Auties transition to Year 1 - thread 3

[LightTripper]

This is the continuation of the thread for parents and carers of autistic children in reception year at school, going into Year 1 in the autumn. All welcome (also parents with older or younger children who want to ask questions or share their wisdom!)

Welcome!

Well done him! Exciting when you see progress in them :) and well done you for all your hard work!

@openupmyeagereyes well done to your ds thats brilliant.

We are having great success with the routine but only if we go with him if we don't then he juat won't follow ot and ends up weeing down his clothing. We haven't had any poo accidents now since tuesday so thats really good and the wetting ones are from when we try sending him which we can't do.

Harley I would go with him for now and just work on building his confidence rather than pressuring for independence straight away. We still mostly go with ds at home and he’s been trained for 2 years now! He goes at school by himself but I’m not sure how much wiping goes on. Luckily he only poos occasionally at school.

Thanks everyone. I don’t think there was much hard work on my part, just consistency I suppose as we’ve been doing a little bit every other day for the last four months (prior to that he flat out refused). I’m resisting the urge to push him to do more because I don’t want to put him off.

Currently I give him 10 words to decode every other day and he’s now doing 10 spellings on the iPad on the days in between. That’s possibly helping a bit too.

And we read to him as much as he allows too.

@openupmyeagereyes we are doing so juat need ti make sur school do. Which i doubt.

I don't know if anyones done a parental ehcp request. We did one and sent it on wednesday and we have had a letter today to say they have recieved it and it was sent to to the school head nit the senco is this normal?

Sorry Harley our EHCP was a nursery application.

Last day of the holidays here. Ds is already saying he doesn’t like school and doesn’t want to go. Prior to the holidays he loved school and it was fun . Hopefully he will be fine when it’s time to go.

I hope the clock change hasn’t caused too many problems for anyone. Not too bad here. Ds has woken the last two nights around 3 for me to blow his nose and then gone back to sleep until 4:30 which is not too bad since it’s 5:30 as far as he’s concerned. He usually adjusts in a few days.

That's brilliant news open!

I'm afraid we haven't done an EHCP Harley so not up on them at all. Maybe post on the general board as there may be parents of older kids who know?

Clock change wasn't too bad here. DD came in at 5.30 (so 6.30 on the previous day's time), which is early for her but not for DS so didn't feel too bad. Today as per usual DS ended up in my bed before wake up time but I'm not sure when, and he did at least sleep. #groclockfail

Harley I did the application to assess for my nephews and yes, the LA contacted the school straight away. They wanted the school to provide a costed provision map of what support the child is already receiving and what (if any progress) has been made. The council doesn't have v long to make a decision and as I remember they gave school about a week. School was a bit miffed with us but we had been asking them to do it for ages.

I was at work this morning but we have had a gorgeous afternoon doing a forest adventure trail at a local farm. Thought we would finish up with hot chocolates in the cafe but DS wanted ice cream!

The clock change went v smoothly here but only because DS was vomiting most of Friday night. He slept for 12 hours on Saturday night - I was most confused to wake up to sunshine (in old time it was 8am!)

Thank you @Dimples for that, makes sense. I didn't get such a swift response the first time from LA so was finding it a little unsual.

Hmm todays meeting was unsual. There seems to be so many inconsistencies with school they constantly yo-yo from ds being age related and on target to the teacher hoping he will be at end of year and the depty head and senco seemed shocked and surprised that ds is still on the pink rainbow words which is reception spellings yet he is reported to be doing age related things. Ds seemed confused today he did tell me about his day but to be honest it didn't really make much sense.
School are still pushing on swimming we are worried that the fact his bowels and bladder are so unpredictable and frequent and the fact that ds often wees and poos in the shower and bath that it would be in his best interest to sit this year out and see how next year goes. They go for 30 minutes on a Thursday for 6 weeks every year so its not like we are saying never just maybe next year will be best. The school say that the swimming baths are fine with the fact theirs a high chance of him soiling in the pool. The have suggested that the take him to toilet before he changes so hes not changing soiled in front of the other children, then toilet before going in water, then take him out at 15 minutes for toilet then toilet before he gets dressed but upon reflection i worry its to stressful for ds and one of the things that seems to make his toileting issues worse is new environments.

Hello all, please can I join the thread? Someone kindly invited me a while ago on another thread. My DS is in Y1, he was dx in July (end of Reception year) with ASC, and we're waiting for OT assessment for likely DCD (dyspraxia).

My lovely DS is hating Y1 and has suddenly started behaviours we've never seen before - spitting at teachers, throwing chairs, generally being very agitated and hyperactive. School are pretty useless and I feel exhausted from trying to get basic support in place over the last half term. Now looking for a new school. No EHCP as Senco says we need at least a year's worth of evidence before applying.

Sorry to join on an evening I'm pretty down, we do have lots of great times with DS but atm I just feel worried sick about where this will all go.

Welcome Mapland. Sorry to hear that Year One is not going well. I would recommend applying for the EHCP yourself whilst you look at other school options.

Harley it does sound like the swimming might cause more stress. It's nice that they want to include him

Welcome @MapLand sorry to hear you’re having a rough time in y1, it’s horrible to think of our little ones suffering. How was he in reception? Are you able to figure out what any of the triggers are to try and work through them? Hard task when school aren’t up to the job :(

Hi MapLand, welcome to the thread! Sorry you are all having a tough time. I don't think that sounds right on EHCP: if he has a need he has a need. I would follow @dimples76 advice.

I do think Y1 is such a jump up from Reception - they need a lot of support to settle and get used to the new routine. But it's really hard without support from school.

Harley I did DD's application for EHCP myself as nursery were totally clueless (had never done one and management generally rubbish - actually being shut down next week!). LA did contact them but I don't know what information they supplied. Sorry, that probably isn't very helpful. I do know that her Key Worker from nursery (who was great and is the reason DD coped so well, until the group size increased dramatically with no warning and DD became unhappy) did write a separate lengthy report which I attached to the application on submitting it.

Mapland welcome, so sorry your DS is finding Y1 difficult. From what others are saying it us a leap from Reception (my DD is still in Reception) Agree with others that you can do the EHCP application yourself. I had help from Sendiass who looked at my draft before I submitted it.

I'll continue this message in a bit, don't want to lose it so posting in 'bits'.

dimples sounds like you had a lovely afternoon yesterday!

Open hope your DS was okay going into school yesterday? DD is already saying she doesn't want to go back next week!

Light glad clock change wasn't too bad. DD woke at 4:30 this morning needed!

To be continued...

We are having quite a good half term here, a mixture of craft activities (gifts for birthday party which hadn't been opened) and daily meltdowns. I think the meltdowns are just her decompressing from a long term. Throw in a course of antibiotics and a heavy cold in the last week and she was absolutely exhausted when she broke up on Friday.

Thank you @Littleswede I hope dd manages to relax alot and get better and has a good half term.

@Maple Welcome to the thread. Year one is such a tough time my ds is also having a horrible time with it with no school support.

@openupmyeagereyes Hope back to school went ok for your ds.

@dimples76 That sounds like a wonderful afternoon.

We are in the worst postiton i have ever seen ds. He punched kicked pulled my hair and nipped me all the way into school yesterday hes never done that before. I phone school at 8.40 (doors open at 8.45) to see if i could take him in as he was in such a state and wasnt calming it was getting worse by the minute. They were fine with the 5 minutes early but said infurture that they dont want him going in the main entrance becoming a thing so i kindly told them and emailed them to say its ok infurture i will take him when hes like that just when hes calm enough to walk in like anyone else altough i thought the door he went in was less than important than him actually being in school.
He slept in 10 minute increments last night he said he wasnt poorly just couldnt sleep. also had to ask them to keep an eye on him as hes barely eating and drinking in school and also ask why they didnt do any toilet tries at all yesterday.
He was to tired to kick off today he didnt want to go but luckily didnt attack me.
Sorry if my post is spelling rubbish and also waffling i am so tired.

Hello. I deleted the app, sorry I was on here a bit much, every time I picked my phone up in fact, don’t mind this thread I like this one, It’s just I ended up reading and commenting on all sorts of shit so got rid of it, i’d drop ds at school with the intention of doing a big list and id spend half the time on here not getting all my jobs done.

I’m on the main site now I’m too lazy to log in all the time, so it’s keeping me away a bit. I’ll just come back now and again to this thread for a catch up and quite possibly a moan.

Ds went back to school Monday after a week off. We went to Disney land during half term for 3 nights and I won’t begin to tell you the disaster it was that was with hiring a special needs pushchair too and getting a Disneyland disability pass. Thought it would be easier but it was horrendous from start to finish. I need a few years off holidays now, dh is just so obsessed with going away all the time but he’ll have to go alone in future because it was truly awful. I told him don’t put mine or ds name on a booking ever again. Never been so pleased to get home in my life.

@openupmyeagereyes I knew everything would pay off, been thinking every time I read and you say I’m hoping he reads soon. I knew he’d do it. Ds is really struggling going up a level. He’s on level 2 now and can barely read any of the words. So much harder it’s ridiculous the jump up. X

Not much going on here, same shit different day. Been and got a few more of ds’ Xmas presents this morning. Can’t believe xmas is 8 weeks today. Ds is nearly 6!

Hope everyone’s ok. Xx

Light and dimples glad the clock change has gone well so far.

Forest adventure trail and ice cream sounds lovely.

Harley I agree that swimming is best put off until his toileting is under control. An accident in the water would be very embarrassing for him and would take the pool out of action. Tbh 6 weeks of 30 mins lessons doesn’t sound like he’d be missing much anyway.

MapLand welcome to the thread. I’m sorry your ds is struggling this year. It is such a step up for them. Did he have any interventions in reception? How did he finish the year, was he at the expected level across the EYFS categories?

Jeb how are you and babyJeb?

Little I’m glad you are enjoying half term. Have a good week.

Harley I’m sorry you had a rough day yesterday, maybe he’s coming down with something? I agree, it doesn’t matter which door he goes in. Schools can be ridiculous about these things imo.

danni was it Paris you went to? I’m sorry it didn’t go smoothly, I don’t blame you for wanting to give holidays a break for a while. Don’t stay away from the thread too long will you. Have you had a parents’ evening yet? Maybe they have some tips to help your ds move on with his reading.

Ds went into school ok yesterday after a bit of grumbling and had a good day. This morning he was whingy and grumpy and refused to go in but it quickly became apparent he’s under the weather despite saying he feels ok. He’s tired, clingy and lethargic which isn’t like him at all. He’s asleep on the sofa at the moment, had an hour so far.

I’ve kept to our routine so he’s not done loads more reading over the last few days. When I tried again Sunday he didn’t read any more words but his blending is quicker and he’s saying things like m-an rather than m-a-n so still coming on I think 🤞

Oh and danni you are making me panic about Christmas. I have no ideas except for ds who tells us daily what he wants.

danni totally get what you mean about spending too much time on Mumsnet! I need to set myself a limit I think. Sorry Disney Land was hard work, hopefully there were some good moments. Did your DS enjoy it? I'm going off holidays too, I actually think it was easier when DD was smaller. This time last year we were in Lanzarote and I just couldn't wait to get home! Hope to still see you on here sometimes.

Harley Most schools will let children with SN enter via alternative entrance. Our Senco has offered us to use the library if DD finds the drop off too much. Sorry school are still being so unsupportive. Quite bully-ish in fact!

Open glad your DS went in ok and had a good day. He is doing so well with his reading!

Hideous story in the news today. Things like this put the fear of God in me.

www.google.co.uk/amp/s/www.bbc.co.uk/news/amp/uk-england-birmingham-50139692

Ds still off. He’s a bit brighter today but was sick yesterday so can’t go back until Monday. We played match & spell this morning and he spelled all his 6 words correctly