To think it is ridiculous there is no help for us

[Edenviolet]

All four dcs have disabilities/other health problems.

All four receive dla, 2 receive higher rates for both components.

Recently had a CAF referral done, initially we were told we would get 3 hours respite a week, then the sw manager said no we didn't qualify for that scheme.
We were told the early intervention team couldn't help us and we we referred to children with disabilities team.

CWD team said no, they would not take on our case as none of dcs have learning difficulties.

Sw then referred to the children in need team, they said they would not take the case on as dcs have lifelong conditions and they only deal with short term conditions whereas CWD deal with long term (but only if there's a recognised learning problem as well).

Sw is closing our case, thes nothing she can do and no help she can offer.

I can't believe we are stuck in between each SS team and none of them can offer us any help or support.

If you just want a rant thenfind someone else to rant at Goby because you obviously have chosen to miscontrue my post.

I very carefully chose my words when I wrote
Getting some support is possible if you are tenacious

Note the word some.

Some is what you got so how the hell am I accusing you of letting your child down when you did actually obtain the some support that I said was possible to obtain?

Read before you write.

Have just realised I've got an email from dds diabetes nurse saying they won't support statement application.

So what? Who cares? It's not up to the diabetes nurse whther you get a Statement or not - stupid nurse. As part of the Statementing process your DD will see the Community Paed who will provide Medical opinion for Appendix C of the Statement.

Make sure the LA tell you whether or not they will undertake a full assessment in writing.

I thought I had to provide supporting letters from those involved with dds care.

Glad to hear it shouldn't affect whether she gets one or not. So glad we are changing hospitals.

I thought I had to provide supporting letters from those involved with dds care

the clue is in the word supporting. If they don't support the application don't send them to the LA. That nurses views counts for absolutely nothing. The LA will not contact them (unless you tell the LA to, which I wouldn't).

When the LA tells you it will/ not Statement it will ask you who you would like them to contact for further information. Give them the contact details for the new hospital.

Always the same on the SN boards. Do as we say or we will make your life hell.

wetaugust I read your post and thought it very shitty too.

It's very typical round these parts.

Well you ought to stop misconstruing things too then Amberleaf.

We don't go in for other poster bashing on the SN boards funnily enough. We do support on this little piece of MN. I cannot believe that you would think I didn't support? You obviously haven't read my posts on here.
But who cares? I don't. You can think what you like.

Always the same on the SN boards. Do as we say or we will make your life hell.

Don't be silly. Op asks for help = Op gets help. What's wrong with that?

You really chose a good, descriptive MN name.

Hmm two people thought your posty was rude, but its us that are getting it wrong?

We don't go in for other poster bashing on the SN boards funnily enough

No you've just said that any parent that isn't as amazing and capable as you, is letting their child down.

That is not in any way supportive. Yes Ive read a few of your posts and you have given some good advice, but that doesn't give you the right to pass judgement on parents who can't achive what you have.

You really chose a good, descriptive MN name

I thought you don't go in for other poster bashing on here? What was that then?

You're proving my point. Repeatedly.
This is a cosy, hidden away little area of mn where a group of posters sit and eat other people for breakfast when actually yes they were looking for support.

But god help them if they have a thought of their own and don't agree with the law according to 'MN SN Board'.

It's less inclusive here than AIBU.

^Hmm two people thought your posty was rude, but its us that are getting it wrong?
^

Nice of you to make a rare excursion down here to tell me this. You're still wrong though.

This is a cosy, hidden away little area of mn where a group of posters sit and eat other people for breakfast when actually yes they were looking for support.

Really? So nice to be called 'cosy' as that's the atmosphere we aim to provide down here well away from the nasty gits on AIBU.

And as I'm really feelin' the lurve tonight....

have a nice day y'all.

You're still wrong though

Im wrong for what/how I think/feel? I found your post offensive and rude. You can't tell me that is wrong.

wetaugust, it is people like you that stop people using this board.

You can give all the fantastic advice you like, but when you are so smug and condescending with it, it negates the positives.

Im wrong for what/how I think/feel? I found your post offensive and rude. You can't tell me that is wrong.

Well a person who thinks that's comprehension must be pretty fucked, as I explained quite clearly that I deliberately chose the word some and you have chosen to take it as a snub. Take it however you want - that's your right. But don't come bleating to me that your comprehension is poor. Not my problem.

wetaugust, it is people like you that stop people using this board.

LOL that's so funny You are a wit

You can give all the fantastic advice you like, but when you are so smug and condescending with it, it negates the positives.

Your misinterpretation - probably due to poor comprehension.

Your views.

I have different views.

Tits up

One of my favourite phrases Maryz. I find it very descriptive

Well there's two on this thread, granted.

Plus at least another five I know that have been driven off the SN board.

Can you try Hospices?

Maryz

I would never accept that there is a wall that I could not break down. I won't bore you with describing all the shit I was faced with, suffice to say it was at the extreme end of special educational needs and everything looked very hopeless for a while.

But I cannot subscribe to the idea that you stop trying. I see many instances of people saying 'there is no help' only to find that they have not used the correct formal channels to seek that help, or have failed to challenge those unauthorised people who tell them there is no help - which tales me back to that issue I mentioned before of 'trust' and our misplaced faith that profesionals will actually act in our childrens' interests - only to find that some don't.

People can bleat on as long as they want about unfairness etc but when you suggest some practical steps to start securing support they have every excuse under the sun for not doing so - while continuing to bleat on with the 'Woe is me'. That sort of poster is letting their child down as we say on here "You are your child's only advocate" - and that unpalatable fact is very true. We don't say that to have a dig at the parent - quite the contrary - we always offer help and support.

I do not kick people when they are down - I cannot remember how many letters I have assisted people with via PMs - must be scores by now.

The only time to give up is when it's impossible to advocate on behalf of your child because your child has reached seniority, refuses help and the Services will not deal with you. Until then everyone should keep bashing against these brick walls in every way possible.

And when you're going through it x 3 and get so ground down you can't take any more? What then?

3 lots of medical appointments, 3 lots of school reviews, 2 lots of statement reviews (hopefully 3 but that's yet another fight)....

Yes of course I get worn down to inertia.

Then come here and get squawked at because ABA didn't work or I didn't do something else the 'right way'.

Sod that.