DLA wait times August 2022

[Bunnysarah]

I made a claim for DLA 5th August so thought id start this for others who have made a claim same time!!!
My little boy has kabuki syndrome, severe hypotonia, feeding difficulties and sleep difficulties. Very anxious waiting a decision!!!!

So I'm really not very hopefull I mean why put it aside and then nothing put down why it's been put aside x

Do you have diary's of your days? I've been told they help I've started doing diary's since his diagnosis more for help for me but will use it for my appeal. They could just be waiting for thr SENCO to respond if they haven't got much information from them? Is your child in mainstream or SEN? I'm lucky with my sons school it is mainstream with SEN units so they are amazing with him x

He's in mainstream school but my sons is good in school so I'm abit lost I don't no what's going to happen xx

The dm not said no or yes xx

Just keep calling and asking questions. Really hope you get somewhere 🤞 xx

Gemma was awarded!! She said so on another post!!! MRC 🥰

Hi guys yes he was awarded mrc still in shock 😲 good luck everyone xxx

What’s “the other” post? I’m trying to follow as many as possible to try and gauge whete I am in the que without ringing too many times :) scan 5th augs :)

www.mumsnet.com/talk/childcare/4663757-dla-wait-times-part-5-2022?reply=121454804 other thread good luck x

Just click on the link x

Thank you so much :)

No worries 👍

I'm 3rd august had decision today

@Greencouch made up for you!!! Xx

When updating uc do we need the letter from dla? Do we need to upload proof?

No you don't dla share the information with uc xx

Thank you @Gemma96x id have missed the deadline for getting it backdated if it wasn’t for you :)

On week 15 of waiting, I seem to have lost the letter I got stating they have received the forms. Do you know if I can ring up and update without a reference number?

@Lissysmum21 i believe they’ll just ask you a different question for security?

Have repeatedly tried ringing but it's hard as I work 9-5 on Monday, Tuesday and Thursday and have therapys with liss every other day. Is anyone else still waiting my scan date is the 11th of August

Thank you for this thread, really helpful. We just put our son's DLA in on Wednesday 28th Dec as he was diagnosed with ASD & ADHD on 1st Nov. I've sent in his report, but not much else as he doesn't have therapy for those needs (he gets support at school and they are great), his referral for assessment started Jan 2021. Imagine we will hear in about 12 weeks, which is a shame as I thought it would be sooner. Already get childcare from UC, so hoping they would backdate disabled child element to 28/12. His HV (years ago, he'll be 8 in April) said he has hypermobility in his elbows (I think he has in his other joints too). He needs way more supervision than other kids his age, as doesn't always pay attention / look out for danger (read is away with the fairies most of the time & very high energy), goes through bouts where he doesn't sleep through the night. Needs a lot of persuasion / help with toileting, bed time, etc. but highly articulate & often fixed interests. High anxiety about things like thunder storms. Not sure everything is clear on form. Unfortunately he had play therapy 2 years late in spring 2022 (covid delays), due to he was likely sexually assaulted/abused by a staff member at his nursery (he disclosed to us when nearly 4, but too wide a window, not enough evidence to bring any charge). I could send that & ed psych report, but full assess report more current. Fingers x he is awarded as believe his ASD & ADHD will always impact on his life & education. I sent claim & report via tracked and signed for.

Also we are in Wales, they have ALN act & One Page Profile here, so there is no chance of an EHCP (me & hubby have mostly worked in England, he's a primary teacher, I'm an FE college careers advisor).

Teachers section completed on form & his yr 1&2 teacher and yr 3 teacher (who was also one of his Reception teachers) have signed it.

Elysia-Jane was sadly refused, never got sent a letter stating this I phoned for an update to be told she had been refused nearly a month before. I put in a reconsideration and weirdly I just had a phone call from Universal Credit asking if any of Elysia-Jane's care needs had changed and that I would after the call had been completed hear a decision in 7-10 working days has anyone else had UC ring about a reconsideration?