New DLA wait times 2022

[Momof2soonmomto3]

Iv made this new one as the thread I was following along with others has now been closed mine was scanned on the 18th Feb and still awaiting decision, I'm currently been waiting 40 mins on phone to DLA trying to get a update

Iv decided not to appeal as it wasn't really about the money and more about getting our son the extra help he needs :)

@Momof2soonmomto3 good shout! Exactly my thinking I don't care about high or mobility. I feel like my son is entitled to MRC really not bothered about the rest xx

Called at 3pm was told there working on cases from the 20th feb around 2 weeks moor wait for 28th feb claims

Do i need to let dla know if my daughter isnt going to school due to her anxiety. She is refusing to go x

I'm still waiting from December 14th, change of circumstances he currently gets higher rate care and low rate mobility but currently got a lot worse to the point police have had to be called of several occasions due to completely meltdown has anyone heard from December who's waiting on a change in circumstances

@Mummy2boys1520 I'm waiting on change of circumstances from December 13th. Not heard anything yet, didn't get round to calling today but last time I spoke to them which was prob beginning of April I was told 20 weeks and to call back first week of may if not heard anything by then.

@Ltb17 oh gosh I was two 16 when I sent them in I'm on hold with the DLA now while she checks the status I'll let you know what she says

@Ltb17 just got of the phone could understand what she was on about as she said it gets backdated from when they scanned the forms but I was told it was from when I called to do a change of circumstances so I don't know when they are going to back date it now but she said the decision should be from the second week of may

Does anyone know if universal credit disabled child element back date from the point when you was granted your DLA award from which for me is 21st January

@Momof2soonmomto3 mine did

Brilliant, this will really help if that's the case as I will be moving home next month and was worried about all the extra cost, did this arrive same time as your usual universal credit payment @Mummy2boys1520

@Momof2soonmomto3 not going to lie mine took ages for the back payment you have to request the back backment they don't automatically pay it. Took like 2 months for the back payment but the disability Element way in my next universal credit payment after they accepted it

@Momof2soonmomto3 not going to lie mine took ages for the back payment you have to request the back backment they don't automatically pay it. Took like 2 months for the back payment but the disability Element way in my next universal credit payment after they accepted it

@Momof2soonmomto3 not going to lie mine took ages for the back payment you have to request the back backment they don't automatically pay it. Took like 2 months for the back payment but the disability Element way in my next universal credit payment after they accepted it

@Mummy2boys1520 I was told it's from when they receive the form back but I didn't request the form it was sent to me because of my sons age, not sure if that makes any difference. I can't believe it takes this long tbh

@Ltb17 honestly especially when new claims are taking a lot less, it's a nightmare my sons 7 so I had to request them to look at the mobility again as he is a nightmare can't take him anywhere

@Mummy2boys1520 especially considering they already have all the info available to them!
Yeah I know that feeling, honestly going out is my biggest fear. I'm not getting my hopes up for high rate mobility though as i know it's difficult to get but he didn't get any mobility awarded with his claim, I didn't do the mobility part properly on his claim first time round because I didn't think he would qualify, they called me after they awarded him hrc and asked why I didn't answer all the mobility questions and I said I didn't think his condition qualified, so they sent me a change of circumstances form and in the same time frame he turned 5 but I dunno why they couldn't have called and asked me before they awarded, me paediatrician seems to think he should have been awarded high rate but I dunno.

@Ltb17 my son hasn't even been diagnosed with anything but have a lot of evidence from school as his been bad since he was 2 but we had to wait till he was 6 until they would even send of a referral for autism, we have been waiting ever since for that and it's just an up hill battle with getting any help for him his in a special school now and even they struggle to cope with him and keep suspending him

@Mummy2boys1520 no mine hasn't either, he's had a verbal diagnosis, he's on the pathway awaiting assessment, his echp is almost complete, I was trying since he was 6 months old and health visitors and drs kept fobbing me off, I went to a new surgery and the dr asked me why I hadn't done this years ago!!! I couldn't believe it I nearly swung for him! It's annoyed me so much because all the help he's getting now he could have been getting years ago if it wasn't for the drs surgery I was at, even the paediatrician said they take referrals from 6 months of age!!

@Ltb17 it's absolute ridiculous isn't it

I rang again today as I'm 15th Feb still no decision. So frustrating. Think I will try again Friday

Based on the comments from today I guessing I have at least another two weeks minimum to wait still. My claim was stamped 28th February.

Not going to lie I've grown increasingly frustrated with everything these last few days with how hard it's been to get him any support. I know a Teacher in a SEND School who I regularly confide in. I suppose sometimes I'm second guessing myself because of how long getting any support is taking, so I vent to them in a hope I get their advice or opinion. And by support I don't mean financial support. Yes the financial support will help to help me put more things in place myself, but actual support to help him manage his needs/struggles. When I speak to my teacher friend they are horrified at how obvious his additional needs are and how so little is being done. They say his school should be ashamed at how they are brushing these things aside because he isn’t doing exactly the same things in school as he is at home. They explain to me why my DS is doing things/behaviours and how they make him feel. This then helps me have a better understanding of how to help him.

I'm finding my son is starting to be more able to express his feelings to me and reasons why he does things. However he is only able to do this when he initiates it. I cant ask him, as he is unable to answer anything until he is ready. But when he tells me his reasons and how things make his mind and body feel, it is EXACTLY what my SEN teacher friend tells me. I dont put these words in his mouth either. Its how he chooses to describe things to me. They have worked with SEND children for over 30 years and also been part of a diagnosis panel in a previous job so I trust their knowledge. I know my son has undiagnosed additional needs and quite frankly I am pissed off how hard a loving caring parent has to fight when they know their own child. You are asked why do you want to label your child? Erm I dont! But if I need to label to make his left easier for him to manage then I will do everything in my power to get that 'label'. I sympathise with every family going through this. It shouldn't be so hard.

I cant help but feel so sorry for my DS. This is his childhood. He should be carefree and happy. I guess I had this idea of how life would be having a boy. Playing outside getting messy, playing in the mud, snow and puddles. Climbing trees, having a fun day out the house all day etc. I dont. I have a child who has never played in the snow or jumped in puddles. In anything from the outside touches him he is scrubbing himself clean and removing his clothes so he is naked. If mud goes near him it makes him sick. My child NEVER wants to leave the house. When he sleeps he has to sleep across me, if I move he wakes up crying about where I am. Neither of us have much sleep. When we do leave the house he has no sense of danger and runs off, into things and literally through things. This is after a 3 hour screaming meltdown how he only feels safe inside his home. He is clumsy beyond belief but he gets enjoyment out of hurting himself and feeling a heavy impact against his body. His OCD and anxiety really really upsets me. Such a small child shouldn't be feeling this way and I want nothing more than to help him cope. I feel helpless

Just an update for anyone waiting, the Facebook group I'm on people are getting decisions from scan date 16th Feb 🤞🏼 so anyone around that time hopefully should be soon for you 😬

My form was scanned 21st Feb, my daughter was awarded DLA today. I hope this helps with timescales. Glad the wait is over for now. Xx

Hey all, I was starting to worry thinking I was kicked from the last thread, haha. How is everyone? Anyone have an update on where there at on Change Of Circumstances? Mine was scanned 12th Jan, I know there is a few with December dates still waiting, and every time I ring I’m getting told different things.