what ever happened to the This Is my child campaign?

[Samcro]

i thought it was done to educate people on children with disabilities...
yet here we are with thread 13 about CG full of rubberneckers making disablist comments about brain damage Or should I say ignorant comments.
why is mn hq not saying hang on a minute this isn't in the spirit of the site and reminding posters of the TIMC Campaign .

Glad it wasn't just me, Myrtle
I think that direct comparison on mainstream news isn't helping anyone to look at the CG case and separate the issues there from the issues faced by a child who has a disability.

taking the piss out of people less clever (ie Charlie's Army)

There threads express major concerns around the fact that Charlie's Army have been talking about physically attacking GOSH , its staff and lawyers, and have been repeatedly describing them as murderers, perjurers, and liars, and indeed worse than the people running Nazi concentration camps. Posters also reasonably worry about the parents of children at GOSH who have to run the gamut of their demonstrations, or parents who are told that if they ever consent to ventilation being withdrawn they don't care about their children or are weak. And good has come out of it, in terms of offensive CA posts being withdrawn, and supportive messages being sent to GOSH staff. Yes, in amongst those concerns is a degree of incredulity at how people can believe these things, how they can ignore and misrepresent the facts, and indeed about the ethics of selling and buying tacky memorabilia. But the role of social media is in itself an aspect of this case that is worth discussing.

If you characterise all of that as "taking the piss" you are using some weird definitions of that term.

What did you mean by your previous post Tinsel?

I mean, that there are ways of speaking about terminal illness that are wholely appropriate when talking about terminal illness which would not be an appropriate thing to say about someone who is stable and has disabilities (or gay, or BAM, or female etc)

Because it's TERMINAL ILLNESS and its tragic and awful and unthinkable and horrific and other words that would be a massively inappropriate way to describe a disabled person who is going about their life

It's okay because it's not like for like

That's disingenuous, zzzzz. Framing a question in terms of "is this one to talk about TIMC, or just an attempt to round up those you assume have a single stance and harass them about it because it's easier than reading what they actually say?" is a blatant misrepresentation of what I and other posters have said, and an equally blatant attempt to shut down discussion on the very topic this thread relates to.

I think it is a shame TIMC has been left to fade away and isn't linked to as it was originally intended by MNHQ.
It is irrelevant to Charlie Gard, however.

zzzzzz you haven't said much about TIMC yourself, other than to say that nobody is letting you talk about it

Feel free…..

What on earth stops you discussing TIMC, zzzzz? The issue is that, in a thread directly linking it to the CG threads, you want to stop people mentioning CG.

I find these threads unbelievably upsetting. I do understand that people like to discuss and explore. Perhaps only those untouched by it all can do that?
You were the one who asked me to elaborate on my previous post
Was it just so that you could complain that I'm posting (a reply to you )? or what?

Its funny that zzzzz ignores the actual points discussed but prefers to keep trying to start an argument..

But TIMC is about awareness. We all have a stake in a fairer and more understanding society and a right to comment on issues preventing that.
If we take TIMC as a starting point for this site then people commenting may or may not be 'untouched' by it. Who is to know who is 'untouched' by it, anyway? Does everyone have to whap out their experiences and credentials for commenting acceptably? It's really combative to demand that and you'll just end up with an echo chamber where no one outside of it becomes more informed about issues affecting children and adults with a disability.

I get you, zzzzz. Absolutely no one has the right to draw a line at which a life is 'worth' living. I find that abhorrent, personally, although I have my own line drawn for me alone. I would not draw a line for anyone else, I have no right to do that.
If Charlie's existence was at a level, non-degenerative point free of pain and discomfort then that would be for the people closest to him to decide on what would happen next. But it's not level, it is rapidly degenerative and no one can say he is not in pain. It's not a disability issue, it's an end of life issue.

Again what zzzz said.

zzzzz cross posted with you there about experiences which might have made my post look like a direct answer to your personal reasons for not commenting, which was not intentional.

I have read, but not posted on the CG threads - I think the ethical problems this case raises will have massive consequences into the future. I personally, have not seen anything that I would consider disabilist.

I think the TIMC issue is a separate one, it is a shame, my ds has his photo included in the campaign, but when it started I think I had an ideal of what I hoped it would be, and that ideal (to me) just isn't here any more.

Whatever happened to the TAAT rule?

Dixie, they've been back in court today.

And the person who brought up a former posters child was one of the people complaining about the thread (iirc it was something like "you all supported FormerPoster in the opposite decision, bunch of hypocrites" )

(And obviously the circumstances were not the same in FormerPosters case anyway)