I've been banned again!

[SadIndigo]

FFS. MN HQ has banned me again!

It appears there is one rule for everyone else on MN and one rule for me.

Apparently you're allowed to discuss everything on MN - except how to cure dyslexia. :( (Because apparently that subject is distressing to parents of dyslexic children)

So, I lose the support I need.

And MNers lose information about treatments that work for dyslexia.

I've made some good friends on here and provided and received lots of support and information and advice.

But this time I'm really going. MN HQ are a law unto themselves and they can't be reasoned with.

If you post nasty replies to this thread, please be aware that of course I will be reading them, and of course they'll hurt.

Indigo Bell

Afternoon.

We thought it might be helpful to clarify things a little here.

We haven't banned Indigo; we temporarily suspended her posting ability while we mailed her about some of her posts (and also while we sorted out why she was posting from a new account when she'd asked us to ban her under her previous account).

Here is our latest mail to her:

Hi Indigo,

Thanks for your reply. And we're sorry you don't understand.

We hope this explains it better...

We have no problem with you talking about how you have cured your DD's dyslexia (respect to you for that!) or about how you managed to do so, or even about what advice you'd give other parents whose children also have dyslexia. All of this is what Mumsnet is about.

Where we run into difficulties is when, or if, you suggest that dyslexia is universally curable - ie that every child with dyslexia can be cured of dyslexia.

While this may indeed be true of your child, it is not, to our current knowledge, true of all children with dyslexia. And, therefore, to imply that it is could either give false hope to or seriously upset parents whose dyslexic children have not been cured.

It is true that you haven't, as far as we're aware, suggested that it is a parent's fault if their child's dyslexia is not cured but we know that you have said this (or words to this effect) under your previous registration - which is why we referred to it in our mail yesterday.

We hope that clarifies things a little more helpfully.

We appreciate it's a fine line to tread but we do need to have an undertaking from you that you're aware that the line is there and that you won't stray over it.

We do hope you're able to do this. We'd love to have you back on Mumsnet. It's clear that many parents find your advice and encouragement very useful,

Best
MNHQ

Well to me the MNHQ message above sounds perfectly reasonable.

So I dont understand the issue here, Indigo I think they are saying you are definitely NOT banned.

I have no idea what you are expected to do in order for your posting rights to be unsuspended though as that is not clear from the MNHQ message.

MNHQ, if you havent made it crystal clear to Indigo how to get her posting rights revived, please could you let her know?

And I dont blame Indigo at all for starting this thread, I think it is fine, and I hope it all gets resolved soon as it seems like more of a misunderstanding this time than anything else.

Why would you come on under a different name shouting about being banned, when you patently haven't been?

Stop attention-seeking and address the perfectly reasonable concerns MNHQ and others have voiced about your posting. Simples.

Thank you for clarifying, Helen. Indigo, I hope that you can find a way forward and stay on MN.

What Greensleeves said.

If it stems from a thread that I saw, Indigo didn't expressly infer that all dyslexia was curable. I didn't read it like that.
I took it to mean that there are multiple causes, multiple opportunities to address and as far as the word 'cure', I take it to mean that there are no longer the major issues that there were once.
I have seen advice on here many times. Things that work for others haven't always worked for us. It doesn't mean that I get out of my pram and complain. I would still like to see all advice and if it works - great, if it doesn't I keep looking.

Crikey,hello Greensleeves!
Truly an old timer.
Nice to see you.

I don't really understand who is doing the banning here. Is it MNHQ or IB herself (like last time)?

Either way it would be a pity as, despite IBs sometimes abrasive and dismissive posts to other POVs or differing from her own, advice from MNttrs (and I count myself in this number), her experiences and insights could be a lifeline to someone in the same position as she was. She is clearly a passionately evangelical believer in TH. Rightly so in her own case, and this experience is valuable and should be given a platform.

Since returning to MN I dont see much evidence of her previous tone so am re this turn of events. I sincerely hope she doesnt go, but maybe qualify some of her more assertive moments with a proviso that not all dyslexic children follow her DCs pattern and are not guaranteed to be helped by TH.

I agree with her though that with any SN child you should try as many different methods out as you are able. Some work and some don't, but if you never try you will never know.

moonbag

What I really love is that I now appear to have been banned as my password doesn't work and can't be re-set.

What an irony-presume the same people who are yammering about free speech for Indigo are the same people who've reported my (possibly ill-advised, but I was trying to make a point about how the TH stuff appears to others) cure thread. I didn't realise you were serious, Badvoc, when you said I should be banned for it.

What we all need in our lives: more bullshit.

Have emailed MN but no response. Ah well-let's let Mumsnet deteriorate into a TH advert and ban the words Statement, SALT etc. I'm sure that's the way to go. Wouldn't want any opposition.

Helen message sounds very reasonable and measured, unlike some of Indigo's contributions.

I'm new on here therefore do not know of Indigo's past postings. I had asked the question how Indigo had cured her child's severe dyslexia. I was not at all upset just really curious what she had done to sort it out.

Perhaps a way forward is to write a self-help book on this topic, as I am still curious.

Take care

It was a joke sick! ....I certainly haven't reported you!
MNHQ are getting a bit twitchy lately IMO.

...but, yes, your post was ill advised, and offensive to me.
At no point have indigo or myself advocated spending lots of money on therapies - the fact is that anyone can do what we have done by buying a £4 book off amazon. Yes, indigo and I have taken it further, but only because we wanted to/can afford it. To suggest otherwise is deeply deeply offensive, but I dont suppose you see that?
Indigo is an absolute fount of knowledge wrt to dyslexia and has had years and years if experience in trying to help her kids and others.
You make it sound like she is some sort of charlatan taking £££ from people and selling snake oil!!
That is not only unfair but patently untrue.
...maybe that's why you were banned??

I've never said she takes money off people. You know that. But she does encourage seeing Robin. V expensive. When people have asked if it's OK to phone instead, or just use the book, the visits are recommended. That's on the record. So there is an implication that, if you spend more, it will be of more value. That may even be true! BUT IT'S NOT THE ONLY WAY.

I have a mass of experience of helping other people's children in my job; I have even won awards. BUT that still doesn't give me the right to say that I have the answer. Nobody does. Because what is right for one is not right for another.

You were banned because your post was a direct personal attack on another poster.
A poster who isn't even posting anymore.
Well done on your awards.
I haven't got any awards.
I am just a parent trying to help her child.
I am just not doing it the way you think I should.
For all your talk of acceptance, your sarcasm and vitriol come through in every word you write.
I am sorry that indigo has left/been banned.
Mumsnet is the poorer without her.

As ever I find myself agreeing with zzzzz

GF did help my son. No he can't talk aged 13, but he isn't beating the shit out of his head on concrete every day which did some good (actually peanuts do that to him as well which is weird).

When we saw the neurologist and paediatrician combo (and a great combo they were as well - one of the best I've seen - and NHS) they asked whether we'd tried GFCF.

And I do think CF 'saved' ds3 from a lifetime of autism (he's NT). I sometimes whisper that quietly to people if I think they might want to know it.

Like zzzz I want to hear about everything. I'm capable of deciding what might work and what isn't worth trying and fully accepting of my son's severe autism. I'm also well aware there's no such thing as autism (or I suspect dyslexia). It's autisms and dyslexias. DS1 would quite like curing, or at least he'd like to be rid of a lot of his autism, he has made that perfectly clear over the years.

Oh and he's no longer gf because we did cure his leaky gut. I suspect his was related to antibiotic misuse though and prob a lot easier to cure than some of the other kids I come across.

I'd hate to see this board deteriorate into fighting.

IMO It's between Indigo and MNHQ, and I think we should just let them hash it out. I see little point in all of us getting involved in a bun fight over it.

Bloody hell, Badvoc. I am agreeing with you. Not setting myself above you. You made the point that Indigo has helped lots and lots of people and had years and years of experience and my point about awards wasn't to boast, but to say that it's not about that - I have experience too, but different, and not worse.

I don't think you're doing it wrong; where have I said that? I have said that TH is not the only way. No vitriol except at people who choose to make others question how good a parent they are by telling them they're making the wrong choices. Where have I said that you are making the wrong choice?

I don't actually give a fuck what you think and the same is true the other way round, so this is ultimately pointless. You do bring out the bad side of me, that's true, because your responses are either passive-aggressive (my favourite being the 'I am sorry that you think that me stating that my sons dyslexia is no longer a problem = aggressive') or outright aggressive and this whole -sad, knowing smile and shrug thing that you and Indigo know the secret and we're all poor deluded fools does my head in, but there we go. You don't affect my life, so I can walk away from you, and Indigo, and MN, and be fine.

The people I'm bothered about are the people who have/ haven't complained to MN, the people who are 'me 5 years ago'/ '9 years ago', who are lost and desperate and don't know what to do for the best and are told that they too can cure their child's SN if only they do x, y and z. I don't give a fuck what x, y and z are; people should NOT be told that. Neither should people be made to feel like crap for not doing x, y and z. Maybe g, h and k work for their child.

I'm cross on their behalf. I have NEVER complained about Indigo, you or TH. But some people have. And it's not enough to say 'they shouldn't be upset'. They are.

PS unless you're MNHQ, you don't actually know why I've been banned. I know you think that you know everything, but not that.

This is all so stupid.

Whatever good is marred by all this BS

I came to Mumsnet for the special needs board and now I on the whole avoid it.

When so called advice is delivered in such a hostile way I switch off.

What do you think will happen when these children that are 'cured' get older, when what they do/eat/etc is not controlled by parents?

Would this be a bad time to remind everyone it's Christmas soon?

Indigo knows what she has to do to meet MNHQ's request.

Sickof, it was daft to start that thread. Sorry you were (possibly?) banned for it. Talk to MNHQ, I'm sure you'll sort it out.

Badvoc, you do post aggressively, you must know it. Or perhaps it's tone. I don't know, but I've said before that the whole TH subject is militantly guarded, which is bizarre at best.

ds1 eats everything now (although his eating will unfortunately always be in part controlled by someone else).

I do think there's a danger in saying using the word 'autism' (or 'dyslexia') rather than 'autisms' or 'dyslexias' but I do like to hear about everything even if it's not something I'd ever try.

Lots of friends are raving about camels milk at the moment. It's not something I'd order in, but if in the future I see it in a supermarket or health shop I might give it a go. (Like A2 milk.) But I need to hear about these things to reject, put to one side to come back to later or embrace.