Not borrowing trouble ahead of time, just enjoying each day with Beatrice.

[cupofteaplease]

Thanks to Thumbwitch for inspiring the title of this new thread.

I will do my very best to minimise my worrying about the future as none of us know what it holds. For now, it's all about celebrating Beatrice's life today, every day.

As always, please feel free to follow us on our journey, and thank you in advance for the wonderful advice I am bound to receive from fellow parents, of SN children or otherwise.

Here's to a positive, uneventful thread!

Hear hear!

Marking my place on the Beautiful Beatrice Thread. Sending the Teaset all good wishes and lots of positivity.

Great title and first post! We're all here and looking forward to more updates and photos - with much love and crossing of fingers and toes as always.

Great title and great post :)

Found you!

Found you!

Hey, Cupof! I just realised I hadn't checked in on your thread in a while. How is beautiful Beatrice?

Great to see a new thread

This is a reply that really belongs in the last thread but it got eaten up as the thread was full:

Oh Cup, it probably is frustration talking, but it certainly isn't fair. I work now, but being on maternity leave with a single NT child was still much harder at times. Can you swan off for a week and leave him to it? I don't suppose so, but he'd learn pretty quick. Does he understand that you never get a lunch break? That a coffee with friends whilst still looking after kids is as close as you get? That you must feel huge responsibility whilst 'just' looking after a baby?

Hope all is well this evening

Echo-ing lovely thread title and first post

Here's to an uneventful and happy thread. I haven't posted before but have been following your threads cupofteaplease. Lovely first post, and can I just say that Beatrice is possibly the most beautiful child I have ever laid eyes on (including my own ) I know you probably get that a lot, but no Mother ever gets tired of hearing that her children are gorgeous .

Good luck and keep on keeping on.

Hey cup

Just popping in to say hello.

Here's to a positive, smiling, uneventful but full-of-hot-chocolate-and-cream thread for beautiful Beatrice xxx

Just woke up and my Mum's voice was clear in my head " Never trouble trouble until trouble troubles you " Wise old bird was
my Ma. X

Marking my place

Hoping all is well

Also popping in to mark place on new thread.
Keeping meeting up with your friends for hot chocolate (in spite of what DH thinks). The last thing you need is to become a slave to housework isolated. Hope you've sorted out your differences by the way!

Lovely thread title Cup and looking forward to more photos of Bea and the Teaset.

Having caught up on the old thread ...

Maybe you should keep a minute by minute diary of a typical day Cup as a wake up to your DH and as a back up in case your ill, as a typical Bea day would be helpful for everyone, include her meds and times (changing these as they change) ditto her physio. Then you could do 1:1 with the Teaset on a weekend and he caught have quality (working) time with Miss Bea.

.

On DH, I think he was just taking his anger and frustration out on you.

My DH says stuff like that after a bad day and we aren't under anywhere near the emotional and physical stress that you both are. Not that this is a good enough reason, he shouldn't have said it - but don't be too hard on him, he's probably feeling equally as scared and up and down as you are and doesn't have an outlet (other than you) on which to share his emotions. I expect my DH's moods would be an awful lot worse if he were in his shoes. The whole teaset are doing brilliantly, allow yourselves some blips every once in a while xxx

Hi Cup. Lovely new thread :)

The diary idea has potential (as long as it isn't too onorous) especially if you did get 'flu or similar and someone had to step in temporarily. Just a 'day in the life of Bea' type thing?

Hope you've had a good day x

Hi there, hoping this thread is where Dr Doom apologises and Bea laughs :o

IME dh's are very simple creatures with the emotional range of gnats and can always be relied on to say the wrong thing when they are stressed, angry, sacred and frustrated which Mr Cup must be struggling with atm. No this doesn't excuse him but tragically men don't have the gifts that mothers do x

cup it is important that you and your DH spend a little time together without? Beatrice and keep talking. Or could you do a date night at home? Most men feel left out a bit when a new baby arrives but the stress is so much more when there is a child with special needs. The suggestion that your DH has some contact with other Dads in the same position is good but there is often nothing out there for the Dads. Has he got a brother or close male friend he can talk with? He sounds stressed which is understandable but getting at you is not helpful. My ex DH was diagnosed with depression 4 months after our son was born. Sometimes men look like they are coping when in reality they are not.

ooh a new thread already! just marking my place, love the title, sending you all much love xxx

Actually when you consider all the events that have happened since Beatrice was born you are all seem to be coping very well, it is a very very difficult situation you are in, you have a beautiful baby to love but the future is unpredictable which is bound to put stress on all of you. You have managed to get Beatrice home and to have some lovely family occasions. You have had to take on a very steep learning curve in all the medical aspects of caring for Beatrice. Thats some achievement. Even getting Bea ready to go out for a coffee with friends and coping with all the oxygen etc and paraphanelia that has to travel with her cant be easy.

Hi, thanks for the good advice re dh. We spoke a little this morning and discussed ways to possibly make our lives easier and less stressful. It'll probably come to nothing but at least we had a dialogue.
I went out to buy his birthday present earlier and when I got back he'd taken Bea to be weighed, done her meds and her physio, so he can get it right when needed (not sure if the physio was right, but at least they played together )

Whilst I was 'sitting on my arse all day' I organised for one of Bea's regular nurses from the children's ward to come and babysit Saturday night, so we're going out for dinner with his best friend and wife- no children! A bit of couple time will do us good. I'm also out on Friday night for a work's dinner, so I'm looking forward to some Me time.

Bea hasn't been very forthcoming with her smiles of late, but she's doing lots of chatting instead. I've added a picture of her mid conversation, and one of our first bath together last Saturday!

I won some tickets to the Baby Show in London on Sunday- will I see any of you there?! Dh wants to enter Bea into the competition there for Face of The Baby Show 2013, I'm not sure they'd go for all the tubes, do you?!