Please or to access all these features

SN children

Here are some suggested organisations that offer expert advice on special needs.

Alternative opinions of ABA?

225 replies

kpjigsaw · 03/05/2011 19:21

We are strongly considering starting an ABA programme for our son, and it's been very useful looking at some of the posts on here about it. It seems that a lot if parents have found it to be very valuable which is why we are considering it. I was just wondering whether anyone has had a bad experience of it - I don't mean an individual poor tutor or whatever, I mean does anyone feel it didn't work or was even detrimental? Just trying to get a balanced view as it seems all the negative opinions are held by the 'professionals' rather than people who have actually experienced it.

Any thoughts?

OP posts:
sickofsocalledexperts · 05/05/2011 18:05

But zzzz, you have never done ABA so you are just basing all your views on hearsay. That's what I object to. I wouldn't opine on Mandarin philosophy if I hadn't studied it a bit. What gets me is when people just swallow whole the prejudices against ABA propagated by the "autism establishment". As I did myself, missing out on crucial years of my son's development. If I could have just parented my boy normally, as I have my nf daughter, I would have done so! Are you protesting too much?

Fedupandfuming · 05/05/2011 18:08

Yes, no-one on here has come close to saying that ABA didn't work for them, only that they IMAGINE it wouldn't.

StarlightMcKenzie · 05/05/2011 18:12

Okay, a bit dry and only came on my radar when I became an ABA geek, which incidently I became since ds stopped his ABA programme Hmm

These are real links etc. but I don't expect anyone to click on them especially, I chose a few select ones that made me laff!

ABA is not about 1-2-1 tutoring:

INCREASING SEAT BELT USE IN SERVICE VEHICLE DRIVERS WITH A GEARSHIFT DELAY

EFFECTS OF NUMBER AND LOCATION OF BINS ON PLASTIC RECYCLING AT A UNIVERSITY

PILOT STUDY OF NATURALLY OCCURRING HIGH-PROBABILITY REQUEST SEQUENCES IN HOSTAGE NEGOTIATIONS

ATTENDANCE RATES IN A WORKPLACE PREDICT SUBSEQUENT OUTCOME OF EMPLOYMENT-BASED REINFORCEMENT OF COCAINE ABSTINENCE IN METHADONE PATIENTS

StarlightMcKenzie · 05/05/2011 18:16

PLEASE don't spiral into personal insults. There is NOT ONE parent here who isn't working flat out as hard as they can for their children. There really is NO right way of doing things.

There are good reasons for inconsistency even. Hell, there are good reasons for lazy parenting!

zzzzz · 05/05/2011 18:17

This reply has been deleted

Message withdrawn at poster's request.

StarlightMcKenzie · 05/05/2011 18:24

'Lots of people have lots of opinions about me as a person, my mothering, my stance on many issues'

Oh goodness, don't I know what that is like...........

sickofsocalledexperts · 05/05/2011 18:30

And yes Silverfrog, sometimes I think the most tricky and heart-rending posts on here are from the mums with higher functioning or aspergers kids, particularly when combined with the teen years!

LeninGrad · 05/05/2011 18:37

This reply has been deleted

Message withdrawn at poster's request.

LeninGrad · 05/05/2011 18:39

This reply has been deleted

Message withdrawn at poster's request.

zzzzz · 05/05/2011 19:30

This reply has been deleted

Message withdrawn at poster's request.

StarlightMcKenzie · 05/05/2011 19:40

zzzzz, I'm so sorry you're upset. I'm upset myself that it got heated.

It's not good for the board.

Fedupandfuming · 05/05/2011 19:58

I was very upset by what was being said. Not sure this board is the place for me if my parenting can be implicitly criticised by people who have no clue about my life or my child's difficulties. I really was shocked by that and it's the last thing I or any of us need

niminypiminy · 05/05/2011 20:15

"I suddenly am struck be how similar these discussions are to the pro/anti breast feeding and working mum/stay at home mum discusssions. Perhaps ABA is that sort of issue. I find it sad not to be able to discuss things without everyone [including me] getting upset."

I've quoted zzzzz again because she (or perhaps he) said exactly what I was thinking as I read through the debate since I last posted.

I would like to make it clear that my decision not to do ABA is not a criticism of ABA itself or of anyone who does it.

I do what is right for my child, for my family and for me. I hope that what I'm doing is working: sometimes it does, sometimes I feel that I'm just banging my head against a brick wall, sometimes I look into the abyss. But most parents who think about what they do feel like that.

I'm glad that people who do ABA feel that it is worthwhile. That's great. I did read up on it, I've been party to quite a few discussions about how brilliant it is (many of them on here), and in the end I decided it was not for us.

That doesn't make me a bad or uncaring parent, it doesn't mean I do less to help prepare my child for the rest of his life. I just do differently.

C'mon people, we know that when it comes to people on the autism spectrum that different doesn't mean worse. Shouldn't that also be the case with parents of children on that spectrum and their approaches to parenting?

If we can't all get along on this board, where we're in the same boat, how the hell can we help the neurotypical world get along with our children?

T

zzzzz · 05/05/2011 20:21

This reply has been deleted

Message withdrawn at poster's request.

zzzzz · 05/05/2011 20:25

This reply has been deleted

Message withdrawn at poster's request.

justaboutWILLfinishherthesis · 07/05/2011 14:43

This reply has been deleted

Message withdrawn at poster's request.

willowthecat · 07/05/2011 16:43

I completely agree with you about the need for freedom of choice and respecting other parents' choices - and there is never going to a 'one size fits all therapy' for a condition like ASD. However it's not a level playing field in that some therapies are widely available TEACCH/PECs/Music Therapy/Horse Riding/Going to Supermarkets (Hmm) whether parents choose them or not whilst ABA is not widely available. But that is not to say the widely available therapies are wrong for everyone because they can suit some children in some circumstances.

IndigoBell · 07/05/2011 16:44

Drama classes is a very interesting recommendation. Has got me thinking...

How old is DS1?

sickofsocalledexperts · 07/05/2011 17:49

Very happy to have a debate on ABA, but think those who criticise it from a position just of hearsay rather than actual experience need to be a little more understanding. It is a far easier life if your child is diagnosed hf or aspergers, as the state mainstream system is pretty much ok. It's those kids who can't hack it in mainstream (like my boy, and those of very many of my pals) who are offered the sub-standard TEACCH style bollocks. The moderately and severely autistic kids are pretty much given up on, at age 5, in many TEACCH schools. I know because I've seen them, and actually experienced them. Reading and writing are considered "inappropriate" and "life skills" are the main focus, so that they are lucky if they emerge at 18 knowing how to wipe their own arse. Sorry to be graphic, but this is the reality out here for those of us not lucky enough to have mainstreamable kids.

justaboutWILLfinishherthesis · 07/05/2011 18:44

This reply has been deleted

Message withdrawn at poster's request.

justaboutWILLfinishherthesis · 07/05/2011 18:45

This reply has been deleted

Message withdrawn at poster's request.

sickofsocalledexperts · 07/05/2011 19:00

That is true Justa, and is exactly why I would love to get ABA techniques into the mainstream system - just common sense principles really. It shouldn't be the case that you have to fight to get a decent education for ANY autistic child. But what irks me is the "establishment" encourages people to take a view on ABA, without any actual knowledge of what it involves. It is prejudice, pure and simple, as they are pre-judging something they know nothing about. And actually, privately, many LAs admit full well that ABA is the best intervention for lots of autistic kids, but they can't say that out loud as they think it's too expensive. It needn't be, if only we swap our TEACCH training program in special schools and units for an ABA program (as is the case in the US and Canada).

dolfrog · 07/05/2011 19:13

justaboutWILLfinishherthesis

just in case you missed this, I have created an online PubMed Research paper collection regarding Applied Behaviour Analysis (ABA) I hope I have not missed any

messmonster · 07/05/2011 20:03

Thanks Dolfrog for collating all of that in one place - really really helpful.

On a general note and just a point of interest really... Does anyone know why ABA is always referred to as a treatment for children with autism. EVERY single reference to it I see has autism in the same sentence and quite a few of the suppliers also have autism in their titles. Not a grumble, just a genuine question as to why it seems to be so intrinsically linked with ASD? Is relevant for me as mum to a child without autism, trying to put together a case for LEA in support of ABA.

Many thanks

sickofsocalledexperts · 07/05/2011 20:24

Messy - you raise a very good point, as the Behaviour Analysis (BA) industry and academic world itself also gets annoyed at the constant linkage only with autism. It's actually much bigger than just autism - BA is a long-established science of predicting and influencing behaviour. I have recently seen a friend whose boy has MLD (but no autism) have a stunning set of results from ABA, and even win ABA funding from her LA due to the completely outstanding, demonstrable results. I am going to PM you a very useful paragraph which sums up the breadth of BA as a science. Hope it helps in your battle. ABA (or the application of behaviour analysis, the science) is simply a method of teaching, using behavioural understanding, and as such can be applied to any form of teaching.