what ever happened to the This Is my child campaign?

[Samcro]

i thought it was done to educate people on children with disabilities...
yet here we are with thread 13 about CG full of rubberneckers making disablist comments about brain damage Or should I say ignorant comments.
why is mn hq not saying hang on a minute this isn't in the spirit of the site and reminding posters of the TIMC Campaign .

Your post makes a lot of sense and raises interesting points, however for personally the OP wasnt about that - to me it's not an argument of whether he is disabled or ill or what these terms mean, more the comment that the posters on the other thread were disablist for - I'm not even sure why? Questioning the quality of Charlies life? Debating the ethics of treating him because of the state of his condition? that's what I gleaned from the post, but of course the points you raised are IMO much more sensible and pertinent than the OP.

Ceto it's not a fast paced developing story

How on earth can you say that? OK, there have been times when it's not been that fast, but then threads have slowed down at such times anyway. But there have been numerous developments, particularly over the last couple of weeks.

it's public and going to be commented on.

So go on there and comment. But don't break MN rules by having a TAAT. They have in any event largely stopped commenting on the CA FB pages

Ok so to you fast paced and developing is a new FB post. We just have differences of opinion there.

No point commenting, it's an echo chamber and as for no longer commenting on CA - I just looked after seeing your post and that's not really the case.

Whatever though, it's just one distasteful area of the forum.

How bizarre to interpret what I have said about a developing story meaning a new FB post. I must say, that throws a whole new light on your criticisms, Noeuf.

As I've pointed out, I don't go on the CA FB page, so no, I'm not talking about developments in that light. To me, a developing story is just that - one where there are new developments like a number of court hearings and appeals, press briefings or announcements from those involved and the like. In relation to the CG case we've had, recently: the European Court decision; the parents saying they'd been told that they couldn't take Charlie home to die; the parents saying they'd been told one particular date was the date the ventilation would be withdrawn; the announcement that that wasn't going to happen that quickly; the experts writing to GOSH about what were stated to be further developments in relation to the treatment; the short notice referral back to court; the initial court hearing; the US doctor's visit and parental announcement shortly after; the issue about whether further scans would be allowed and the weekend hearing on that; the meeting between doctors; the directions hearing, and what appears to have been a further afternoon hearing when the MRI scan results came out; the GOSH announcement about harassment and threats; and now the forthcoming hearing tomorrow.

But yes, you want to characterise all that as "a new FB post" in order to support your views, go for it.

Ceto loads of that isn't news and certainly not the last few any great detail beyond a Tweet or couple of lines. Recently there's been mainly speculation and I fail to see how so many threads have been necessary. The threads are endless rehashing of posters' views with an add on recently of how much sympathy they have for the parents, to tick that box.

But up to you. I stand by my view the threads every time I look remain posters validating their opinions, congratulating themselves on their cleverness and waiting for anything new to dissect.

Also agree with Dixie a lot of the detail was ages ago.

No, Dixie, it absolutely didn't.

And how on earth is it not news? That's going to come as something of a surprise to, for example, those in charge of the main news channels who reported the GOSH statement about harassment and bullying as their lead item on, um, the news programmes last night.

'To me, a developing story is just that - one where there are new developments like a number of court hearings and appeals, press briefings'
I agree. It's ongoing. It's not like it happened 2 years ago and people are still talking about it.

Also, with regard to the 13 threads, I commented on one possibly the 6th or 7th. I'm not still on them saying the same thing over and over. So the amount of threads is due to the huge amount of posters on mn, not the same ones saying the same things.

Agree with Noeuf and I find posters saying we won't get to know about the court case until tomorrow afternoon extremely distasteful. I really hope the hearing will be in private so the decision will just be known to those poor parents and journos won't be tweeting on twitter about the presumed death of a child

I once read a poster saying on an early CG thread that it was disgrace talking about this ongoing tragic case and how could people be like that. I looked at their posting history and they were commenting on the politics of Grenfell and failings of the tories when there were still people trapped in there.
Another poster pointed out their double standards and they of course said it was different. How though?
Tragic events will be discussed at length on chat forums, offensive posts are deleted on mn which is far better than many sites.

Also fwiw I was attacked by pointing out I could understand the confusion of the parents as they were told conflicting things from different hcps, I said I had looked after many long term vented patients and respiratory support with patients with brain injuries does occur and imo gosh should have looked at not escalating treatment for further organ support, rather than a court case to withdraw respiratory support..

A lovely poster told others to ignore me I was after a fight, purely for putting forward my view in a very non aggressive way.

Its the nature of mn though, lots of unpleasant people about who just love attacking people. It doesn't seem to matter which side anyone is on, on any subject.

I honestly cannot understand the obsession over someone's baby dying

Much of the interest isn't an obsession over someone's baby dying. It's more generalised than that, it's alarm that there is a growing number of people seemingly believing that facts and expert opinion can be overturned if there's a sufficiently loud social media campaign to shout them down. However, it's being discussed in relation to Charlie Gard because it's just the latest and most visible manifestation of this problem.

Similar concerns were voiced during the EU Referendum and then the presidential race. It's something that is coming up as a problem more and more frequently and has to potential to cause real trouble.

And then there are the other dozen or more strands being discussed that also aren't simply an obsession over someone's baby dying.

I'm entitled to my opinion and at least I'm not speculating over the date of a death !!!

'And then there are the other dozen or more strands being discussed that also aren't simply an obsession over someone's baby dying.'

I agree. People have discussed the legalities, the ethics, who should decide when to stop treatment parents or medics, sharing their own experiences with ill or terminally ill relatives. It is rather simplistic and very unpleasant to say anyone is 'obsessing over someone's baby dying'.

Isn't it all horrible the way there is now a backlash against the parents after the hospital released information about death threats against them.

'CA' attacking the hospital, others attacking the parents and at the centre a gravely ill DC who deserves confidentiality and privacy imo like any patient. Why do we even know his name it's terrible.

Yes it absolutely did

I take it that this refers to my description of recent developments in this case, and your statement, Dixie, that "most of that happened before the threads started"?

The series of events I described began with the European Court decision on 27th June; then there were the announcements about when he would be taken off the ventilators, the last being on 30th June when the parents said GOSH were allowing more time. The next event I cited was the experts writing about new evidence, which was announced around 6th July.

There were a couple of longish threads beginning on 29th June and 1st July, plus various other shorter threads or brief discussions in others before the current batch began on 6th July.

So, no, most of the events I cited clearly did not happen before the threads started.

Portia, who said you weren't entitled to your opinion? That doesn't mean, however, that other people aren't equally entitled to express different opinions.

There is a huge backlash against the parents now. It was bound to happen at some point.
People are angry about the abuse both to the staff and parents of other very ill children at GOSH.

Myrtle, I 100% agree that the backlash against the parents is disgraceful. Unfortunately I think it is only too likely that they have had to suffer attacks and threats from evil and sick people, because that happens far too often on social media.

You ask why we know his name - it's because the parents have chosen to use publicity - and again, they are perfectly entitled to do so.

And in the 15th July Thread 10 was started, they are now at Thread 14 (600 odd posts?) . So, four full threads and a fifth one mid way in a week where not much happened.