Active discussions

Please or to access all these features

Talk
SN children

Here are some suggested organisations that offer expert advice on special needs.

See all MNHQ comments on this thread

Original poster

I've been banned again!

239 replies

SadIndigo · 18/12/2012 20:41

FFS. MN HQ has banned me again!

It appears there is one rule for everyone else on MN and one rule for me.

Apparently you're allowed to discuss everything on MN - except how to cure dyslexia. :( (Because apparently that subject is distressing to parents of dyslexic children)

So, I lose the support I need.

And MNers lose information about treatments that work for dyslexia.

I've made some good friends on here and provided and received lots of support and information and advice.

But this time I'm really going. MN HQ are a law unto themselves and they can't be reasoned with.

If you post nasty replies to this thread, please be aware that of course I will be reading them, and of course they'll hurt.

Indigo Bell

OP posts:
moondog · 18/12/2012 20:42

I'm a bit puzzled about this.
I don't agree with all you say but you strike me as very pasionate and devoted to doing the best you can for your children and helping out other people.
I don't see why you can't post about whatever you like?

EllenJaneisstillnotmyname · 18/12/2012 20:44

Oh, Indigo, I'm so sorry. Sad And what moondog said.

HECTheHallsWithRowsAndFolly · 18/12/2012 20:45

Why on earth would they ban you?

Do you sell something that you found worked for your child and you've turned it into a business and they're calling it advertising?

Have they given you a reason?

sickofincompetenceandbullshit · 18/12/2012 20:47

Yeah, but you could compromise...drop the word cure and 50% of your opponents (of whom I am not one) would stop being upset.

HECTheHallsWithRowsAndFolly · 18/12/2012 20:49

Oh. By cure does she not mean aids like those coloured plastic things and stuff like that?

Badvocsanta · 18/12/2012 21:00

Indigo.
I understand why you are so upset.
I know first hand how deeply you care about helping kids with sn/sens.
But you can't help people who don't want it/arent ready.
Horses to water and all that.
You and I both know you have cured your dds dyslexia but it seems you are not allowed to say so.
Perhaps the people who report you would listen to her teachers and senco about her amazing improvment?
Somehow I think not.
I think you have pissed some posters off and who now just report you for the fun of it. Sad.
When I think of some of the truly awful stuff that mnhq let stand and yet they ban you...its ridiculous.
I am very very sorry to see you go x

EllenJaneisstillnotmyname · 18/12/2012 21:02

That word, 'cure' is the problem, I think. I know you believe it, but the majority don't. And I've tried GF/CF for my DS2 with ASD. I believe it may improve matters for some, but not for my DS. Sad So with my sample of one I could say it doesn't help ASD at all. With your sample of 3, the interventions you have tried have helped, but that doesn't mean you've found a cure that will work for all.

AmberLeaf · 18/12/2012 21:08

Stop saying you can cure something that cant be cured.

I respect your passion and I do believe you have helped your child live with dyslexia and that some things can make it easier, but you can't cure it.

I understand why some find it upsetting when you post because you have been a bit abrasive about people not wanting to take your approach.

I'm sorry you're sad, but you need to listen to what is being said.

Whistlingwaves · 18/12/2012 21:12

This reply has been deleted

Message withdrawn at poster's request.

sickofincompetenceandbullshit · 18/12/2012 21:17

Ppfft to passive-aggressive Badvoc.

Agreed to Amberleaf and Ellenjane.

Cure and help are miles apart.

One way is not the only way.

Making parents feel like they're choosing for their child to have SN because they don't convert to your beliefs is definitely NOT the way, and you HAVE done that. That's why I'm not massively sympathetic. I admire your honesty and strength and commitment lots of the time but not at the expense of others' peace of mind on what is supposed to be a supportive board.

I would feel the same way if someone was evangelical about ABA and touted it as the only way or as a cure, and that has a far bigger evidence base.

mrslaughan · 18/12/2012 21:48

Indigo - I am really sorry to see you go, I am strong enough to take other opinions as just that, and I am always interested in what others have to say, even if I don't agree with them.
I have also been around SEN enough to know what works for some may not work for others and that many in the medical profession that deal with SEN do not have all the answers, even though they like to believe they have.and finally that open minds, open doors....

Sorry to see you go,I hope you have a Merry Christmas

EdnaScoggins · 18/12/2012 21:57

How long is the ban for, Indigo?

lougle · 18/12/2012 21:58

I hope that you get RL support. I haven't paid too much attention to recent threads regarding 'cure', but as you know, my concerns remain regarding that terminology without solid evidence (on a wide scale, rather than anecdotal).

Unfortunately, if MNHQ felt strongly enough to ban the first time, and you posted about 'cure' when you were allowed back, the second banning was quite inevitable Sad

Merry Christmas and a Happy New Year.

sazale · 19/12/2012 00:31

I do find some of your information very interesting and thought provoking Indigo. Having said that I do feel uncomfortable when you say that you've cured your children of Aspergers/dyslexia.

I think that in some children diet intervention can lessen the symptoms and I'm of the thought that it's connected to the fact that people with ASD need a smaller amount of medication than the norm so therefore they could also theoretically be effected by the chemicals in processed food.

I'm currently studying bio psychology and my tutors area of interest is ASD due to having a child with ASD and she's given me some very interesting opinions based on scientific research regarding the susceptibility to medication.

I do believe that if a change of diet "cures" one of these neurological/developmental conditions then it probably was misdiagnosed in the first instance.

Badvocsanta · 19/12/2012 00:59

Ppffft to you too, sick!
Indigo...let it go.
Find another forum where you can talk about your experiences and results without this - yes I will use the word - witch hunt.
If I hadn't found your posts and taken your advice I simply do not know where ds1 or I would be now.
So...thank you.
Take care x

zzzzz · 19/12/2012 04:53

This reply has been deleted

Message withdrawn at poster's request.

Ruggles · 19/12/2012 06:42

Just back from a few days away and so sad to see this. Sad Indigo - you have helped me enormously with your time, candid discussion of whats helped / not helped you with your DC and in turn that has helped me and my DC incredibly. This has been a really tough autumn for us and I don't know where I would be without the support and advice of people like you! I also know that its not just about your kids and this board - the trials you are doing in schools are incredible and another inspiration for the rest of us. Thank you and please stay in touch. Flowers Flowers Flowers

Badvocsanta · 19/12/2012 08:07

Indigo...home you are ok this morning.
X

FivesGoldNorks · 19/12/2012 08:11

How did you post this if you're banned? Surely mm don't allow you one last thread before a banning?

AmberLeaf · 19/12/2012 08:12

Badvoc it isn't a witch hunt

This has been an issue before, despite that, Indigo is still doing/saying the same things that have caused much upset in the past.

As I said before, I'm sorry Indigo is upset, but how many others have been upset by her words here?

After her last ban, I saw she was back, I have avoided threads she was on. In the past I have read her posts and found many of them very interesting, until I started reading about cures and reading her berate parents for doing the wrong things and thus not wanting to cure their children. It was very hard to read even though it wasn't directed at me.

I can just not read her posts, but it actually still bothers me that other vulnerable parents will be.

I feel quite strongly about acceptance and I think that children whos parents accept their diagnosis fare better. wanting a cure for something that can't be cured is not acceptance.

AmberLeaf · 19/12/2012 08:14

I expect she registered with a different email to make this post Norks.

Badvocsanta · 19/12/2012 08:37

I have seen the e mail mnhq sent to indigo amber.
They stated that she wasn't being banned for the same reason as last time.
So...what is the reason?
Why can't indigo state what has helped her dc and tell people about the many things she has tried - some of which have worked and some that haven't?
As you say, just don't read her posts if you don't like her posting style then don't read her posts.
There are certainly posters who I avoid.
It seems to me that anyone can say what they want on mn - in the interests of educating others - and yet this poster who educates and informs so many is being banned simply because she states her truth and doesn't pretend that there is good proviuson out there for our kids.
Far far too many posters on mnsn say the only route is to apply for SA - well I find that offensive.
Just look at the mnsn threads and you will see it is far from the only route and not even enforceable when it is given!!
But god forbid someone should point out there is another way.

Badvocsanta · 19/12/2012 08:43

Since when did MNSN become somewhere where a oerins can be banned just because other posters don't like their writing style fgs!?
Doesn't matter that she has helped dozens and dozens of people, she just doesn't write how some people think she should?
Pathetic.
I see things that deeply offend me on MN every day.
But to report a poster because they simply tell their experiences? And dont pander to a certain tiny minority of a forum?
Pathetic.

Badvocsanta · 19/12/2012 08:45

...and whether MNSN like it or not indigo has cured her Dds dyslexia.
Any I have cured my ds1s.
They couldn't read or spell or concentrate.
Now they can.
Remind me what the definition of cure is?
My ds1 will most likely come off the sen register next year.
That means - to me - that he is no longer dyslexic I.e. cured.

sickofincompetenceandbullshit · 19/12/2012 09:20

It is exactly that kind of aggressive post that makes people complain. 'Tinsley House mums against the world' 'whether you like it or not' 'cured', that type of thing.

To deliberately provoke isn't supportive. And you and Indigo clearly have no SN issues any more so I do wonder what the point of this fight is really.