I've been banned again!

[SadIndigo]

FFS. MN HQ has banned me again!

It appears there is one rule for everyone else on MN and one rule for me.

Apparently you're allowed to discuss everything on MN - except how to cure dyslexia. :( (Because apparently that subject is distressing to parents of dyslexic children)

So, I lose the support I need.

And MNers lose information about treatments that work for dyslexia.

I've made some good friends on here and provided and received lots of support and information and advice.

But this time I'm really going. MN HQ are a law unto themselves and they can't be reasoned with.

If you post nasty replies to this thread, please be aware that of course I will be reading them, and of course they'll hurt.

Indigo Bell

Sick...sorry to sound dense but afaik "true" autism and asd are not the same thing?
Please please correct me if I have got that wrong.
At no point has anyone said that TH can cure autism.
Ever.
As I understand it autism is a pervasive social and communication disorder that can be totally disabling.
Asd however, can be very mild and sufferers can be what is classed as hf?
TH has certainly helped my ds and his mild asd and I know it has really helped indigos ds who was hfa.
Diet and omega supplements have been used for years wrt asd so nothing new there really.
(Gaps diet etc)
I think there is some real misunderstanding here about what TH is and who it can help tbh.
If my child were severely disabled with autism I would be very angry at someone talking about diet and omega as the be all and end all BUT that's not what we are saying.
We are saying that if your child has dyslexia, dyspraxia, asd, OCD then TH could help.
That it has had amazing results for us personally.
That's it really.

I feel I need to defend myself slightly from lougles last post...
I post on lost of threads and my posting style is the same as it is here.
No one - in 4 years - has ever accused me of posting in a passive aggressive or arsey way before this thread.
It's ok not to like what I say.
It's fine.
But I am not altering my posting style because it annoys 2 people.
I am prone to waffling in irl so I consciously try not to on MN.
And sometimes you want to get a point across quickly.

"I don't believe in God should I complain and request any religious views be banned or deleted?"

Er..... nope. But then the issue of whether God exists is not amenable to and has never been scrutinized by quantitative scientific research, coff33, does not affect children's education, is not a question people come on forum requesting support for and frankly it either is.... or is not. Interventions for SpLD are real and multifarious and many people find different things help and that should be acknowledged, instead Indigo puts her view across as applicable to all children: which it is not.

So all in all you've given a pretty dud analogy. As I said: nothing whatever to do with free speech.

HW x

Sickof I would disagree with your 'mainly genetic'

In ds1's case I think the genetic 'fault' is an immune disorder. I don't use biomed these days, and never have to a great degree, but I certainly think it's potentially curable. I also think ds3 shares his brothers genetics but has avoided autism.

Simplex and multiplex autism is genetically very different, that much is known. I suspect simplex cases are simplex autisms, rather than autism as well.

Hoping to surf on Saturday zzzzzz

Zzzzz - contrary to what has been said anyone is welcome in the TH thread.
We just ask that if you think we are a bunch of nutters after reading it that you don't post that!
:)
Seriously, they are a lovely lovey bunch of people.
Lots of support, advice, laughs...
You are more than welcome.
We do try and answer as much as we can but we do sometimes refer you to the book or even to phone robin himself.
I know people on MNSN who have - literally - sold their house to pay for tribunals, legal representation etc :(
The cost of the therapies I have done with ds (all of them) amounts to abut £2000.
Yes it's a lot of money but compared to what some people have paid out its negligible really.
And of course you don't have to spend that. As hothead said upthread, a lot of it can be done at home fro free if you have the confidence.
X

Nobody is muffling any voices: nothing whatever to do with free speech. A toning down is all that is required. That was clear from the MNHQ e-mail. Go read it again if you still can't get your head around it! It's on p3.

HW xxx

Every properly evaluated scientific study of autism, particularly recent large scale global study, points to a genetic link in autism.

you have got that wrong badvoc

it is all autism, just as it's a spectrum, no 2 people have the same symptoms/presentations

unless you are talking about classic autism, then you need to be very careful where you as a lay-person draws that line

high functioning does NOT equate mild autism

I am about to disappear for a while.
I hope the thread reaches some consensus. I would like the talk about therapies to exist and flourish on the site ith the acrimony. I genuinely believe that one sensitivity in posting could achieve that.

My own pov is that autism (and asd) are caused by multiple reasons..
I think the main cause is genetic.
I also think there is an immune response and developmental delay factor too.
But, of course, that is just my opinion.

Hahahahaha

Without the acrimony

That was a bit unfortunate - wishing for acrimony...

Ah, I think I must mean classic autism.
Thanks.

Pag :)

A genetic effect does not mean autism is inherited in the way that say sickle cell, or even something complex like eye colour is though. It is clear that the inheritance of multiplex and simplex autism is very different. Autism is more clearly heritable in multiplex families, where you can see traits and the broader autism phenotype in generation after generation.

Inheritance insimplex families is different. This summarises some of the factors related to genetics in simplex families. One of the final paragraphs sums it up nicely: Is autism genetic or environmental? These new studies suggest it can be both. Genetics will not identify the environmental factors, but it may reveal some of the many syndromes within the autism spectrum (as in other neurodevelopmental disorders), it can define risk (as in other medical disorders), and it should yield clues to the biology of autism (revealing potential targets for new treatments). These three new papers on spontaneous mutations are an important milestone in a long journey. In parallel we need to find environmental factors, recognizing that there will be many causes for the autisms and many roads to find them.

The story is different for multiplex families as the genetics is different.

I don't think we have to wonder whether these kids had these conditions in the first place, I think we need to get better at understanding that there's no such thing as 'autism' and no such thing (presumably) as dyslexia. Rather there's autisms and dyslexias.

I think this is a shame, it really is because at the end of the day we are all parents wanting the same thing and that's the best possible outcome for our children.

I find it a struggle to believe that the use of the word "cure" can cause so much offence.

I dip in and out of the TH thread, I'm not attending the clinic, but am following some of the strategies. I have never had it implied that if I don't go to the clinic then I'm not doing enough. I post questions and so far all the responses I've had from indigo have been informative and point me in the direction of reading material, not straight to TH.

I would also say from what I read of indigo's post the impression I get is that she has done many, many other things to help her children prior to TH and that all these things have helped not just TH.

Somewhere up thread it was suggested that those doing TH don't place any value in statements, SALT etc. From my own personal standpoint we are doing all those "conventional" things too.

I hope indigo stays at least on the TH thread.

Wrt to the word cure...as that seems to be the big sticking point for many.
Please do explain to me why the following is not correct...
My son was dx as severely dyslexic last sept by an EP. He scored < 3rd centile for spelling and < 15th centile for reading.
He did not use vowels in his writing and in fact it was pretty much unreadable. His teacher had to take is work to the year 1 teacher to decode. He was a level 1 in all subjects :(
We also saw an NHS paed who told us that ds had traits of asd but that "a dx won't help him"
We went to a a private paed later that year who was willing to dx but by that time we were seeing such great improvements we decided not to go down the dx path.
As of now ds is a level 3 in all subject and I think may well be a level 4 by end of year 5 next year.
His writing is fantastic. Cursive and neat.
His maths has improved greatly.
He has been moved ability group for both literacy and numeracy.
He sleeps all night, no longer has stomach and bowel problems and is generally much more confident and happy.
So.
If he was assessed by an EP or paed now he would no longer fit the diagnostic criteria for dx as dyslexic or as suffering from asd.
If that isn't a cure I dont know what is.
If he is no longer symptomatic then surely he is "cured"?

I don't agree at all that it diminish's the effect and impact it has on people's lives. In fact I would say it is because of the effect and impact it has on people's lives tat people like indigo are so passionate about what they believe.

Spot on cats and zzzz.

It's just semantics really isn't it? Cure? No longer symptomatic? Progress?

...I could go on and on about the huge changes we have seen in ds1.
I have always been immensely proud of him - its just that now he is also proud of himself and if that is all that ait and rrt and TH did for him it would be enough for me.