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what ever happened to the This Is my child campaign?

318 replies

Samcro · 21/07/2017 11:02

i thought it was done to educate people on children with disabilities...
yet here we are with thread 13 about CG full of rubberneckers making disablist comments about brain damage Or should I say ignorant comments.
why is mn hq not saying hang on a minute this isn't in the spirit of the site and reminding posters of the TIMC Campaign .

OP posts:
AnneofGreenGablesAgain · 21/07/2017 21:10

So glad I'm not the only one who feels like this about the CG thread. I can't read it anymore.

I have a close family member who has PMLD and some of the language used about quality of life is hard to read.

Also hard as parent of a dc with SEN to read the way the parents are spoken of.

Saucery · 21/07/2017 21:10

How is that disablist, though? Fair enough not to like long running series threads about one subject, but it doesn't mean they are disablist. Might be annoying, might be something you disagree with and wouldn't post on yourself, but that's all. Personal opinion, innit.

AnneofGreenGablesAgain · 21/07/2017 21:13

If the threads were balanced there would be more people putting the alternative case.

Polter · 21/07/2017 21:19

Agree with Noeuf and Anne.

Saucery · 21/07/2017 21:25

Sooo........balance them? Confused

User843022 · 21/07/2017 21:26

'But many haven't. They are obsessing.'

So are you 'obsessing' about CG threads? No. You are sharing an opinion. I cba to AS but I would guess it's not the 1st time you or others have shared it?

What you find on mn whether it's, for example, parking or breastfeeding the same thing gets said over and over again. It doesnt mean it's the same 'obsessed' people. It's the same discussion that is all.

AnneofGreenGablesAgain · 21/07/2017 21:28

There is a reason no one who thinks differently is posting on there - look at the responses when they do.

BishopBrennansArse · 21/07/2017 21:29

Anne 👍🏻

Polter · 21/07/2017 21:30

Oh come on, Sam was accused of being a troll for giving a different view. There are posts saying if people aren't comfortable with the discussion they shouldn't be there.

rinabean · 21/07/2017 21:32

It's really taking the piss to pretend you are the queen of disablism just because you have a disabled child

The real disablism is everyone saying "well my child is disabled" and thinking about "well if I had a disabled child"

you're fucking irrelevant. Your opinions are stupid. You're not disabled. Go away

Can you imagine if parents of gay people were the ones to decide what's homophobic? White parents of mixed people to decide what's racist. Gay people trying to say "no, no you're wrong" and shouted down by straight parents of gay people, "you're the homophobes!!!!!" How ridiculous. That's what you are doing. That's how it feels as a disabled woman. A disabled woman - not a mother of a disabled child. I'm actually what anti-disablism is for, you are not, your child is but you are not.

You're all thinking "no don't kill my precious baby child" - which is absolutely fine. That's pretty normal. I don't have a problem with that strong feeling that you have.

I have a problem with you acting like disabled children should be kept alive to amuse their parents, and that anyone who thinks otherwise is obviously hitler and not, you know, disabled themselves? Or simply having empathy for disabled people, not seeing them as aliens?

You are always, always thinking about yourself as a parent of disabled children, never as a disabled person (because you're not - and you don't think you could become one). That's disablism

yousignup · 21/07/2017 21:32

I am a judge. It's a terrible terrible situation for all to be in. People take sides yet forget that.

Weebo · 21/07/2017 21:40

Who is pretending to be 'The Queen of Disablism'? Confused

Many parents of children with a disability on MN have disabilities of their own.

AnneofGreenGablesAgain · 21/07/2017 21:40

It's important for all of us not to take sides. That's what we have a legal system for - to have people dedicated to look at all the evidence and make the decision that seeks most likely to be right.

rina, I don't think anyone whether disabled themselves or a parent of a disabled child can say with certainty they can speak for what children or adults with PMLD would want who can't speak for themselves or form the thoughts to express.

My relative can't see, doesn't know who anyone is, can't understand any language, or speak. He has profound damage to huge areas of his brain. But he laughs when he feels a water spray and enjoys eating a strawberry. Who are we to say that is worth nothing? Parents of disabled children know them best and in most circumstances are their best advocates.

The court decide what is right for CG but I don't think anyone without access to the full evidence before the court can say what the outcome should be.

BishopBrennansArse · 21/07/2017 21:41

Hmm oooook.....

AnneofGreenGablesAgain · 21/07/2017 21:42

Was the that to me bishop? Sorry if I've offended you

Polter · 21/07/2017 21:43

I can't work out who you're aiming that at rina.

Polter · 21/07/2017 21:43

I think it was to rina

hazeyjane · 21/07/2017 21:43

Ah, and this thread reminds me why I decided to stick to posting about favourite cleaning products and Gareth Malone.

I'm out.

AnneofGreenGablesAgain · 21/07/2017 21:44

Me too Hazey - I'm going off to have a cry

DixieNormas · 21/07/2017 21:45

This reply has been deleted

Message withdrawn at poster's request.

Polter · 21/07/2017 21:46

Oh Anne Flowers

CherriesInTheSnow · 21/07/2017 21:46

I have never posted on those threads but I have followed them from the very beginning.

I have to say, that while I have seen the odd distasteful comment, I have never come across a disablist comment.

The posters on there also do not have to justify their willingness to have a conversation about the case surrounding poor Charlie, it has huge potential far reaching consequences in terms of law and societal perception of a variety of medical ethical issues, and many posters are effected personally by similar issues.

Blindly calling the entire thread disablist is beyond ignorant. Starting a bitchy TAAT is also very Hmm

Starting a bitchy thread about it is also not a debate. It's pathetic and purile. If you have opposing views, why don't you express them on the threads, or start your own about the actual case (rather than the thread) which offers your own perspective?

I think this thread should be deleted and frankly you should be ashamed of yourself. This is a case about a poorly little boy and many women on that thread have ill or disabled children too and just because they have different opinions to you you feel the need to start a thread personally attacking their views?

SouthWestmom · 21/07/2017 21:47

It's fine Rina I'm disabled and so are a couple of my children. Grin

Polter · 21/07/2017 21:49

Again, Cherries, people who disagree or question anyone on the threads about Charlie are all but told to sod off.

CherriesInTheSnow · 21/07/2017 21:53

I don't think so from what I've seen, the only comments I've personally seen with that response are the ones that say something along the lines of "why are you talking about this so much".

It is an emotive case and I do find they have gone out of their way to keep the threads sensible and balanced and offer support to other posters where needed.

If it were truly as awful as the OP suggests, the threads would have been deleted.

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