Making hay while the sun shines and always adoring Beatrice.

[cupofteaplease]

I have chosen the thread title this time, because current circumstances means the sun isn't always shining for Beatrice at the moment. Indeed, she is currently in hospital in a fair amount of discomfort. However, when the sun does shine, and we have bright and clear days, we pack in as much as we can.

When we brought Beatrice home from SCBU, we had the consultant's words ringing in our ears, 'Take her home and make some memories.' I feel confident and proud that we have made a treasure trove of memories, however long Beatrice's life may be. She continues to be surrounded by so much love and adoration from her family and I feel this love has helped her to thrive.

During the difficult days, such as these, we pray hard for peace and calm, and for a quick resolution so we can take our darling girl home and make even more precious memories with our beautiful Beatrice.

As with all other threads, same rules apply , read if you want to, post if you can, but above all, please spare some positive thoughts or prayers for Beatrice.

Such an amazing girl! Keeping those positive vibes coming her way x

Yea for Bea . She is such a trooper . Hope you have a peaceful night . I will check in again when I wake . ( probably around 2 am ) x

I'm so pleased, been checking back often to see how the little lady is doing x

I've only just stumbled across this thread for the first time, and I just wanted to tell you that your girls are all so, so beautiful. Beatrice has a light that shines in her eyes, and it's an inspiration to see. Sending wishes that she continues to stay strong for you all.

With you through the night .

Me too if you need a spare hand.

Way to go Bea, keep it up little lady all your mn aunties are right behind ya and sending you,mummy and the rest of the teaset all the positive thoughts and love in the world

So relieved to hear better news. Keep it up Bea. TAke care of yourself too Cup. Hope you both get home soon.

Well done Bea, keep it up!!

Oh that's fantastic news.

Well done Bea, you are the most amazing little girl.

Now, keep it up, we're all still sending you strength love and light. x

Right, I'm feeling in a bit of a state.

Consultant has just seen Beatrice in HDU and said that she can go home today as she's back down to .5 o2 and well in herself.

However, he said that her chest xray has shown that her heart appears enlarged. He said it could be positional, so they've ordered nan ultrasound to see what's going on. We aren't sure if they can fit her in today or if she'll have to come back as an outpatient.

I feel like I've been punched in the stomach. I'm sure it's just positional, and I can't borrow trouble ahead of time, BUT, if there's a problem she can't have corrective surgery so what will happen. I feel sick. Positive thoughts please, again

holding your hand cup. No point me telling you not to worry but can you distract yourself till scan is done? - write out christmas related lists etc, lurk on trivial parts of mumsnet....

don't panic cup if the cons is letting her home then I would think it can be controlled and assisted. It may not be as serious as it sounds and I would think there are things that can be done...meds maybe if necessary.

Hoping the repeat scans will show things to be alright. Try not to worry about the unknown....celebrate she is coming home with you today....one step at a time eh
Hugs and strength to you all xxx

Can't offer any advice, but thinking of you Cup. Bea is doing so well and beaten the odds so many times, I'm sure she will do it again

I posted too soon.

Sorry you have this to deal with just when she's so much better.

As Whatthe said, one step at a time. No reason to believe it's anything other than positional at this point and we all know Bea's knack of challenging the odds.

I hope they can fit her in today, rather than leaving you to worry.

Sending love, light and strength to you and willing Bea to beat the odds again. x

Prayers continuing. It's a big step from HDU to home.

Really sad to hear this. Pleased that you can go home, but sad that Beatrice has this to contend with. Prayers, love and hugs. X

Dutch it is indeed a big step. Beatrice doesn't do things by half...

They can't fit her in for an ECG today, so I guess we'll just wait.

She'll be fine. She'll be just fine.

She will be fine.

Praying.

Cup, glad the beautiful Bea is feeling better!
I know its just one story but my cousin lived with an enlarged heart for 20yrs, it was part of his genetic condition... nothing to do with your dd i know, just wanted to say that an enlarged heart isnt always something serious, it may just add to the list of clinic check ups.
Take care

So glad you are going home :)

Crap that you have something else to worry about but they wouldnt let her home if they thought it was serious. As they said its probably just positional, i think Bea likes keeping you all on your toes, cheeky madame!

Sending calming thoughts and hope the app comes through asap xx

Love and hugs.

Continuing to pray for Beatrice - and keep repeating your mantra Cup. Prayers to help you do just that - Beatrice has shown us so many times what it means to have hope. x

Come on Bea! I don't often post but I have followed your story and often think of you and your family.