I've been banned again!

[SadIndigo]

FFS. MN HQ has banned me again!

It appears there is one rule for everyone else on MN and one rule for me.

Apparently you're allowed to discuss everything on MN - except how to cure dyslexia. :( (Because apparently that subject is distressing to parents of dyslexic children)

So, I lose the support I need.

And MNers lose information about treatments that work for dyslexia.

I've made some good friends on here and provided and received lots of support and information and advice.

But this time I'm really going. MN HQ are a law unto themselves and they can't be reasoned with.

If you post nasty replies to this thread, please be aware that of course I will be reading them, and of course they'll hurt.

Indigo Bell

Sigh.
No.
I dont think I know everything.
You said yourself your post was ill advised. I agree.
I am sorry my posts infuriate you so much - yours make me want to kick puppies :) but that's not the point.
When I think back to How utterly utterly desperate I was 2 years ago...I would take any amount of ause from any poster to prevent even one other parent feeling like that.
That's all.
I can only talk about what has helped (or not) my child....
EP report/NHS paed/LA = waste of time
Ait/rrt/TH = life changing improvements for my son.
And that, the in final analysis is all I care about.
And as for you being deluded...where in all my posts have I said that? On the contrary, it is indigo and I who have been called exactly that and worse by posters. Apparently we are in a cult! (Dons foil hat and dances round garden)
Quite funny really.
I agree there is no one way.
I agree that we all (or at least the vast majority of parents) do out best for our kids.
But I will still recommend TH to anyone who asks about dyslexia and asd because I know what a huge difference it can make to a child's life.
And it really saddens me that it pisses so many people off :(
Check it out, or don't.
Follow the programme, or don't.
No need for all the angst IMO.

What's RRT?

It would be helpful wouldn't it if people would work on identifying subgroups. AIT didn't work at all with ds1, but understanding his issues better myself now it's clear that he was never really a strong candidate. Whereas a friend's dd benefitted greatly (she did it at the same time). But again she had lots of signs that it might benefit her.

^But I will still recommend TH to anyone who asks about dyslexia and asd because I know what a huge difference it can make to a child's life.
And it really saddens me that it pisses so many people off^

I don't know why you dont get that its not that that pisses people off

Its the crap about if you dont follow your path then we dont want the best for our children, that is why the trouble arose last time dont forget.

Amber...to answer you question as best I can...the answer is I don't know!
Ds1 is 9 and he has been on a healthier diet since jan this year.
He is no longer on the NHS surgery waiting list for exploratory surgery because of his stomach problems.
Obv I am massively pleased by this.
Even at age 9 he knows its just not worth feeling that bad for the sake of a McDonald's.
for example, last weekend it was his friends birthday. Afterwards 5 of them were going to KFC. Ds1 was invited. I didn't say anything, ds1 himself made the decisions not to go and eat junk food that he knew would cause him pain and illness.
Maybe when he is older he will rebel? Who knows? For now we are both glad he is no longer in pain.
I could go on and on about his huge academic, emotional and physical strides this year but a) it would bore you, b) you can read about it in the
TH thread :)
I honestly dont think my posting style is aggressive...I post in lost of threads and this is the first time I have been told this!
Sometimes written words don't quite come out they way you want them to..there is obv a lack of inflection and nuance that the written word just can't convey.
But anyway.
To anyone I have offended either today or in the past, I apologise.
I can assure you that was never my intention.
But.
I have been offended both today and in the past.
Both indigo and I have been vilified - I don't think is too strong a word - for going to TH and have never and will never receive an apology.

Thanks for answering Badvoc.

I am sorry but the MNHQ e-mail did seem entirely reasonable.

When have i ever said that amber?
Ever?
Rrt = retained reflex therapy. I went to inpp at Chester and I really recommend it.
Indigo wishes she hadn't bothered with the BO, ait and rrt and had just gone to TH I think but I am really glad I did both with ds1.
The ait basically cured his noise sensitivity (which was awful) and the rrt sorted out his dyspraxic tendencies....soon after staring he learnt to ride his bike, swim, use his scooter..all things that had eluded him up to that point.
His movements became less jerky and uncontrolled and he just...did it :)
He now sleeps through the night - on his own!! - which last year was something my dh and I despaired of tbh :(
All in all I am really glad I did ait, rrt and TH.
I am not glad I paid for an EP report, went to an NHS paed (god, it was awful) and battled with the school.
It caused me a lot of grief and got me precisely nowhere.
But not all paeds are crap, not all EP reports are cut and paste jobs, and not all schools are bad wrt sen.
Maybe I was just unlucky?
Good luck x

Oblomov...yes, but can you tell me exactly why indigo is being banned again?
It eludes me I am afraid.
They even state she hasn't done what she was banned for last time!
Then again, I have had about 2 hours sleep per night since Saturday so am not exactly firing on all cylinders iyswim? :)

No you havent as far as I know, but Indigo has

She isnt banned though is she? same as she wasnt last time.

Amber...indigos posting style is different to mine and I know she did a lot of souls searching after last time.
She was genuinely upset she had offended anymore.
The dramatic change in her children ( call it what you want) has blown both her, the teachers and Senco away. She is, understandably IMO, quite evangelical about the things she has done...she has done far more than me I must add! :) GF/cf/homeopath/enzymes etc...
I think - and I dint like to speak for her really - that she feels attacked for simply speaking the truth about the results of her therapies.
They may not work for all children. Of course.
But they work for hers.
And mine.
And countless others.
I dont really know what more I can say, and I don't want to be accused of being passive aggressive again.
I think indigo feels there is one rule for one type of poster, and one for another.
Iyswim?
Anyway, I dont think she will be back and I will certainly be curtailing my MN-ing from now on. I will stick to the TH thread I think. Hopefully posters will find it if they do a search of the site.
Merry Xmas everyone x

Badvoc:"They may not work for all children. Of course.
But they work for hers.
And mine.
And countless others."

This is what SHOULD be said. Nobody can have any issue with this sort of statement. This doesn't imply or state that there's only one way, or that people are wrong/ misguided if they don't choose that route. This is very different from it being a cure.

I'm sure Indigo will be back. I hope she is, as she does seem to help many people, and broaden people's ideas. But I hope she takes on board what has been said.

We all have enough grief in RL without being made to feel crap online.

Hothead....that's really interesting.
(I don't find your posts Ott at all btw!)
When we started these therapies with ds1 I was in a bad place. I felt very guilty and felt I had failed my son (please note, this is how I felt, not how I think everyone feels!)
I simply did not have the confidence to do it myself, even though I bought lots of books (Sally Goddard Blythe etc)
I needed someone else to tell me what to do and advise me. Does that make sense?
I guess We have spent about £2000 in total on ait, rrt and now TH but we have had help from GPS and tbh I would pay it all again if I had to.
But as you say, you can do these therapies for a fraction of that cost.

Sick...I don't think so. This has really shaken her :(

Ah hothead you sound a bit ahead of me at the same stage. It took me a long time to realise I was the expert - the real expert on my child, and that I should think about what an (expensive) expert could bring to us.

In fact the things that have helped the most (LAMP and surfing) have been free/cheap

Hmmm...you see I am not sure my ds would have been able to cope with ait or rrt before we did them. And I think they helped him to cope with TH so well....
I agree that early intervention is key but for my ds I think we did it at the right time, even though I will never stop feeling guilty and that I am not/haven't done "enough" to help him.
Really must go to bed...am starting to babble...:)

Badvoc, I really do think you are misunderstanding here. Nobody objects to you going to TH. Nobody objects to you having a support thread, although I do object to the fact that anyone who posts anything other than full acceptance is told to stop posting there. Nobody objects to you telling other people the (perceived) results from your time there.

I (and I'm sure others) object to vulnerable parents being told that if the do various things, their child will be cured of a condition which is a) hard enough to get identified in the first place b) thought to be organic in nature, ie. a definite difference in brain wiring.

indigo hadn't been banned, but if she can't face reigning in her postings then it will be an effective ban, I can see.

Your postings do come across as aggressive because you use such clipped and direct sentences, which have no room for negotiation. There is no discussion or exploration, just a statement of 'facts'.

Lougle.
I have never said any of the ^ above.
To anyone.
I am not responsible for indigos posts anymore than she is mine.
Everyone is welcome on the TH thread, (there are people who post who do not go to TH btw) however, as it is a thread specifically for those following the TH programme and is a support thread for those people I do think it is of limited use to people not doing it iyswim?
It annoys me when people post negative comments on it, not because I think they are wrong but because it is a support thread! Would people post negative comments on a mc support thread, for example? I dont think so!
My sons improvements are fact. I have the school and Senco reports to prove it.
I don't know why that's so hard for people to accept?

But...I agree. Lougle.
There does seem to be a real sense if misunderstanding wrt this issue.
Perhaps it's the use of the word "cure"?
I don't know.
It's a tricky one.
As far as indigo and I and others are concerned we are curing our kids of the developmental delay syndrome that causes their symptoms (whether they be symptoms of asd, OCD, dyslexia, dyspraxia....)
I am sorry if other posters find that hard to hear/read.
But that's how we see it.
It's not for everyone...our approach won't help all children but I honestly dont think indigo ever said it would. She tends to stick to the dyslexia threads and this programme has had amazing results for kids with dyslexia.
I truly truly believe that within 10 years our approach could be mainstream,...there are school trials going on as we speak.
But, hey...you are quite within your rights to think I am deluded, gullible, whatever.
I will just continue as will others. As will you.
We all do what we feel works and what is best for our kids.

It is your arsey tone Badvoc. It really is.

I am staggered that you still think anyone objects to the TH thread or you speaking of your experiences.

Many times people have said what the problems is and you're are still going on about people having a problem with TH thread etc, although I think it is worrying that you won't 'allow' anyone with misgivings about it to post.

You keep saying you havent said this and that, but you know Indigo has# and you appear to be representing her on this thread, when people say what she has said that they have objected to, you're sayin 'Ive never said that' ok, fine, but please stop defending the indefensible.