To think it is ridiculous there is no help for us

[Edenviolet]

All four dcs have disabilities/other health problems.

All four receive dla, 2 receive higher rates for both components.

Recently had a CAF referral done, initially we were told we would get 3 hours respite a week, then the sw manager said no we didn't qualify for that scheme.
We were told the early intervention team couldn't help us and we we referred to children with disabilities team.

CWD team said no, they would not take on our case as none of dcs have learning difficulties.

Sw then referred to the children in need team, they said they would not take the case on as dcs have lifelong conditions and they only deal with short term conditions whereas CWD deal with long term (but only if there's a recognised learning problem as well).

Sw is closing our case, thes nothing she can do and no help she can offer.

I can't believe we are stuck in between each SS team and none of them can offer us any help or support.

Hedgehog, would you mind starting another thread, so this one can drop?

Maybe start it with exactly your last post and im sure lots of people will give you support and advice.

Blimey. What a thread.
No SN is NOT normally like this.

Hedgehog, why does your diabetic daughter need a statement? You had poor service at guest hospital, but now gave changed hospitals? And she's on the list for a pump?
I just wondered why the need for a statement? I didn't realise it was now the norm for diabetics to be statemented.

You need to be refered to ss occupational therapy regarding the beds. Has this been done?
Then ot comes out and assesses and for something like that it would have to go to panel
Has that even been done?