because they often don’t.

I've read on the Facebook page that they get 20 minutes per application, which is bonkers. I would think they just try to rattle through them where possible.

Well, I posted the form yesterday. Not expecting to hear anything until September (!!!) based on the waiting times here. Do you receive any notification that DWP have received the DLA forms? I am really hoping to be awarded something to pay towards DS's ADHD assessment and OT, both have horrendous waiting times on the NHS so I'd like to go private. We paid privately for his ASD assessment so at least that is in place.

I'm worried because before he was diagnosed with ASD, I'd never thought of him as 'that' different (although his struggles are becoming more apparent as he gets older) and it says that in his report. I've now come to realise that I have lots of undiagnosed ASD and ADHD (myself) in the family so that is why I didn't think his behaviour was odd. I didn't realise that an inability to walk down the street at parents pace was indicative of anything. DS constantly runs, twirls, leaps, jumps, spins, which means he is at risk of falling into the road, bumping into strangers, walls etc. He is very hyperactive and constantly on the go. I hadn't realised it was that unusual. He also has huge anxieties at night time around the dark and being alone, takes 1-2 hours to settle and wakes up crying as he is scared. But again, I didn't realise that wasn't usual for a 7 year old. It wasn't until school highlighted his problems that I began to really 'see' the ASD and ADHD. I hope that it won't go against my claim.

Does DS have an EHCP? If so, OT can be included in their without needing to sit on the normal waiting lists.

@Legofigure No, he doesn't. The school has organised for a specialist autism charity to come in a couple of weeks to assess DS's educational needs. I included their letter to the charity in with the DLA application. I think it will be a battle to get an EHCP for DS - school has made it very clear that he 'wouldn't be entitled to any funding' as they can manage DS. From talking to other parents, there are lots of ASD children in the school on the 'high-functioning' end (hate that term) who school haven't applied for EHCP's for and won't support the parent making an application. I think it is because it costs the school money in funding ???

You can apply for an EHCNA yourself, you don’t need school’s support. IPSEA have a model letter you can use. Schools and LAs often tell parents their child doesn’t need or won’t get an EHCP but the parent goes on to successfully apply themselves.