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Our world is getting smaller each year- now family holidays are impossible

82 replies

Jimjams · 26/08/2005 14:24

Just back from our latest campervan trip. In some ways it was a success. DS1 was asleep by 9pm - away from home he usually can't settle/sleep at all (last 2 trips to a hotel he's been up screaming at midnight and clawing at the door for example).

But it was sooooo difficult. Because ds1 cannot go outside the van without someone to hold his had (and because he wanted to be out all the time). It meant that one person had to go off with him whilst the other one had to look after a 3 year old, a 7 month old and do all the cooking etc. All the jobs that needed doing (toilet emptying, washing up etc) could only be done once ds1 was settled so tended to be done about 10.30. Couldn't have a shower except at night. Obviously could hardly have a conversation with dh. And of course once outside ds1 doesn't want to do anything conventional - he wants to walk some route he;s set up, sniff fans in the shop, have a 10 second visit tot the washing machine, flit into the diabled toilet and flit off somewhere else. DS2 wanted to go to the playground and half the time had to wait because there was no-one to take him- one person couldnt manage ds1 and ds2.

The kids all loved it, but I hated the person the stress turned me into. Usually I can kind of switch off from the screaming but I found it really hard in such a small, enclosed space. And the constant flittiness of ds1 and his need to go out and then trying to set boundaries (no you can't go into that person's tend, walk down the back of that caravan etc).

Ds1 loved the holiday so much he cried when we got home.

So we will go again, but only with him, and we'll take the other 2 on a separate holiday. Of course I realise we are very lucky to even have that option. With 2 adults to ds1 alone its entirely manageable. We can't take a week off and do day trips from home because we struggle to think of anywhere ds1 can manage, and then we still have to manage 3 of them- 2 with a totally different agenda to ds1.

When I think back to when ds1 was 2- we went to France (ferry trips went off the agenda after last years trip to Ireland), we were able to sit on the beach with a bucket and spade (haven't managed to do that since), stay in a cottage (screams all the time now), eat in a restaurant and various cafes (havent done that for years). Our world seems to be shrinking and I struggle to think of anything we can do as a family now. We can't even vist any of dh's family (too far away- so nowhere we can stay, for his sister, and his parents are a ferry ride or plane ride away- both impossible).

I know we're not the only ones in this situation (hello Davros), but feeling mightily fed up with it all and a bit self-indulgent.. Seems a bt of shame we can;t even manage to do something that ds1 enjoys (there aren't many things that fit that category!)

Anyway now we keep being taken outside to look at the campervan. We're back early and I hope the owners pick it up early otherwise we're going to be doing a lot of walking up and down the street.

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Jimjams · 26/08/2005 16:11

ds2 had his first mcdonald's on holiday- that was a success- parked in an m5 service station overlooking a busy train line- even ds1 had chips. I was trying to explain the concept of a happy meal to ds2. My friend said "that's really good to get to three and a half without having one" but really its just a symptom of how much his life is narrowed by ds1 as well. Of course in a few years time he'll be shoving thm down his neck.

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RTKangaMummy · 26/08/2005 16:15

Would it work if you went on holiday with another family with AS child or children then they would understand DS1 needs and would also be able to help out with DS2 and DS3???

So they could have a campervan next door to yours so you would both have indepenence and support and extra pair of hands? IYSWIM

Jimjams · 26/08/2005 16:17

mizmiz- earlier you said "Flying not an option? I know an autistic lad whose mother did a lot of symbol/picture work with him beforehand as well as trips to an airport with great success. He know jets off every year. "

The problem we have is that currently ds1 doesn;t have the attention to look at PECS symbols in this way. One of his IEP targets is to start to follow a worksheet at school of his days activities- but they are having problems even getting him to look at the sheet. They started on that target last term- and I think he managed to attend to the worksheet twice with a lot of prompting (and its an attractive worksheet for him- photos of himself and his teachers for example- which is the sort of thing he likes). It's also done in a very familiar way. The lyout is the same each day and he gets one a day. I try to go through it with him at home but usually he eiether won't look or throws it across the room. He uses PECS well to request now, and will use with prompts when cross because his needs aren';t being met- but his attention is a long long way off being able to use PECS for preparation.

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Jimjams · 26/08/2005 16:20

RTKM- the only people who really understand the level of attention needed are those who have to do it themselves- so they can't as they are too busy with their own problems. Other families can be very tolerant of ds1's behaviour, but they don't have that fixed eye that is required. Also tbh I don't really have any friends who fir that category- they all either have severely affected children- or my NT friend has 4 kids herself so is a bit stretched to say the least!

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Jimjams · 26/08/2005 16:21

Actually I do have a friend with a dd with AS/ADHD- very high functioning- but she finds holidays incredibly difficult- and her sister has ADHD as well. Parents hands are tied there!

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RTKangaMummy · 26/08/2005 16:23

ok sorry, didn't think it through fully

Jimjams · 26/08/2005 16:25

TBh anyone volunteering to go on holiday with us would need their head examined

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anniebear · 26/08/2005 16:32

Sorry Jimjams it didnt go too well

xxxxxxxx

pixel · 26/08/2005 19:25

I think Tamum has a good point about things getting easier as the two youngest get older. We had many of the same problems as you when we took ds camping this year (having to leave him in the car while we put the tent up seemed mean after a 5 hr journey but what else can you do?). The only difference is that my dd is 9.5 and very trustworthy. She was also able to make friends with the other children on the site and go off and play so we didn't have the guilty feeling that she was missing out. This really makes all the difference to your relaxation levels!

Jimjams · 26/08/2005 19:47

bloody hell it's a good job we did come back early- it's due back tomorrow- I thought we'd hired it until Sunday. Now have to empthy and clean it once ds1 is in bed....

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Davros · 26/08/2005 20:06

Oh dear Jimjams, I was wondering how it was going. An "experience" anyway? I know ALL about this I'm afraid. I have bored on MN many a time about our one and only holiday in 8 years. We can't go anywhere without at least one extra pair of hands but, apart from money, we don't WANT to spend our holiday with a virtual stranger. Even the people who help us out regularly do not live with us or us with them. Our only holiday was because we had an au-pair living with us for 6 months when DD was born. We didn't go on holiday for the previous many years because of safety (the idea of arriving somewhere after tiring travel only to find that every bloody door/window can be opened...) and secondly because it is NO holiday for us. People just don't get it and this is one of my hobby horses! I am sick and tired of giving long, polite explanations to people about holidays. I am currently getting DS familiar with a local charity that does residential holidays as a possibility for next summer and we are hoping that DH is going to make some ££££ soon and we will try to buy a holiday home in the UK (spontaneity and no air/sea travel). I had to explain AT LENGTH our difficulties going on holiday to someone I thought was a good friend recently. I have told her this boring stuff several times but she still grilled me and then suggested we go to an adapted B&B...... she had already been to New York, Venice and Skiiing this year. I am extremely pissed off with her at the moment. A parent at DS's school asked other parents on our EGroup for advice about taking her DS on holiday for the first time. Every single one suggested getting a portable DVD player so he could watch films on the journey as all theirs do! I must have the only child with ASD who will not sit still and watch a film/DVD. LIke Jimjams DS, he will not sit still, wants to go when you arrive somewhere, wants to get into another area or someone else's space etc etc. We also don't really want to go away with another family, why should'nt the holiday we might eventually manage to have be what we want it to be and not a massive compromise? At the moment we just couldn't do it with DD being 2.5 yrs but maybe next year, in the UK..... watch this space.
Sorry Jimjams, this isn't helping!

Jimjams · 26/08/2005 20:28

oh davros you have made me feel better- as ds1 is the same - he is the only child i know whose attention cannot be held by a dvd player (especially in a strange place with lots of nooks and crannies to check out- and keyholes etc). Sorry it's awful that the fact that you are in the same situation makes me feel better, but I'm fed up of being the only one I know who can't do these things (actually I may know one or two more now through school). If you buy a 2nd home buy it near us We can meet

Now I have to go and clean the bloody thing (dh is currently unloading).

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mizmiz · 26/08/2005 20:39

I'm still thinking about this jimjams. It's not right.

How about looking at it from a new angle? Would it not be more relaxing to stay home,have someone minding your son and for the rest of you to go ff and do things together.
I seem to recall you being in a nice part of the country?
We have a lot of people staying with us throughout the year and find ourselves doing things with them that we wouldn't otherwise which is lovely for our children especially.. Have you checked out your local tourist information centre?
You could be pleasantly surprised.

Also are you bothered about you missing out on a holiday or your other children. If it's primarily for you,then fair enough,but in all honesty I don't think it would/will matter for the other two.

Valid points about the children's ages. Anyone with three children would find holidaying (and day to day life) hardgoing! It will be so much easier when other children are older and it will be interesting to see how the dynamics between the three develop.

Davros · 26/08/2005 20:43

Just sneaked up to check on DS (asleep since melatonin has started working, another story!). Wanted to say that my rant was not directed at anyone on MN or this thread, but people in RL. The friend I mentioned has not only been told the whole long, boring situation but has a child with SN/disability herself, althogh not ASD.
Jimjams, if we can buy somewhere, your neck of the woods sounds nice. I can hold open weekends for MN/SNers and "certain" people can come over the summer (fantasy is as good as a holiday!).
These sort of things are what makes me start thinking about being bottom of the pile and trying to think of others lower down in the pile to make me feel better, how shitty is that?

Davros · 26/08/2005 20:46

Mizmiz has a good point. As we have accepted that "proper" holidays are not an option unless certain planets are in certain positions once every 2000 years, what we do is try to get the most out of being at home. This year its not possible as DH has to work too much but he has taken time off before, we've got help with DS and done nice things from home or just slobbed at home. The main thing for us at the moment, is we could really do with a break from DS because every night, night after night for years is quite wearing! One night away for us or for him would be great. I am working on it with Soc Svs...

mizmiz · 26/08/2005 20:58

Fingers crossed for you davros with SS.

Jimjams · 26/08/2005 21:41

The thing is though that ds1 loves the campervan so much that we want to go with him. We will do it again- but with just him and with 2 of us. That way it is manageable and as he does sleep in a campervan we get a few hours in the evening as well (which if 2 of us go with just him won't have to be spent doing all the jobs). I would love to take the other kids as part of my parenting package was holidays with the family iyswim- it's how I imagined things would be and they aren't.

mizmiz- we also live in a busy part of the country during holidays- so we can't really access anything. Sometimes ds1 will go on moor walks but often refuses point blank. So we don't exactly experience much of it.

Good luck with SS Davros. I know we will get to the stage of needing to sort out him staying somewhere at some stage (probably when ds1 gets to your ds' age) but I'm holding out for as long as possible.

Thai take away just arrived- I'm off.

And I know what you mean about the bottom of the pile stuff Davros- unfortunately everyoje seems to use me as their bottom

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SoftFroggie · 26/08/2005 23:11

I expect this is (a) something you've thought of, and (b) unworkable... apols for being interfering.

You'd like to buy a campervan, but can't afford it.
If you ever did manage to get together some of the cost of it, could it be possible to help finance it by renting it out, either independantly or through a brokering campervan rental company? Would this help enough towards the cost to make it more manageable?

ghosty · 26/08/2005 23:17

Hugs Jimjams ... {{{{}}}}
Enjoy that take away ... delicious IIRC!

Jimjams · 27/08/2005 09:29

It was delicious ghosty.

I have no idea how that would work SF- I suspect it'll be easier just to hire one. I don't think we could afford it anyway tbh. Maybe I'll ask the guy today about part ownership

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Tiggiwinkle · 27/08/2005 11:38

I wondered where you were this week Jimjams-did not realise you were away on holiday. Sorry it was so stressful.I have given up on the idea of holidays being restful and just look upon them as a "change" tbh!
Have you thought of getting an older type of campervan? Not as luxurious, I know, but much cheaper. We used to have one of the old type of Volkswagon campers for many years-they are very trendy now as well! Just as functional as the newer ones and can be a lot of fun.
Hope you get to relax a bit-and school is not so far ahead now!

Jimjams · 27/08/2005 12:07

Looked at them- but they're too small for 5. Also we need to be able to sort of shut ds1 in at bed time (using a stair gate) or he won't settle. Tent addition won't work as there's no way of putting it up with one person. Also would be really hard to be in one with the doors shut amd 5 people iyswim. I fancy one for myself when its just me and dh though.

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RnB · 27/08/2005 14:58

Message withdrawn

Jimjams · 27/08/2005 15:09

dh would be a right state.

Oh god no way could we try centerparcs. I can only imagine what entertainment we'd provide for the other visitors

If we had a campervan we could visit the in-laws (well the mainland based ones anyway). Perhaps it's good that we can't afford one

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Davros · 27/08/2005 15:59

CentreParcs is another of those ideas people always come up with. We did it once and took a tutor with us. It was OK but nothing great or special for us and just as hard to access restaurants etc. Just shut up in a different home iyswim or the car. And they are too expensive for what they are imo or not expensive enough and could be a lot better. The furniture and cups, plates etc were like something out of a Hall of Residence, why couldn't they just get down to Ikea and get something cheap with a bit of design? Jamie Oliver's got a VW camper van, all plush cream leather and a Porsche engine!
ROFL Jimjams at people using you as their bottom