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Our world is getting smaller each year- now family holidays are impossible

82 replies

Jimjams · 26/08/2005 14:24

Just back from our latest campervan trip. In some ways it was a success. DS1 was asleep by 9pm - away from home he usually can't settle/sleep at all (last 2 trips to a hotel he's been up screaming at midnight and clawing at the door for example).

But it was sooooo difficult. Because ds1 cannot go outside the van without someone to hold his had (and because he wanted to be out all the time). It meant that one person had to go off with him whilst the other one had to look after a 3 year old, a 7 month old and do all the cooking etc. All the jobs that needed doing (toilet emptying, washing up etc) could only be done once ds1 was settled so tended to be done about 10.30. Couldn't have a shower except at night. Obviously could hardly have a conversation with dh. And of course once outside ds1 doesn't want to do anything conventional - he wants to walk some route he;s set up, sniff fans in the shop, have a 10 second visit tot the washing machine, flit into the diabled toilet and flit off somewhere else. DS2 wanted to go to the playground and half the time had to wait because there was no-one to take him- one person couldnt manage ds1 and ds2.

The kids all loved it, but I hated the person the stress turned me into. Usually I can kind of switch off from the screaming but I found it really hard in such a small, enclosed space. And the constant flittiness of ds1 and his need to go out and then trying to set boundaries (no you can't go into that person's tend, walk down the back of that caravan etc).

Ds1 loved the holiday so much he cried when we got home.

So we will go again, but only with him, and we'll take the other 2 on a separate holiday. Of course I realise we are very lucky to even have that option. With 2 adults to ds1 alone its entirely manageable. We can't take a week off and do day trips from home because we struggle to think of anywhere ds1 can manage, and then we still have to manage 3 of them- 2 with a totally different agenda to ds1.

When I think back to when ds1 was 2- we went to France (ferry trips went off the agenda after last years trip to Ireland), we were able to sit on the beach with a bucket and spade (haven't managed to do that since), stay in a cottage (screams all the time now), eat in a restaurant and various cafes (havent done that for years). Our world seems to be shrinking and I struggle to think of anything we can do as a family now. We can't even vist any of dh's family (too far away- so nowhere we can stay, for his sister, and his parents are a ferry ride or plane ride away- both impossible).

I know we're not the only ones in this situation (hello Davros), but feeling mightily fed up with it all and a bit self-indulgent.. Seems a bt of shame we can;t even manage to do something that ds1 enjoys (there aren't many things that fit that category!)

Anyway now we keep being taken outside to look at the campervan. We're back early and I hope the owners pick it up early otherwise we're going to be doing a lot of walking up and down the street.

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Jimjams · 26/08/2005 14:54

cabins/statics anything like that is useless because ds1 wants to sit in the car - and is up at midnight clawing at the doors screaming to get to the car. campervans work probably because they're a link with home- we've left the house in it- so will return or something- who knows. He's calm and relaxed in them. They're also bllody expensive - affording someone on top would be very hard- and I'd have to find someone who wanted to sleep in a tent (another set of pitch fees for us as well) next to an autistiic kid and spend her time with 2 other young children.

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maddiemo · 26/08/2005 15:02

I can't think of any cheap options at all. The only famillies I know in a similar position are in a good financial position and have bought second homes.

Sorry it has become impossible to do holidays together.

Jimjams · 26/08/2005 15:06

My aunt has bought a second home in France- but we can't do the bloody ferry! Also we'd have to go armed with window locks and door bolts to install. And then he'd probably want to sit in the car!

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mizmiz · 26/08/2005 15:10

Flying not an option? I know an autistic lad whose mother did a lot of symbol/picture work with him beforehand as well as trips to an airport with great success. He know jets off every year.

Or...would renting the same place each year be a possibility and/or taking stuff from home like bedding?

(Many apologies if these are idiotic suggestions.suggestions.)

mizmiz · 26/08/2005 15:12

Re buying...I'm not sure what your financial situation is,but some friends recently bought a very nice campervan secondhand for £8,000.

Blu · 26/08/2005 15:22

Phew JimJams - just phew. I don't know how you do it. But what pleasure you manage to drum up for your DS1 - That's lovely. well done.

Maybe separate hols ARE the answer. I know, not in the Enid Blyton Happy Families Picture Frame, but a happy family is whatever makes everyone happiest. DS2&3 would be able to spend time in the playground, on the beach, dong their thing, and then DS1 could have his own camper-van-fan-shop fest. And, most importantly, less stress for you.

Oh well, I guess you have come home with lots of washing - so that will provide some solace when the camper van disappears!

Jimjams · 26/08/2005 15:23

mizmiz- I know plenty of autistic kids who have been on planes- but there is absolutely no way that ds1 could manage it. He might- but he could also refuse point blank to do the return journey. He can't queue, can't wait- no way are we risking it.

We would need a 6 berth campervan- second hand they are over £20,000. New we would be looking at £33 000. No way.

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mizmiz · 26/08/2005 15:25

How about 4 berth (what my friends have) plus a tent?

Jimjams · 26/08/2005 15:28

It's not just us being wusses by the way. At his SLD school- with plenty of other severely autistic children- including a few in his class- we've been told that when they go out (weekly) he is the one that they worry about- he is always paired with an ex runner as she's the fastest and he's the one who can tolerate busy places like cafes etc the least. Their definition of him doing extremely well is 20 minutes in a busy cafe whilst eating a few chips. He came home with a big beam in the home school book that day- that's a long way from being able to manage a plane tbh.

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Jimjams · 26/08/2005 15:28

But a decent 4 berth is still expensive- and who is going to sleep in the tent? Believe me we've thought of every angle.

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soapbox · 26/08/2005 15:29

Jimjams - it all sounds so very stressful and I can see how your world seems to be shrinking around you!

I don't imagine it is of any help at all but if you ever want to have use of our place while we are away - even if you pitch teh camper van in the garden and DS2 and 3 sleep in the house, you would be very welcome.

If we were away at the time, I'm fairly sure our nanny would be available to help out with DS2 and DS3 - she could manage both OK I think. She has no experience of SN so I'm not sure how she would manage DS1 but you know she is pretty flexible and I would think she would be a great help at least!

House is completely secure to the rear garden - big padlocked gates and high walled garden. Also would be easy to childproof inside. The front gates can be shut while loading up children and then opened to drive out of, so safety at the front not too bad. Front door has high bolts and all of the downstairs rooms have old fashioned top locking bolts - from teh outside - so useful if you want to make some rooms off bounds or keep them in certain rooms. Back door is double chubb locked. House is detatched so no worries about DS1 noise.

We're not too precious about stuff either!!!!

You could even meet up with some Bromley friends

On the other hand if you and DH or jsut you need a respite for a few days then you would always be most welcome

If there is anything we can do to make your world seem a little bigger for you all then please shout

Blu · 26/08/2005 15:31

No, JimJams, no-one who read your description of the ferry journey last year could in any way call you a wuss, I promise you.

I was in tears for you all, reading it.

You are obviously doing really well to do what you do manage.

Jimjams · 26/08/2005 15:32

Other problem with a tent is that they take 2 people to put up- with one person holding ds1 there's only one pair of hands- putting up atent AND looking after a 3 year old and 7 month old- it can't be done.

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tamum · 26/08/2005 15:34

Jimjams, I am so sorry. I think the idea of separate holidays sounds like the best option for now, doesn't it? You have to have some rest too. I am really hesitating to post this because I know how much you hate people saying it, but in terms of ds2 and ds3, it's probably only another 3 years to get through like this, isn't it? By the time ds2 is 6 or 7 and ds3 is nearly 4 they will be able (and probably keen) to help out with things, able to entertain themselves a bit so that looking after them won't be completely knackering and you can take turns with ds1. Your world will reach its smallest point and then expand a bit, I hope. Give me a good kick if I've said the wrong thing (as I suspect I have).

Jimjams · 26/08/2005 15:36

gosh soapbox thank you- if ds1 will ever stay in someone elses's house again I'll take you up on that. I think he is getting better with that so in a year or so that might be a possibility. thank you I'm touched! (he's generally not too destructive - unless you get him in a throwing things or flushing things down the toilet phase )

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Jimjams · 26/08/2005 15:37

no you're right about that tamum- once they get to an independent phase it'll be easier. I suspect they might not want to go on holiday with ds1 though as he limits where they can go. It's only me yearning for something we can't have.

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tamum · 26/08/2005 15:40

I can inderstand that- you want everyone to be able to enjoy the same things, don't you. (you as in "one", not just you)

Jimjams · 26/08/2005 15:45

Exactly - and you look around and there are lots of people sitting outside having cups of tea whilst thier children play next to them- or those of ds1's age go off to the playground by themselves. We're all either shut in the campervan falling over each other or outside with ds1 hand on hand trying to go into places he's not allowed to. Even dh used the harness for the first time this holiday (he hates it). I don't WANT to have to be harnessed to my 6 year old.

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Fio2 · 26/08/2005 15:47

its like us we have to shut ourselves in rooms otherwise its just a nightmare

jenk1 · 26/08/2005 15:47

oh jimjams i really feel for u my son has AS and is hard enough taking him anywhere on holiday he thinks he,s going to "die" if we have to go on a journey,me and dh have talked about seperate holidays for us and dd and have felt really mean on ds but its like u say its what makes your family environment happy and manageable, from the sounds of it you are doing a really good job with your DS and credit to you and your dh for that

Jimjams · 26/08/2005 15:50

God Fio we should shut ourselves in a room together- can you imagine

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Fio2 · 26/08/2005 15:51

bring on the vodka

soapbox · 26/08/2005 15:51

Jimjams - you could always bring a camper van and park it in the courtyard and see how he goes

I am serious - and of course you could use our nanny or ask your parents to help out which ever you prefer - although a combination of both might be best

I guess we;ll have to put a cover on teh drain to catch all the stuff that might get chucked down the loo - oh well - its only stuff

Jimjams · 26/08/2005 15:54

We blocked a drain with a towel- it flooded the next door neighbours garden. eek. "we" being ds1 of course.

Must admit fio a great advatage to ds1 being asleep by 9pm (earlier than at home!) was cracking open a bottle of wine.

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soapbox · 26/08/2005 15:56

I bet that first sip tasted divine

Just off to partake myself - last night of holiday so feeling a bit down

But after reading this it seems not so bad afterall