what ever happened to the This Is my child campaign?

[Samcro]

i thought it was done to educate people on children with disabilities...
yet here we are with thread 13 about CG full of rubberneckers making disablist comments about brain damage Or should I say ignorant comments.
why is mn hq not saying hang on a minute this isn't in the spirit of the site and reminding posters of the TIMC Campaign .

I have been following and posting both CG threads. I think the majority of posters have been very sensitive to what is going on for him and his family and are desperately sad at the way this has been played out in the media. It has opened up a lot of interesting debates and topics which I believe will prove to be very important in the future with regard to these types of decisions. If people don't like it they don't need to join the discussion. There are loads of types of threads on MN that I am not keen on so I just don't go there.

I've posted a few times on the threads thinking they may be interesting. What I've realised is that it's a few obsessed individuals managing to find so much to say about the case, being offended by a Facebook page they won't just ignore and thinking they are helping by reporting people on that page or sending messages to GOSH.
The attitude is very clearly of superiority to the parents with token expressions of sympathy.

Noeuf and DixieNormas is that what you genuinely think of me and the others. I can say I have walked in Charlie's parent's shoes and yet I get insulted when I share my story so that folk may get some idea what it is like. Still if insulting me and the other parents who spoke of their pain at loosing much loved and wanted children makes you feel so superior knock yourselves out,

I skimmed some of the earlier threads about Charlie at the time but I can't bring myself to go back to them. Thinking about what things might be considered disablist/ableist are: using the word 'vegetative' (which disabled activists consider ableist); using phrases to the effect of 'what kind of life is it if you can't hear, see or communicate' (I know the context it's being used is in relation to a terminally ill baby, but people absorb these messages and they do result in ableism); and posters referencing a Peter Singer article to support arguments (Singer supports euthanasia of disabled infants, you don't get much more ableist than that).

But I think this will come back to a 'PC gone mad' argument just like we faced over sexist, racist and homophobic language and values in the 80s.

oh and sorry I should have included Samcro in my previous post

Nellie. I genuinely don't understand the need to pour over the FB page, look for comments to pick apart, stalk the FB pages of the family and post a comment practically every hour. I think that's obsessive. I think the general tone is unpleasant - the fake concern that he may be made a ward of court, that the parents may be dragged from the bedside as his life support is removed: it doesn't read well. That's my view on the threads.

I'm sorry you have suffered . Losing a child is appalling.

I didn't know that about vegetative, makes sense really when you think about it. It's not a word I would generally use, but I know I did use it when I quoted nhs info when I was explaining the difference between brain damage and brain stem death (such as on www.nhs.uk/Conditions/Vegetative-state/Pages/Diagnosis.aspx )

I've read every one of them, no they are not nice at all. People are trying harder not to slag off the parents now mnhq have commented but its still coming through in the snidy tone.

^

Yes,to,this.

I'm with you, Dixie

Knock yourself out

Well said Dixie

for anyone who's lost a child

'The threads arnt nice, they have a nasty , slightly obsessive undertone and like Noef says full of fake concern.'

I don't like them because I think it's all been said. So I don't go on them . I don't however think they are 'nasty' 'obsessive' or 'full of fake concerns'. I think that's a shit thing to say about people, many who are bereaved or have experience of life limiting illness, sharing their thoughts about a tragic case.

So EVERYONE posting cyclically on 13 threads is in that situation?

Those who are and have been in that situation there are no words.

But many haven't. They are obsessing.

'So EVERYONE posting cyclically on 13 threads is in that situation?'

No. I said many.

I didn't see any obsessive fake concerns on the threads I read. It's a high profile tragic case, people will have an opinion . That does not make them nasty, fake or obsessive.

Oh come off it. Some people are posting all the time on the threads; they noticed the mum had stopped her FB page (why look?) and there's constant visiting of the FB Charlie's army page just to get outraged at what's posted. And then all the 'of how terrible if he's made a ward of court/if they have to be dragged from his bedside' - I think obsessive and fake is a pretty good summary

Agree with Noeuf