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Reposting from chat. Please help!

253 replies

Faverolles · 10/01/2014 22:43

Ds2 is 8, being assessed for possible ASD. He's fine at school, but violent and aggressive at home.
We have some times when things are relatively calm, and we feel that we know what we're doing, then we have weeks like this week, which are absolute hell on earth, and drive us to near breaking point.
I don't know if it's a normal back to school thing, but every evening this week, we've (all the rest of the family - me, dh, ds1, dd and ds3) been threatened, punched, slapped, bitten, spat at, sworn at, insulted constantly.
I can't cope. I know he'll calm down a bit at some point, we'll still have this behaviour, but not as intensely. But for now, the whole family is struggling.
We've explained to the older dc (13 and 11) that they need to back off from ds2, when he's feeling angry, he needs space.
Ds1 in particular seems to think that we are favouring ds2 because he gets more time with us, but this week he has only had more time because he has been wound up to the point of being a danger to himself and the others, and one of us has to help him calm down (he usually ends up sobbing that we should just kill him) and basically supervise him.
Ds1 cannot resist winding him up, he doesn't seem able to back off, so we have more outbursts than we should probably have.
I don't want ds1 and dd to feel responsible, but I want them to understand that how they react to him makes a huge difference to the severity of ds2's behaviour - is this unreasonable of me to expect this? (Really, I genuinely want to know!)

Dh and I are relatively new to this, it's only been a few months that we have allowed ourselves to see that there is a problem, and not a naughty child/crap parent situation.
There isn't really anyone in RL who gets what's going on, mostly they think we're soft on him(we're not), or suggest that we get really cross with him (like we don't do that already, but it doesn't work and makes the situation worse)
He has been referred to CAMHS, but that could take months.

We have noticed that we can do practical things that have helped - putting a tent over his bed, giving him opportunities to tell us how he's feeling, and do something calm with him if he's feeling angry, not taking him to the supermarket etc.

This week is off the wall though. Please, please tell me what else I can do to help him. He's such a lovely little boy when he's not angry.

^ I posted the above in chat, I had a thread in here a while ago, but I've lost it.
I really need practical advice. I feel like our family could break up over this, and I don't want that to happen.

OP posts:
PolterGoose · 16/04/2014 10:18

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Faver0lles · 17/04/2014 08:47

Thank you for that.
I managed to pretend to do something on my phone and film a couple of minutes last night. Will try and do more another time.
I'll have to work out how to upload on YouTube.

Had a lovely day at the field yesterday, barbecue, playing, everyone got on, until we got home and ds1 and 2 both turned into the grumpiest boys on earth, and it all kicked off. Hurrah.

Ds2's birthday is coming up, and he has announced that he will be having a leopard gecko and all the paraphernalia that goes with it Hmm. He has researched, has no idea how to look after one, but can accurately demonstrate how the walk.
Not quite sure wether to indulge him and gradually/hopefully get rid of the gun obsession.

Faver0lles · 17/04/2014 08:48

Not sure a gun obsession is healthy in a child as violent as ds.

PolterGoose · 17/04/2014 09:30

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Faver0lles · 17/04/2014 09:45

Never thought of tortoises! Less likely to escape and end up in my bed!
Might sow the seeds for a tortoise obsession! Wish me luck :o

PolterGoose · 17/04/2014 09:53

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Faver0lles · 17/04/2014 09:58

Funnily enough one of our plans this weekend is to build a pond.
Ds is planning a tadpole raid at my my mother's house. I don't think she knows yet.

Faver0lles · 22/04/2014 19:02

Interesting day.
Ds and I went on a fact finding mission today about tortoises.
Predictably (as dh has helpfully pointed out), it all went tits up, and we now have a baby tortoise Hmm

It's all been planned for, but has happened a lot sooner than we anticipated weak parenting

Anyway, Sheldon is very cute, ds is smitten (as am I) but beside himself as Sheldon is taking some time out to get used to his surroundings, and ds thinks he's poorly.
I'll put a photo on when he ventures out of his hide.

Today was a first for a proper public meltdown, which was fun, and I'm pretty sure I've given him a valuable lesson in getting his own way. Hurrah!

PolterGoose · 22/04/2014 19:15

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Faver0lles · 22/04/2014 19:39

No, no pond. The ducks took over the paddling pool, and their needs seemed greater than ours :o

Ds is seriously kicking off. He's supposed to leave it alone tonight, when all he wants to do is pick it up. Not a happy boy at all.
Dh has gone to shut away chickens and ducks when it was my turn to escape do it. I hope he appreciates the peace Envy

Faver0lles · 23/04/2014 11:48

Have now got the DLA form.
Trying to tackle it now.

I hate forms and find them extremely confusing. I have some sort of brain block and can barely remember ds's name Hmm

I think I've already cocked up in the first three pages!

I've put in information about the consultant ds has seen, in the section about which illness/disability, I've put possible autism. Do I need tippex to paint out the possible?

Also, when did the GP last see ds about this, well, they've never actually seen him about this, I've seen or spoken to the GP by myself. Spoke to her last week about it, so is that the date I should be putting? Do I need to ring her to clarify?

I already have an a4 bit of paper full of queries of things I should know. Shit!

PolterGoose · 23/04/2014 11:56

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Faver0lles · 23/04/2014 12:08

So do you think it would be ok to write the date last week and write at the side that it was a phone appointment, or should I leave that bit blank?

Where it says "Has the child had or are they waiting for tests to help diagnose, treat or monitor their illnesses or disabilities?"
Does this include waiting for assessment for autism? We're not expecting to get any appointments for this until early 2015, do I put this down?

I'll apologise in advance. Again, please don't feel you have to answer. Forms are a particularly dodgy area of mine, and send me in a flat spin Blush

PolterGoose · 23/04/2014 12:14

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Faver0lles · 23/04/2014 12:17

Thank you Thanks

Faver0lles · 23/04/2014 12:23

Does a letter from the consultant to help get things into place at school count as a report?

Faver0lles · 23/04/2014 12:33

Ugh, sorry!
Guidance or supervision when outdoors - if we go into town or supermarket, yes needs lots of supervision.
However, he can reliably go to the shop alone at home, or walk to the park with his brother or friend, as it is quiet.
Do I tick the little boxes and explain in the big boxes?

Wrt illness etc, do I list asthma as well as AS? It is in no way a disability and doesn't hinder him, but I'll be mentioning taking inhalers later in the form as he will not do this alone.

Faver0lles · 23/04/2014 12:36

Ignore me, reading the cerebra guide now Blush

PolterGoose · 23/04/2014 12:36

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Faver0lles · 23/04/2014 14:07

Do I mention siblings and how their lives are impacted eg. at bedtime, out and about etc?

Eg. Bedtime, all attention from one parent, often two, is on ds2. Other dc left to fend for themselves, older two look after toddler, all three others get very little time from dh and I at bedtime, or a cursory few minutes once ds has settled.

PolterGoose · 23/04/2014 14:13

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Faver0lles · 23/04/2014 14:17

Ok, thanks :)

Faver0lles · 23/04/2014 14:27

Finding it depressingly easy to fill in the areas he has difficulties in :(

PolterGoose · 23/04/2014 14:34

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Faver0lles · 23/04/2014 15:21

Dd,s home now, so I've finished it for now.
Here's ds2 with Sheldon. Nice positive thing to finish up on :)

Reposting from chat. Please help!