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Making hay while the sun shines and always adoring Beatrice.

989 replies

cupofteaplease · 29/05/2012 14:30

I have chosen the thread title this time, because current circumstances means the sun isn't always shining for Beatrice at the moment. Indeed, she is currently in hospital in a fair amount of discomfort. However, when the sun does shine, and we have bright and clear days, we pack in as much as we can. Smile

When we brought Beatrice home from SCBU, we had the consultant's words ringing in our ears, 'Take her home and make some memories.' I feel confident and proud that we have made a treasure trove of memories, however long Beatrice's life may be. She continues to be surrounded by so much love and adoration from her family and I feel this love has helped her to thrive.

During the difficult days, such as these, we pray hard for peace and calm, and for a quick resolution so we can take our darling girl home and make even more precious memories with our beautiful Beatrice.

As with all other threads, same rules apply Wink, read if you want to, post if you can, but above all, please spare some positive thoughts or prayers for Beatrice. Smile

OP posts:
DottyDot · 15/07/2012 21:22

Aww - fantastic! Smile

boomdecker · 15/07/2012 21:32

Wow! Go Bea!! Surpassing their expectations, how about that.

So glad this has given you a boost. Please give Bea a cuddle from her very proud MN Aunties Grin

Lougle · 15/07/2012 21:54
Smile
moajab · 15/07/2012 22:52

Fantastic news Cup! Bea is doing so well and teaching the 'experts' a thing or do!
And Dr Doom smiling as well - wonders will never cease!

ExitPursuedByABear · 15/07/2012 23:27

It is so lovely to hear of Bea responding to what goes on around her.

Yay Bea, and yay Cup.

saffronwblue · 15/07/2012 23:27

Oh that is lovely. How nice to have a meeting that focuses on how Bea is developing and what she is achieving.

trumpton · 15/07/2012 23:35

Yay for team Bea . What a lovely positive meeting . You show em girl !

eightytwenty · 15/07/2012 23:54

This reply has been deleted

Message withdrawn at poster's request.

Thumbwitch · 16/07/2012 00:00

Fantastic to hear that it's not degenerative - what wonderful news! So pleased that things have really taken a positive turn with the medics :) xx

Scheherezade · 16/07/2012 08:32

Fantastic news, she's a credit to you cup :)

Hopeforever · 16/07/2012 17:39

Thank you for the wonderful update

GinAndStoic · 16/07/2012 17:42

oh, thats wonderful news!!

drowningyouout · 16/07/2012 18:09

Fantastic update. I'm so glad you had such great news after a few difficult weeks. Grin

Go Beatrice.

I have decided Beatrice stands for

Beating
Everything
And
Totally
Refuting
Inbedded
Common
Expectations.

The actual meaning is much nicer and says it much better though. Wink

ohmeohmy · 16/07/2012 18:10

So glad they are seeing what you have always known. She is a star.

Northernlurker · 16/07/2012 19:47

Fantastic update! We believe in miracles don't we? Smile

foofooyeah · 16/07/2012 23:13

Lovely news! Must be so nice to have a 'good' appt. Just the boost you need.

madwomanintheattic · 16/07/2012 23:59

Hyoscine patches were great for dd2, but she developed skin irritation. As a tip, you can put them on her shoulder blade if she fusses with the ear site.
Lovely news x

fhdl34 · 18/07/2012 16:55

What a lovely update to read, and just what you needed judging by your previous posts. We use those ear patches at work with my service user (I'm a carer) but we alternate which side we put them on otherwise he has a skin reaction to them. Interesting to read they can go on the shoulder blade as well, I'll mention it to his wife when I'm next in as an alternative.

EyesDoMoreThanSee · 18/07/2012 22:28

Well done Bea, we are alll rooting for you in this house. And it goes to show just how amazing the brain is, keep smiling tea set you are all amazing x

MNP · 23/07/2012 17:06

What a very positive meeting Cup and Bea is coming along beautifully in her own time.

strictlycomedancingdiva · 24/07/2012 00:32
Smile

Such positive news!

cupofteaplease · 24/07/2012 20:33

Well all is still going well here with Beatrice. She is doing well with physio, enjoying music therapy, not enjoying the heat...! Not much else to report at the moment. My wonderful work colleagues are planning a fundraiser in September to raise money to buy Beatrice some sensory equipment- any recommendations of where to buy from?

OP posts:
JustFabulous · 24/07/2012 20:35

It is good that you don't have much to report but it would be lovely to hear more about what Beatrice does each day

annalovesmrbates · 24/07/2012 20:53

Brilliant! I was hoping that no news was good news, and it is! Go Bea!

annalovesmrbates · 24/07/2012 20:54

Brilliant! I was hoping that no news was good news, and it is! Go Bea!