Not borrowing trouble ahead of time, just enjoying each day with Beatrice.

[cupofteaplease]

Thanks to Thumbwitch for inspiring the title of this new thread.

I will do my very best to minimise my worrying about the future as none of us know what it holds. For now, it's all about celebrating Beatrice's life today, every day.

As always, please feel free to follow us on our journey, and thank you in advance for the wonderful advice I am bound to receive from fellow parents, of SN children or otherwise.

Here's to a positive, uneventful thread!

Oh cup, is there someone you can call for advice? Or just for support? Crossing all fingers they calm down for little Bea x

Could it potentially be the infection causing them as bea uses her strength to fight that off and so is a bit weaker (sorry if i'm talking rubbish!) Sending lots of love xx

And Bea, I second fabwoman, give her a kick or three from us! She clearly missed the class in people skills and patient care at medical school! Having said that, I'm glad you feel like you're reaching an understanding with her cup, hope she has seen enough of Beatrice to know just what a little fighter she is dealing with!

BB3 You are spot on. She has apneas when she is brewing an infection. It's like her body goes into deep hibernation and her brain forgets to breathe.

I've asked for the door and all blinds to be left open so the nurses can see in at all times. When she has an apnea I shake her stimulate her and it starts her breathing again. When we nearly lost her at the end of January, stimulation didn't work and she ended up on 15 litres of oxygen. She's currently on 0.4 but breathing steadily. Please, please keep everything crossed for her.

everything crossed here for you lovely xxx

Crossing everything here too xxx

Everything crossed. Love and thoughts.

Thinking of you and praying for you. Xx

Thinking of you and praying for you. Xx

Oh poor Bea and you: everything crossed here as well.

Everything crossed here and I have made dh cross his legs too.

Sorry Cup, somehow missed your post about Bea's breathing, I was too seeing red re Dr Doom.

Fingers are crossed for a good night ahead x

My thoughts and prayers here.

too busy seeing red

Will be praying for Bea here and for you.

More prayers for Bea. x

Prayers here too x

Thinking of you all and keeping everything crossed xxx

sending my very best wishes xx

Lots of big hugs for you and Bea - I hope you are both having an OK night x

Praying for Bea too xx

Praying for you xxxx

Oh bless her thinking of you all xxxx

In my prayers, as always xx

Crossing everything possible xxx

Is she on antibiotics for the infection as well as oxygen? Praying for a steady night for you xxx

cup I just spent the afternon at a Tibetan Buddhist festival here in Melbourne. I sat in the temple and sent up prayers for Bea.